Guest guest Posted December 13, 2006 Report Posted December 13, 2006 My 25 month old son had an MRI & EEG the other day after being referred to a pediatric neurologist due to his delayed speech. He babbles, but has no actual vocabulary. Sometimes he'll repeat what we say, but it's rare. His hearing is fine, and he's working with a speech therapist and special education teacher provided through Early Intervention. I would appreciate any feedback from others who have had these tests performed on their children. How long does it take to interpret the tests and what sort of informtion do these tests provide. Thank you........ T64 Quote
Guest guest Posted December 14, 2006 Report Posted December 14, 2006 hi! my son is currently ungoing the same tests. we had the EEG last week and this week we did the MRI. the EEG lady told us that his brain waves were beautiful but we could see a minor gap in them when he would attempt speech. my son will be 4 next month and my 2 year old talks better than he does. his neurologist told us that she wanted the tests done to more or less see if there is any explanation as to WHY he has a speech disorder, ie.. brain damage, epelepsy, or some type of nuerological problem that has been inflicted....i knew that he had not had a head injury so i knew that the problem started at birth if not before, but it is all in the name of research i guess so maybe they can find a cause and a " fix " for our little ones. i honestly believe that my sons tests were ordered and done for precautionary purposes...but i do not know. we just did the MRI yesterday, so i will know something on that the first of next week when we go back to the doctor. Did they have to sedate your little one for the MRI? they did mine so that he would lay still...i hate that...i hope that this has been of some kind of help...although i think i have just as many questions as you do....lol. well good luck, and keep us posted on what you find out as i will do the same about my little jacob. With love for all of us parents, 's mom Leah With Love Always, Tommie Leah [ ] MRI & EEG My 25 month old son had an MRI & EEG the other day after being referred to a pediatric neurologist due to his delayed speech. He babbles, but has no actual vocabulary. Sometimes he'll repeat what we say, but it's rare. His hearing is fine, and he's working with a speech therapist and special education teacher provided through Early Intervention. I would appreciate any feedback from others who have had these tests performed on their children. How long does it take to interpret the tests and what sort of informtion do these tests provide. Thank you........ T64 ________________________________________________________________________________\ ____ Need a quick answer? Get one in minutes from people who know. Ask your question on www.Answers. Quote
Guest guest Posted December 14, 2006 Report Posted December 14, 2006 Hi- We have had 3 MRI's and they take only a couple days to get a preliminary report on usually. I would just call the neuro's office and a couple days after the test to see if they have any results yet. The dr. should be able to tell you the basics over the phone. Waiting for a follow-up appt. for results is torture! No experience with the EEG. Katrina > > My 25 month old son had an MRI & EEG the other day after being > referred to a pediatric neurologist due to his delayed speech. He > babbles, but has no actual vocabulary. Sometimes he'll repeat what we > say, but it's rare. His hearing is fine, and he's working with a > speech therapist and special education teacher provided through Early > Intervention. I would appreciate any feedback from others who have had > these tests performed on their children. How long does it take to > interpret the tests and what sort of informtion do these tests provide. > Thank you........ > T64 > Quote
Guest guest Posted December 14, 2006 Report Posted December 14, 2006 Hi- We have had 3 MRI's and they take only a couple days to get a preliminary report on usually. I would just call the neuro's office and a couple days after the test to see if they have any results yet. The dr. should be able to tell you the basics over the phone. Waiting for a follow-up appt. for results is torture! No experience with the EEG. Katrina > > My 25 month old son had an MRI & EEG the other day after being > referred to a pediatric neurologist due to his delayed speech. He > babbles, but has no actual vocabulary. Sometimes he'll repeat what we > say, but it's rare. His hearing is fine, and he's working with a > speech therapist and special education teacher provided through Early > Intervention. I would appreciate any feedback from others who have had > these tests performed on their children. How long does it take to > interpret the tests and what sort of informtion do these tests provide. > Thank you........ > T64 > Quote
Guest guest Posted December 14, 2006 Report Posted December 14, 2006 We've been through both. The MRI results were available the following day, and the EEG results took about a week (though the consulting neurologist was on the other side of the country, so i'm sure that was a factor). I should tell you that we had divergent opinions about the EEG results. All THREE neurologists agreed that it was not normal, but it took multiple consultations to get consensus on whether or not to treat. One neurologist that we met with said that these types of abnormalities are common in young kids with " these kinds of issues, " and, since we were not SEEING any seizures (they were all happening in his sleep) that he didn't want to treat them. We, needless to say, got another opinion and decided to treat them with Depakote. It has been a life changing experience for our son. He is a brand-new kid. We also learned that neurology is much more about opinions than one would think or like it to be. Good luck! (mom to - 3 years old on monday - verbal apraxia & that's all now that he's seizure-free!) > > > > > My 25 month old son had an MRI & EEG the other day after being > > referred to a pediatric neurologist due to his delayed speech. He > > babbles, but has no actual vocabulary. Sometimes he'll repeat what we > > say, but it's rare. His hearing is fine, and he's working with a > > speech therapist and special education teacher provided through Early > > Intervention. I would appreciate any feedback from others who have > had > > these tests performed on their children. How long does it take to > > interpret the tests and what sort of informtion do these tests > provide. > > Thank you........ > > T64 > > > Quote
Guest guest Posted December 15, 2006 Report Posted December 15, 2006 We've been through both. The MRI results were available the following day, and the EEG results took about a week (though the consulting neurologist was on the other side of the country, so i'm sure that was a factor). I should tell you that we had divergent opinions about the EEG results. All THREE neurologists agreed that it was not normal, but it took multiple consultations to get consensus on whether or not to treat. One neurologist that we met with said that these types of abnormalities are common in young kids with " these kinds of issues, " and, since we were not SEEING any seizures (they were all happening in his sleep) that he didn't want to treat them. We, needless to say, got another opinion and decided to treat them with Depakote. It has been a life changing experience for our son. He is a brand-new kid. We also learned that neurology is much more about opinions than one would think or like it to be. Good luck! (mom to - 3 years old on monday - verbal apraxia & that's all now that he's seizure-free!) > > > > > My 25 month old son had an MRI & EEG the other day after being > > referred to a pediatric neurologist due to his delayed speech. He > > babbles, but has no actual vocabulary. Sometimes he'll repeat what we > > say, but it's rare. His hearing is fine, and he's working with a > > speech therapist and special education teacher provided through Early > > Intervention. I would appreciate any feedback from others who have > had > > these tests performed on their children. How long does it take to > > interpret the tests and what sort of informtion do these tests > provide. > > Thank you........ > > T64 > > > Quote
Guest guest Posted December 15, 2006 Report Posted December 15, 2006 An excellent doc from which to seek a second opinion is Young Park at Augusta Teaching Hospital in Georgia. People fly to him from all over the country (and world). He was the first and only doc who saw my sons EEG and MRI and immediately asked if he had ever had sleep walking or night terrors. This had never even been an issue with any other doctor before. It turns out that my son (and another diagnosed years later as was I) has a hereditary sleep seizure syndrome which can manifest in young children as sleep terrors then as sleep walking. My son was 14 and suffered a brain injury before this diagnosis. Every other doctor had indicated that sleep terrors are common and need no concern. Brigett michellerichardslavin <michellelavin@...> wrote: We've been through both. The MRI results were available the following day, and the EEG results took about a week (though the consulting neurologist was on the other side of the country, so i'm sure that was a factor). I should tell you that we had divergent opinions about the EEG results. All THREE neurologists agreed that it was not normal, but it took multiple consultations to get consensus on whether or not to treat. One neurologist that we met with said that these types of abnormalities are common in young kids with " these kinds of issues, " and, since we were not SEEING any seizures (they were all happening in his sleep) that he didn't want to treat them. We, needless to say, got another opinion and decided to treat them with Depakote. It has been a life changing experience for our son. He is a brand-new kid. We also learned that neurology is much more about opinions than one would think or like it to be. Good luck! (mom to - 3 years old on monday - verbal apraxia & that's all now that he's seizure-free!) > > > > > My 25 month old son had an MRI & EEG the other day after being > > referred to a pediatric neurologist due to his delayed speech. He > > babbles, but has no actual vocabulary. Sometimes he'll repeat what we > > say, but it's rare. His hearing is fine, and he's working with a > > speech therapist and special education teacher provided through Early > > Intervention. I would appreciate any feedback from others who have > had > > these tests performed on their children. How long does it take to > > interpret the tests and what sort of informtion do these tests > provide. > > Thank you........ > > T64 > > > __________________________________________________ Quote
Guest guest Posted December 15, 2006 Report Posted December 15, 2006 As the mom of a child with epilepsy we have done numerous EEGs and MRIs. I would think for kids with apraxia it would be important to have a PET scan done. An MRI checks brain structure (ie. my son has a lesion in his speech center). The PET scan checks brain function (ie. that the lesion is dead cells and has no function). A further brain biopsy confirmed this finding. Hope that makes sense. I am a lurker, just trying to pick up some tips in helping the speech of my other son who has PDD-NOS. Jen Quote
Guest guest Posted December 15, 2006 Report Posted December 15, 2006 Hi , I wanted to go off line and ask if you are seeing neuros at CHildren's in Boston by any chance? If you are at Boston do you have any recommendations, good or bad, for a neuro there? thanks michellerichardslavin <michellelavin@...> wrote: We've been through both. The MRI results were available the following day, and the EEG results took about a week (though the consulting neurologist was on the other side of the country, so i'm sure that was a factor). I should tell you that we had divergent opinions about the EEG results. All THREE neurologists agreed that it was not normal, but it took multiple consultations to get consensus on whether or not to treat. One neurologist that we met with said that these types of abnormalities are common in young kids with " these kinds of issues, " and, since we were not SEEING any seizures (they were all happening in his sleep) that he didn't want to treat them. We, needless to say, got another opinion and decided to treat them with Depakote. It has been a life changing experience for our son. He is a brand-new kid. We also learned that neurology is much more about opinions than one would think or like it to be. Good luck! (mom to - 3 years old on monday - verbal apraxia & that's all now that he's seizure-free!) > > > > > My 25 month old son had an MRI & EEG the other day after being > > referred to a pediatric neurologist due to his delayed speech. He > > babbles, but has no actual vocabulary. Sometimes he'll repeat what we > > say, but it's rare. His hearing is fine, and he's working with a > > speech therapist and special education teacher provided through Early > > Intervention. I would appreciate any feedback from others who have > had > > these tests performed on their children. How long does it take to > > interpret the tests and what sort of informtion do these tests > provide. > > Thank you........ > > T64 > > > Quote
Guest guest Posted December 15, 2006 Report Posted December 15, 2006 Hi , I wanted to go off line and ask if you are seeing neuros at CHildren's in Boston by any chance? If you are at Boston do you have any recommendations, good or bad, for a neuro there? thanks michellerichardslavin <michellelavin@...> wrote: We've been through both. The MRI results were available the following day, and the EEG results took about a week (though the consulting neurologist was on the other side of the country, so i'm sure that was a factor). I should tell you that we had divergent opinions about the EEG results. All THREE neurologists agreed that it was not normal, but it took multiple consultations to get consensus on whether or not to treat. One neurologist that we met with said that these types of abnormalities are common in young kids with " these kinds of issues, " and, since we were not SEEING any seizures (they were all happening in his sleep) that he didn't want to treat them. We, needless to say, got another opinion and decided to treat them with Depakote. It has been a life changing experience for our son. He is a brand-new kid. We also learned that neurology is much more about opinions than one would think or like it to be. Good luck! (mom to - 3 years old on monday - verbal apraxia & that's all now that he's seizure-free!) > > > > > My 25 month old son had an MRI & EEG the other day after being > > referred to a pediatric neurologist due to his delayed speech. He > > babbles, but has no actual vocabulary. Sometimes he'll repeat what we > > say, but it's rare. His hearing is fine, and he's working with a > > speech therapist and special education teacher provided through Early > > Intervention. I would appreciate any feedback from others who have > had > > these tests performed on their children. How long does it take to > > interpret the tests and what sort of informtion do these tests > provide. > > Thank you........ > > T64 > > > Quote
Guest guest Posted December 15, 2006 Report Posted December 15, 2006 An excellent doc from which to seek a second opinion is Young Park at Augusta Teaching Hospital in Georgia. People fly to him from all over the country (and world). He was the first and only doc who saw my sons EEG and MRI and immediately asked if he had ever had sleep walking or night terrors. This had never even been an issue with any other doctor before. It turns out that my son (and another diagnosed years later as was I) has a hereditary sleep seizure syndrome which can manifest in young children as sleep terrors then as sleep walking. My son was 14 and suffered a brain injury before this diagnosis. Every other doctor had indicated that sleep terrors are common and need no concern. Brigett michellerichardslavin <michellelavin@...> wrote: We've been through both. The MRI results were available the following day, and the EEG results took about a week (though the consulting neurologist was on the other side of the country, so i'm sure that was a factor). I should tell you that we had divergent opinions about the EEG results. All THREE neurologists agreed that it was not normal, but it took multiple consultations to get consensus on whether or not to treat. One neurologist that we met with said that these types of abnormalities are common in young kids with " these kinds of issues, " and, since we were not SEEING any seizures (they were all happening in his sleep) that he didn't want to treat them. We, needless to say, got another opinion and decided to treat them with Depakote. It has been a life changing experience for our son. He is a brand-new kid. We also learned that neurology is much more about opinions than one would think or like it to be. Good luck! (mom to - 3 years old on monday - verbal apraxia & that's all now that he's seizure-free!) > > > > > My 25 month old son had an MRI & EEG the other day after being > > referred to a pediatric neurologist due to his delayed speech. He > > babbles, but has no actual vocabulary. Sometimes he'll repeat what we > > say, but it's rare. His hearing is fine, and he's working with a > > speech therapist and special education teacher provided through Early > > Intervention. I would appreciate any feedback from others who have > had > > these tests performed on their children. How long does it take to > > interpret the tests and what sort of informtion do these tests > provide. > > Thank you........ > > T64 > > > __________________________________________________ Quote
Guest guest Posted December 15, 2006 Report Posted December 15, 2006 As the mom of a child with epilepsy we have done numerous EEGs and MRIs. I would think for kids with apraxia it would be important to have a PET scan done. An MRI checks brain structure (ie. my son has a lesion in his speech center). The PET scan checks brain function (ie. that the lesion is dead cells and has no function). A further brain biopsy confirmed this finding. Hope that makes sense. I am a lurker, just trying to pick up some tips in helping the speech of my other son who has PDD-NOS. Jen Quote
Guest guest Posted December 15, 2006 Report Posted December 15, 2006 Hi , I wanted to go off line and ask if you are seeing neuros at CHildren's in Boston by any chance? If you are at Boston do you have any recommendations, good or bad, for a neuro there? thanks michellerichardslavin <michellelavin@...> wrote: We've been through both. The MRI results were available the following day, and the EEG results took about a week (though the consulting neurologist was on the other side of the country, so i'm sure that was a factor). I should tell you that we had divergent opinions about the EEG results. All THREE neurologists agreed that it was not normal, but it took multiple consultations to get consensus on whether or not to treat. One neurologist that we met with said that these types of abnormalities are common in young kids with " these kinds of issues, " and, since we were not SEEING any seizures (they were all happening in his sleep) that he didn't want to treat them. We, needless to say, got another opinion and decided to treat them with Depakote. It has been a life changing experience for our son. He is a brand-new kid. We also learned that neurology is much more about opinions than one would think or like it to be. Good luck! (mom to - 3 years old on monday - verbal apraxia & that's all now that he's seizure-free!) > > > > > My 25 month old son had an MRI & EEG the other day after being > > referred to a pediatric neurologist due to his delayed speech. He > > babbles, but has no actual vocabulary. Sometimes he'll repeat what we > > say, but it's rare. His hearing is fine, and he's working with a > > speech therapist and special education teacher provided through Early > > Intervention. I would appreciate any feedback from others who have > had > > these tests performed on their children. How long does it take to > > interpret the tests and what sort of informtion do these tests > provide. > > Thank you........ > > T64 > > > Quote
Guest guest Posted December 15, 2006 Report Posted December 15, 2006 Hi , I wanted to go off line and ask if you are seeing neuros at CHildren's in Boston by any chance? If you are at Boston do you have any recommendations, good or bad, for a neuro there? thanks michellerichardslavin <michellelavin@...> wrote: We've been through both. The MRI results were available the following day, and the EEG results took about a week (though the consulting neurologist was on the other side of the country, so i'm sure that was a factor). I should tell you that we had divergent opinions about the EEG results. All THREE neurologists agreed that it was not normal, but it took multiple consultations to get consensus on whether or not to treat. One neurologist that we met with said that these types of abnormalities are common in young kids with " these kinds of issues, " and, since we were not SEEING any seizures (they were all happening in his sleep) that he didn't want to treat them. We, needless to say, got another opinion and decided to treat them with Depakote. It has been a life changing experience for our son. He is a brand-new kid. We also learned that neurology is much more about opinions than one would think or like it to be. Good luck! (mom to - 3 years old on monday - verbal apraxia & that's all now that he's seizure-free!) > > > > > My 25 month old son had an MRI & EEG the other day after being > > referred to a pediatric neurologist due to his delayed speech. He > > babbles, but has no actual vocabulary. Sometimes he'll repeat what we > > say, but it's rare. His hearing is fine, and he's working with a > > speech therapist and special education teacher provided through Early > > Intervention. I would appreciate any feedback from others who have > had > > these tests performed on their children. How long does it take to > > interpret the tests and what sort of informtion do these tests > provide. > > Thank you........ > > T64 > > > Quote
Guest guest Posted December 16, 2006 Report Posted December 16, 2006 They did have to sedate him which I think was the worst part as they had to stab him in 3 different places to get the IV in. He looked so tiny and helpless in that big machine. He was awake for about a half hour after the procedure after they brought him out of anaesthesia, but he fell asleep in the car and actually slept for 13 hours with the EEG " cap " on his head. As soon as he woke up, he started clawing at it, and I took it off, so the only reading they'll get is from a sleep state. God, I hope we don't have to go through that again! We'll call today and see if they have any results available. Thanks for your input. It helps to know I'm not alone in dealing with this. Tracey Quote
Guest guest Posted December 16, 2006 Report Posted December 16, 2006 They did have to sedate him which I think was the worst part as they had to stab him in 3 different places to get the IV in. He looked so tiny and helpless in that big machine. He was awake for about a half hour after the procedure after they brought him out of anaesthesia, but he fell asleep in the car and actually slept for 13 hours with the EEG " cap " on his head. As soon as he woke up, he started clawing at it, and I took it off, so the only reading they'll get is from a sleep state. God, I hope we don't have to go through that again! We'll call today and see if they have any results available. Thanks for your input. It helps to know I'm not alone in dealing with this. Tracey Quote
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