Re:Osteoporosis - older keto kids

[Guest guest]

Hi

We are watching Claire's bone density very carefully. She did not have a

dexa scan until she had been on the diet 1 year which is a shame because we

don't have a baseline to compare her readings to. Also, the first one she

had was done by a different radiology company and it was read quite

differently so it makes comparisons difficult. Now we go to the Women's

hospital and the machine is callibrated the same each time, so the

comparisons over time are as accurate as we can get.

Claire's bone density is borderline and has remained about the same

(slightly less) each year it has been tested. This year the whole body scan

was 0.886 g/cm3, down 0.6% from the previous year (This amount is

considered statistically insignificant, but when you consider there was

0.6% loss the year before also, it becomes significant as far as I am

concerned). I also think that most of the bone loss was pre-diet. She was a

picky eater and has an allergy to dairy, so combined with steroids and

cocktails of AEDs it was a recipe for bone density problems. I wish I had

been alerted sooner.

I have increased Claire's Cal/Mag supplement because of this. The dietician

mentioned starting Caltrate . . . I said no thank you! So she suggested

Calcium Carbonate solution (basically sweetened liquid caltrate) which is

made by the children's hospital. After investigating I found that this

would amount to a whole meal's carb allowance . . . so I decided to just

increase her cal/mag.

It is my understanding that with the diet it seems to be the acidity that

causes the bone loss, so I am slowly reducing Claire's ratio by increasing

protein in the hope that it will offer some help on this issue.

The use of Pamidronate has not been mentioned at this stage, but I would be

very hesitant if it was. I will be interested to read the respones you get

on this.

Take care

Jill

At 12:21 PM 17/12/2004, you wrote:

>i wondered if anyone has had the problem of

>osteoporosis with their teens or older kids. bill, you

>mentioned that you stopped aeds because of this, did

>your daughter actually get it? matthew saw a doc

>yesterday who said that matthew did have osteoporosis

>and that calcium was leaching out of his bones and

>that this could cause kidney stones. the doc also

>admitted that aeds do cause osteoporosis - a warning

>to all of you with younger kids as i didn't know this

>until bill mentioned it.

>jill, are you out there? have you had any problem with

>this? they want to give him injections of PAMIDRONATE.

>i did some research on this and by the side effects

>sounds like it would counteract all the good that the

>diet is doing, it even says that it can cause

>seizures!

>we told the doc that we wanted to do some research

>first. we are really wary of drugs after all the

>damage they have already done.

>what i am really asking is if anyone knows of any

>alternate therapy for this. i feel that it may be too

>late for that.if you know of anything , it would be

>greatly appreciated.

> cheers, andrea.

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