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RE: Keto diet via G-tube.... Help TO SHELLEY!

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,

We get our RCF delivered via home heath care service. Our insurance

allows us $10,000 a year worth of home health care services. It shows up

on the bill as medical supplies just like the various tubes and syringes

we get. I'm sure you've tried this already, but just in case, I thought

I'd mention it.

We are going to get a G Tube for our daughter in two weeks. We've been

feeding her via ng tube for a year now. I hope we are making the right

decision.

Good Luck and God Bless,

Jim

Keto diet via G-tube.... help

My son recieved his mic-key button and started the keto diet in July

of this year. He is now 22 mths old. Our insurance has denied his

RCF formula and I'm blue in the face fighting with them over it. We

also got Medicaid as a secondary ins. in July. They have been

paying for the RCF. We just found out that we are no longer

eligible for Medicaid after 12/31. We can't afford the RCF as we

are already struggling.

My question: Are there other kids who are strictly tube fed that

use anything other than the RCF while on the keto diet? Can baby

food and cream or anything else be combined for feedings? Is this

hard?

Thanks for any suggestions - I really need them.

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a

professional keto team!

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,

I am so surprized that your insurance will not pay for

it since your son has a feeding tube. Our insurance

would only pay for it if our daughter had her feedign

tube. I just had about 10 cases and threw it out last

week. I wish I would have known I would have shipped

it to you. You can also check with WIC, Womens Infant

and Children, services. They will provide you with RCF

with a doctors prescription. If you qualify for

Medicade youll qualify for WIC. They only offer

service through age 5 but it helps. Also are you

involved eith ECI, Early Childhood Intervension. They

are also wonderful and help through age 3. My daughter

is 26 months old. We were on the keto diest from March

2003 thru Jan 2004, but we were loosing too much

weight so we got off. Just some suggestions, hope they

help you some.

Kristi (mom to Wyaema 26 months, keto kid March

2003-Jan 2004)

=====

Kristi Mann

Smile make everyone wonder what your thinking

May God Bless you today, tomorrow and always

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