Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 > > Hi everyone, > > It's been a while since I've posted because Jake's doctor has decided > to wait on the diet since we're having quite a bit of control of his > t/c seizures right now. Although, the only time he has the seizures > are when/if he takes a nap during the afternoon. Then he's only have > seizures if he is really tired. Is this common? We're not seeing any > seizure activity while he's awake. THANK GOD!!! We've actually > Our daughter is also only having seizures when asleep. She is on depakote and now on the diet for almost a month. She only has seizures when asleep. i was told that upon falling asleep or just before waking your seizure threshold is at its lowest. Sleep seizures are the last to control. Hope this helps. lowered his Depakote recently because his ammonia levels were coming > back elevated. It seens that since we've lowered that particular med, > the seizures have subsided (knock on wood). I would love to go lower > but we're sooo afraid to do that. I would love anyone's input on this > type of sleeping seizure. > > I've been reading all of the different posts from everyone and I just > wanted to let each and everyone one of you that I continue to hope and > pray that you all get the results you want and need. > > Take care and if I dont' hear from anyone I hope you all have a > wonderful Thanksgiving!! > > > Jake's mom ~ Age 7 and holding off on the diet for now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Hi , glad you guys are having good control right now. Kristan has sleeping seizures too. She used to have seizures during the day when on drugs, but since stopping the drugs and starting the diet, the daytime seizures have gone, except for a few here and there the past few weeks as she is teething and has been throwing up since Monday. Kristan is the same as Jake, only has seizures when/if takes a nap (which is rare for her) and at night. I think the diet may have helped with the daytime seizures. We are currently weaning her from the diet as we haven't gotten the control we wanted, she has good and bad days on the diet, but if her daytime seizures return once she is off the diet, that will be my answer to put her back on the diet! Satnam, mom to Kristan, 23 months Keto kid since August 2003 and currently weaning from the diet > > Hi everyone, > > It's been a while since I've posted because Jake's doctor has decided > to wait on the diet since we're having quite a bit of control of his > t/c seizures right now. Although, the only time he has the seizures > are when/if he takes a nap during the afternoon. Then he's only have > seizures if he is really tired. Is this common? We're not seeing any > seizure activity while he's awake. THANK GOD!!! We've actually > lowered his Depakote recently because his ammonia levels were coming > back elevated. It seens that since we've lowered that particular med, > the seizures have subsided (knock on wood). I would love to go lower > but we're sooo afraid to do that. I would love anyone's input on this > type of sleeping seizure. > > I've been reading all of the different posts from everyone and I just > wanted to let each and everyone one of you that I continue to hope and > pray that you all get the results you want and need. > > Take care and if I dont' hear from anyone I hope you all have a > wonderful Thanksgiving!! > > > Jake's mom ~ Age 7 and holding off on the diet for now Quote Link to comment Share on other sites More sharing options...
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