Guest guest Posted November 29, 2006 Report Share Posted November 29, 2006 It probabably is NOT celiac, but you need to see a GI doc. There is a 3-5 % chance that it is celiac. I suspect it falls into a catogory of " gluten-sensitivity " like so many apraxic kids are falling into. I wouldn't be surprised if you had HLA testing if it turned out to be DQ1...just my guess...a " gluten-sensitivity " gene associated with neurological complications with gluten exposure. I suggest you go gluten-free regarless of what the GI doc says. Too many of our kids have a wheat allergy. This has got to be a piece of the puzzle. Did you get carnitine checked? -claudia > Hi , > > I got all the results today from the Dr and I will be emailing them > to you tomorrow. The Celiac Panel is confusing me. The Dr. says > that these results do not mean that he has Celiac, but refered us to > a GI. Can you tell me what you think? > > Here are the results: > > ASSAY Result > AGA/IgG + > AGA/IgA - > TTG/IgA - > EMA/IgA - > > Summary Interpretation: Results may support a diagnosis of celiac > desease, but are not specific. > > IgG serological marker for celiac disease detected. > > AGA IgG elevations with IgA deficiency indicates that celiac disease > is probable. AGA IgG elevations with normal total IgA occur in > normal individuals as well as other GI conditions. HLA typing may > be helpful. > > Assay Result Value Reference Range > Anti-Gliadin IgG ELISA (AGA IgG) 14.9 U/ml <10.0 U/ml > Anti-Gliadin IgA ELISA (AGA IgA) 0.5 U/ml <5.0 U/ml > Anti-Human Tissue Transglutaminase > IgA ELISA (TTG IgA) 0.8 U/ml <4.0 U/ml > Anti Endomysial IgA IFA (EMA IgA) Negative Negative > > Total Serum IgA by Nephelometry > (Total IgA) 98 mg/dl < 3 years : 8-220 mg/dl > 3-13 years :41-395 mg/dl > >13 years to adult: 44-441 mg/dl > > - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - > > Thanks for all your help! > > Deborah > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 It probabably is NOT celiac, but you need to see a GI doc. There is a 3-5 % chance that it is celiac. I suspect it falls into a catogory of " gluten-sensitivity " like so many apraxic kids are falling into. I wouldn't be surprised if you had HLA testing if it turned out to be DQ1...just my guess...a " gluten-sensitivity " gene associated with neurological complications with gluten exposure. I suggest you go gluten-free regarless of what the GI doc says. Too many of our kids have a wheat allergy. This has got to be a piece of the puzzle. Did you get carnitine checked? -claudia > Hi , > > I got all the results today from the Dr and I will be emailing them > to you tomorrow. The Celiac Panel is confusing me. The Dr. says > that these results do not mean that he has Celiac, but refered us to > a GI. Can you tell me what you think? > > Here are the results: > > ASSAY Result > AGA/IgG + > AGA/IgA - > TTG/IgA - > EMA/IgA - > > Summary Interpretation: Results may support a diagnosis of celiac > desease, but are not specific. > > IgG serological marker for celiac disease detected. > > AGA IgG elevations with IgA deficiency indicates that celiac disease > is probable. AGA IgG elevations with normal total IgA occur in > normal individuals as well as other GI conditions. HLA typing may > be helpful. > > Assay Result Value Reference Range > Anti-Gliadin IgG ELISA (AGA IgG) 14.9 U/ml <10.0 U/ml > Anti-Gliadin IgA ELISA (AGA IgA) 0.5 U/ml <5.0 U/ml > Anti-Human Tissue Transglutaminase > IgA ELISA (TTG IgA) 0.8 U/ml <4.0 U/ml > Anti Endomysial IgA IFA (EMA IgA) Negative Negative > > Total Serum IgA by Nephelometry > (Total IgA) 98 mg/dl < 3 years : 8-220 mg/dl > 3-13 years :41-395 mg/dl > >13 years to adult: 44-441 mg/dl > > - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - > > Thanks for all your help! > > Deborah > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 Thanks , Yes I did and a lot of other tests, I will email them to you along with the answer to the questions you mentioned on a previous email, but here are the results for Carnitine: Serum Carnitine Result Reference Free 23.0 30-60 nmole/ml Esterified 3.0 6-25 nmole/ml Total 26.0 40-80 nmole/ml We are already supplementing with Carnitor 3 X per day 330 mg tablets. And I have scheduled a GI for 12/05 (next week). I will keep you posted. Deborah " claudia.morris " <claudia.morris@...> wrote: It probabably is NOT celiac, but you need to see a GI doc. There is a 3-5 % chance that it is celiac. I suspect it falls into a catogory of " gluten-sensitivity " like so many apraxic kids are falling into. I wouldn't be surprised if you had HLA testing if it turned out to be DQ1...just my guess...a " gluten-sensitivity " gene associated with neurological complications with gluten exposure. I suggest you go gluten-free regarless of what the GI doc says. Too many of our kids have a wheat allergy. This has got to be a piece of the puzzle. Did you get carnitine checked? -claudia > Hi , > > I got all the results today from the Dr and I will be emailing them > to you tomorrow. The Celiac Panel is confusing me. The Dr. says > that these results do not mean that he has Celiac, but refered us to > a GI. Can you tell me what you think? > > Here are the results: > > ASSAY Result > AGA/IgG + > AGA/IgA - > TTG/IgA - > EMA/IgA - > > Summary Interpretation: Results may support a diagnosis of celiac > desease, but are not specific. > > IgG serological marker for celiac disease detected. > > AGA IgG elevations with IgA deficiency indicates that celiac disease > is probable. AGA IgG elevations with normal total IgA occur in > normal individuals as well as other GI conditions. HLA typing may > be helpful. > > Assay Result Value Reference Range > Anti-Gliadin IgG ELISA (AGA IgG) 14.9 U/ml <10.0 U/ml > Anti-Gliadin IgA ELISA (AGA IgA) 0.5 U/ml <5.0 U/ml > Anti-Human Tissue Transglutaminase > IgA ELISA (TTG IgA) 0.8 U/ml <4.0 U/ml > Anti Endomysial IgA IFA (EMA IgA) Negative Negative > > Total Serum IgA by Nephelometry > (Total IgA) 98 mg/dl < 3 years : 8-220 mg/dl > 3-13 years :41-395 mg/dl > >13 years to adult: 44-441 mg/dl > > - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - > > Thanks for all your help! > > Deborah > --------------------------------- Cheap Talk? Check out Messenger's low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 Thanks , Yes I did and a lot of other tests, I will email them to you along with the answer to the questions you mentioned on a previous email, but here are the results for Carnitine: Serum Carnitine Result Reference Free 23.0 30-60 nmole/ml Esterified 3.0 6-25 nmole/ml Total 26.0 40-80 nmole/ml We are already supplementing with Carnitor 3 X per day 330 mg tablets. And I have scheduled a GI for 12/05 (next week). I will keep you posted. Deborah " claudia.morris " <claudia.morris@...> wrote: It probabably is NOT celiac, but you need to see a GI doc. There is a 3-5 % chance that it is celiac. I suspect it falls into a catogory of " gluten-sensitivity " like so many apraxic kids are falling into. I wouldn't be surprised if you had HLA testing if it turned out to be DQ1...just my guess...a " gluten-sensitivity " gene associated with neurological complications with gluten exposure. I suggest you go gluten-free regarless of what the GI doc says. Too many of our kids have a wheat allergy. This has got to be a piece of the puzzle. Did you get carnitine checked? -claudia > Hi , > > I got all the results today from the Dr and I will be emailing them > to you tomorrow. The Celiac Panel is confusing me. The Dr. says > that these results do not mean that he has Celiac, but refered us to > a GI. Can you tell me what you think? > > Here are the results: > > ASSAY Result > AGA/IgG + > AGA/IgA - > TTG/IgA - > EMA/IgA - > > Summary Interpretation: Results may support a diagnosis of celiac > desease, but are not specific. > > IgG serological marker for celiac disease detected. > > AGA IgG elevations with IgA deficiency indicates that celiac disease > is probable. AGA IgG elevations with normal total IgA occur in > normal individuals as well as other GI conditions. HLA typing may > be helpful. > > Assay Result Value Reference Range > Anti-Gliadin IgG ELISA (AGA IgG) 14.9 U/ml <10.0 U/ml > Anti-Gliadin IgA ELISA (AGA IgA) 0.5 U/ml <5.0 U/ml > Anti-Human Tissue Transglutaminase > IgA ELISA (TTG IgA) 0.8 U/ml <4.0 U/ml > Anti Endomysial IgA IFA (EMA IgA) Negative Negative > > Total Serum IgA by Nephelometry > (Total IgA) 98 mg/dl < 3 years : 8-220 mg/dl > 3-13 years :41-395 mg/dl > >13 years to adult: 44-441 mg/dl > > - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - > > Thanks for all your help! > > Deborah > --------------------------------- Cheap Talk? Check out Messenger's low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
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