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It probabably is NOT celiac, but you need to see a GI doc. There is

a 3-5 % chance that it is celiac. I suspect it falls into a catogory

of " gluten-sensitivity " like so many apraxic kids are falling into.

I wouldn't be surprised if you had HLA testing if it turned out to

be DQ1...just my guess...a " gluten-sensitivity " gene associated with

neurological complications with gluten exposure.

I suggest you go gluten-free regarless of what the GI doc says. Too

many of our kids have a wheat allergy. This has got to be a piece of

the puzzle.

Did you get carnitine checked? -claudia

> Hi ,

>

> I got all the results today from the Dr and I will be emailing

them

> to you tomorrow. The Celiac Panel is confusing me. The Dr. says

> that these results do not mean that he has Celiac, but refered us

to

> a GI. Can you tell me what you think?

>

> Here are the results:

>

> ASSAY Result

> AGA/IgG +

> AGA/IgA -

> TTG/IgA -

> EMA/IgA -

>

> Summary Interpretation: Results may support a diagnosis of celiac

> desease, but are not specific.

>

> IgG serological marker for celiac disease detected.

>

> AGA IgG elevations with IgA deficiency indicates that celiac

disease

> is probable. AGA IgG elevations with normal total IgA occur in

> normal individuals as well as other GI conditions. HLA typing may

> be helpful.

>

> Assay Result Value Reference Range

> Anti-Gliadin IgG ELISA (AGA IgG) 14.9 U/ml <10.0 U/ml

> Anti-Gliadin IgA ELISA (AGA IgA) 0.5 U/ml <5.0 U/ml

> Anti-Human Tissue Transglutaminase

> IgA ELISA (TTG IgA) 0.8 U/ml <4.0 U/ml

> Anti Endomysial IgA IFA (EMA IgA) Negative Negative

>

> Total Serum IgA by Nephelometry

> (Total IgA) 98 mg/dl < 3 years : 8-220

mg/dl

> 3-13 years :41-395

mg/dl

> >13 years to adult: 44-441

mg/dl

>

> - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

>

> Thanks for all your help!

>

> Deborah

>

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It probabably is NOT celiac, but you need to see a GI doc. There is

a 3-5 % chance that it is celiac. I suspect it falls into a catogory

of " gluten-sensitivity " like so many apraxic kids are falling into.

I wouldn't be surprised if you had HLA testing if it turned out to

be DQ1...just my guess...a " gluten-sensitivity " gene associated with

neurological complications with gluten exposure.

I suggest you go gluten-free regarless of what the GI doc says. Too

many of our kids have a wheat allergy. This has got to be a piece of

the puzzle.

Did you get carnitine checked? -claudia

> Hi ,

>

> I got all the results today from the Dr and I will be emailing

them

> to you tomorrow. The Celiac Panel is confusing me. The Dr. says

> that these results do not mean that he has Celiac, but refered us

to

> a GI. Can you tell me what you think?

>

> Here are the results:

>

> ASSAY Result

> AGA/IgG +

> AGA/IgA -

> TTG/IgA -

> EMA/IgA -

>

> Summary Interpretation: Results may support a diagnosis of celiac

> desease, but are not specific.

>

> IgG serological marker for celiac disease detected.

>

> AGA IgG elevations with IgA deficiency indicates that celiac

disease

> is probable. AGA IgG elevations with normal total IgA occur in

> normal individuals as well as other GI conditions. HLA typing may

> be helpful.

>

> Assay Result Value Reference Range

> Anti-Gliadin IgG ELISA (AGA IgG) 14.9 U/ml <10.0 U/ml

> Anti-Gliadin IgA ELISA (AGA IgA) 0.5 U/ml <5.0 U/ml

> Anti-Human Tissue Transglutaminase

> IgA ELISA (TTG IgA) 0.8 U/ml <4.0 U/ml

> Anti Endomysial IgA IFA (EMA IgA) Negative Negative

>

> Total Serum IgA by Nephelometry

> (Total IgA) 98 mg/dl < 3 years : 8-220

mg/dl

> 3-13 years :41-395

mg/dl

> >13 years to adult: 44-441

mg/dl

>

> - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

>

> Thanks for all your help!

>

> Deborah

>

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Share on other sites

Thanks ,

Yes I did and a lot of other tests, I will email them to you along with the

answer to the questions you mentioned on a previous email, but here are the

results for Carnitine:

Serum Carnitine Result Reference

Free 23.0 30-60 nmole/ml

Esterified 3.0 6-25 nmole/ml

Total 26.0 40-80 nmole/ml

We are already supplementing with Carnitor 3 X per day 330 mg tablets. And I

have scheduled a GI for 12/05 (next week). I will keep you posted.

Deborah

" claudia.morris " <claudia.morris@...> wrote:

It probabably is NOT celiac, but you need to see a GI doc. There is

a 3-5 % chance that it is celiac. I suspect it falls into a catogory

of " gluten-sensitivity " like so many apraxic kids are falling into.

I wouldn't be surprised if you had HLA testing if it turned out to

be DQ1...just my guess...a " gluten-sensitivity " gene associated with

neurological complications with gluten exposure.

I suggest you go gluten-free regarless of what the GI doc says. Too

many of our kids have a wheat allergy. This has got to be a piece of

the puzzle.

Did you get carnitine checked? -claudia

> Hi ,

>

> I got all the results today from the Dr and I will be emailing

them

> to you tomorrow. The Celiac Panel is confusing me. The Dr. says

> that these results do not mean that he has Celiac, but refered us

to

> a GI. Can you tell me what you think?

>

> Here are the results:

>

> ASSAY Result

> AGA/IgG +

> AGA/IgA -

> TTG/IgA -

> EMA/IgA -

>

> Summary Interpretation: Results may support a diagnosis of celiac

> desease, but are not specific.

>

> IgG serological marker for celiac disease detected.

>

> AGA IgG elevations with IgA deficiency indicates that celiac

disease

> is probable. AGA IgG elevations with normal total IgA occur in

> normal individuals as well as other GI conditions. HLA typing may

> be helpful.

>

> Assay Result Value Reference Range

> Anti-Gliadin IgG ELISA (AGA IgG) 14.9 U/ml <10.0 U/ml

> Anti-Gliadin IgA ELISA (AGA IgA) 0.5 U/ml <5.0 U/ml

> Anti-Human Tissue Transglutaminase

> IgA ELISA (TTG IgA) 0.8 U/ml <4.0 U/ml

> Anti Endomysial IgA IFA (EMA IgA) Negative Negative

>

> Total Serum IgA by Nephelometry

> (Total IgA) 98 mg/dl < 3 years : 8-220

mg/dl

> 3-13 years :41-395

mg/dl

> >13 years to adult: 44-441

mg/dl

>

> - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

>

> Thanks for all your help!

>

> Deborah

>

---------------------------------

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Thanks ,

Yes I did and a lot of other tests, I will email them to you along with the

answer to the questions you mentioned on a previous email, but here are the

results for Carnitine:

Serum Carnitine Result Reference

Free 23.0 30-60 nmole/ml

Esterified 3.0 6-25 nmole/ml

Total 26.0 40-80 nmole/ml

We are already supplementing with Carnitor 3 X per day 330 mg tablets. And I

have scheduled a GI for 12/05 (next week). I will keep you posted.

Deborah

" claudia.morris " <claudia.morris@...> wrote:

It probabably is NOT celiac, but you need to see a GI doc. There is

a 3-5 % chance that it is celiac. I suspect it falls into a catogory

of " gluten-sensitivity " like so many apraxic kids are falling into.

I wouldn't be surprised if you had HLA testing if it turned out to

be DQ1...just my guess...a " gluten-sensitivity " gene associated with

neurological complications with gluten exposure.

I suggest you go gluten-free regarless of what the GI doc says. Too

many of our kids have a wheat allergy. This has got to be a piece of

the puzzle.

Did you get carnitine checked? -claudia

> Hi ,

>

> I got all the results today from the Dr and I will be emailing

them

> to you tomorrow. The Celiac Panel is confusing me. The Dr. says

> that these results do not mean that he has Celiac, but refered us

to

> a GI. Can you tell me what you think?

>

> Here are the results:

>

> ASSAY Result

> AGA/IgG +

> AGA/IgA -

> TTG/IgA -

> EMA/IgA -

>

> Summary Interpretation: Results may support a diagnosis of celiac

> desease, but are not specific.

>

> IgG serological marker for celiac disease detected.

>

> AGA IgG elevations with IgA deficiency indicates that celiac

disease

> is probable. AGA IgG elevations with normal total IgA occur in

> normal individuals as well as other GI conditions. HLA typing may

> be helpful.

>

> Assay Result Value Reference Range

> Anti-Gliadin IgG ELISA (AGA IgG) 14.9 U/ml <10.0 U/ml

> Anti-Gliadin IgA ELISA (AGA IgA) 0.5 U/ml <5.0 U/ml

> Anti-Human Tissue Transglutaminase

> IgA ELISA (TTG IgA) 0.8 U/ml <4.0 U/ml

> Anti Endomysial IgA IFA (EMA IgA) Negative Negative

>

> Total Serum IgA by Nephelometry

> (Total IgA) 98 mg/dl < 3 years : 8-220

mg/dl

> 3-13 years :41-395

mg/dl

> >13 years to adult: 44-441

mg/dl

>

> - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

>

> Thanks for all your help!

>

> Deborah

>

---------------------------------

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