Re: Re: Doing Disney on Keto...ne

[Guest guest]

Hi ne,

We haven't done Disney, but we did travel overseas last week and visited some

theme parks in Australia with the same sorts of issues, and we went for a fully

contained apartment nearby (we hired a rental car for the week) with a full

kitchen etc. That is mainly because 2 of 's usual meals (breakfast and

dinner) are fried pancakes, and a microwave alternative (well, when I cook

anyway...) doesn't give the same result - his pancake comes out like soggy

scrambed egg - yuk. I also wanted a decent size freezer capacity for ice packs

to pack round food, frozen ingredients we bought over there etc.

We took our scales and basically prepared a day's worth of meals each morn or

the night before we headed out on each day trip. We had a laptop with the

mealplanner and some menus saved in, so if I needed to buy diff ingredients

(like ham etc that only stays fresh for 2 days) I could adjust the values as I

had to. We bought fresh eggs, cream, oil etc the first day there at a local

supermarket, kept them in the (large..) fridge and just adjusted the values (sl

diff values to what we have here in NZ) as I had to on the mealplanner. No diff

from being at home really.

We took a big cooler bag with us as hand luggage on the plane from home with

the meals we needed in transit (had to time them so that he didn't have any

meals to be carried thru Customs at the other end) for the plane journey (3 hrs)

and then used that same bag with ice packs etc in packed round his days meals

whenever we went out of the hotel.

I also had with me 's last official hospital clinic letter that listed

his medications and the diet as his current epilepsy treatments, as some of

those places prohibit taking your own food in. Only one of the theme parks

questioned the packed lunch, and I pulled that clinic letter out to show he was

on a medically calculated diet, and we were fine. Same deal with taking meals on

the plane.

It was do-able, but to be honest - I felt about half way thru the week away

that I wouldn't care if I never saw another mealplanner and set of scales again.

It was a pain having to worry about it all, rather than just getting up and

going and eating where and when we wanted like everyone else around us

But - obviously the other side of the coin is that was even able to go

away on a holiday fullstop, and for that I am eternally grateful - seeing him on

the rides with his brother and sister, swimming in the hotel pool, chatting to

new kids he met over there etc, meant it was worth all the keto hassle.

Oh - and the scales we took over there (fairly lightweight and small) had

battery back up, so if we had broken down say from the airport to the hotel,

anything like that, I could use the laptop and scales on the road, and buy

ingredients to make a meal in an emergency.

Not sure about internal US flights, but any flights here (domestic or

international) have nuts of any kind prohibited because of the allergy risk for

other passengers, so we couldn't use 's usual macadamia nut fat top up to

travel with. The packs we took over had to stay sealed, but we used a syringe of

oil as a fat top up during the flights which isn't a problem with , he

doesn't mind taking straight canola oil if needed, so that was a bonus.

Good luck

----- Original Message -----

From: smclague

Mike,

I'm jumping in on this one--would love it if you could post some

information directly here on the board as we are planning a trip to

Disney World in January or February. We've been to WDW before (many

years ago), but are struggling with accomodation issues--ie, can you

get by with reserving a fridge and microwave or should you really

get a room with a kitchenette. We'd love to stay " on property " to

avoid transportation issues--any ideas? Oh, and we will be

flying. . .

Thanks! Hope you had a fabulous time!

ne

[Guest guest]

Yep, we're ok for now with the dep wean ne, early days still though,

never say never, gulp...

So happy for you that is doing so well - that Mom instinct comes in

handy sometimes doesn't it...

Exciting but nervous times ahead then next week with the keppra wean, the very

best of luck

----- Original Message -----

From: smclague

I've haven't looked through all the posts yet but

hope that 's depakote wean is going well. has been off

depakote for 3 weeks now and we plan to wean the keppra beginning

next week! She's been seizure free now for over 3 months--

absolutely amazing to me, but exactly what my " mom instinct " told me

could happen for her--I'm ever so thankful that she is responding so

well. And I also want to thank you for the ever informative posts

you make to this board--there have been countless that have helped

me with questions for and made our journey so much easier.

ne