osteoporosis - Re: older keto kids

[Guest guest]

Hi ,

Not so far, no, but we are long overdue a dexa scan which will tell us where

's bone density is currently at. (he got lost in the waiting list

somewhere... )

After 3 yrs on depakote plus many other meds as well as 2 yrs on keto at that

stage I expected his last one in Aug 03 to be below average, but for some reason

it wasn't. I'm kinda doubting this next one will be ok (16 mths since the last

one) can but hope...

I put the osteo bit in the subject heading to stand out a bit more, as there

are a few kiddies on here who have had the same probs - Saro's Rohan is one, and

mebbe Rebekah, La Verna's daughter I think?

Is on a calcium/magnesium supplement? That pamidronate description you

wrote sounds a bit of a worry, I think I'd be wary of it too, but I don't know

anythng about it. Or alternative therapies, only making sure that any calcium is

able to be properly absorbed. How are his Vit D levels?

----- Original Message -----

From: allan banks

i wondered if anyone has had the problem of

osteoporosis with their teens or older kids. bill, you

mentioned that you stopped aeds because of this, did

your daughter actually get it? matthew saw a doc

yesterday who said that matthew did have osteoporosis

and that calcium was leaching out of his bones and

that this could cause kidney stones. the doc also

admitted that aeds do cause osteoporosis - a warning

to all of you with younger kids as i didn't know this

until bill mentioned it.

jill, are you out there? have you had any problem with

this? they want to give him injections of PAMIDRONATE.

i did some research on this and by the side effects

sounds like it would counteract all the good that the

diet is doing, it even says that it can cause

seizures!

we told the doc that we wanted to do some research

first. we are really wary of drugs after all the

damage they have already done.

what i am really asking is if anyone knows of any

alternate therapy for this. i feel that it may be too

late for that.if you know of anything , it would be

greatly appreciated.

cheers, andrea.