help needed

[Guest guest]

History:

Well Zaki (18months) has been on the diet since the 25th of October -

Zaki's seizure activity (myoclonics)has actually increased during

this time as well as the severity. He had around 50-70 a day before

starting the diet - we saw 78 a new high in the hospital during the

fast - now he is up over 100 most days and they seem to be more

irritating to him - They are also waking him up during sleep and

keeping him up?? His keytones were 40 building to 80-160 at night -

we lowered the calories by 100 ( he gained 1 pound over the month)and

now his keytones are consistently 80-160 all day.

We are at 4:1 790 calories (we dropped 100 last thursday previous 890)

13.7 g pro. I met with the neuro and the dietician today. The neuro

wants to put him on ativan at night (1mg 1/2-1 tablet) to try to stop

them while he is sleeping. Thoughts? I asked him I thought the diet

is better without the meds and he said that he did not think it would

hurt - he would email freeman. We are on NO MEDS right now! I

insisted on weaning before the diet as they were not working anyhow

and I had read up on it before hand. Zaki is 24.7 lbs 34 inches 50%

weight and about 80% length. My biggies

1. What about the ativan at night?

2. What about the increase in frequency and severity of the seizures?

3. Suggestions on what to try next

Thanks, the rookie

Zaki's mommy

On a positive note - We had just finished a series of ACTH before

initiating the diet (26 days seizure free) and a trial of lamictal

very low dose after that- he did not tolerate it well BUT I have seen

more developmental milestones and fun new things over the last 2

months without and meds than we have seen in the previous 9 months.

His development met a plateau - now he is doing some more

age/developmentally appropriate activities and is so much more

happier not zoned out- today he helped me to turn the pages of a

book:)