Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 CAN I BUY THIS STUFF BY THE FIVE GALLON BUCKET...LOLOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2002 Report Share Posted November 1, 2002 really great L-carnosine Has anyone heard of this or had an experience w/ this protein?? A local NBC affiliate aired this story yesterday!!! http://www.wnbc.com/drdavidmarks/1715238/detail.html Here is an excerpt from the story/article..... " " " and Jane have been taking a synthetic version of a natural protein called l-carnosine. Their pediatric neurologist, Dr. Chez, of Lake Bluff, has recently completed the first study of the substance. It affected language, receptive language, eye contact, communication, all of which are things which children with autism have big gaps with, " Chez said. Over an eight-week period, Chez's study showed that carnosine improved behavior and communication by 16 percent. Social interaction improved by 27 percent and, in just four weeks, parents reported an overall improvement that more than doubled through the length of the study. Lites said that more and more research shows that the frontal lobes and the temporal lobes in the brain control emotion, epileptic activity, cognitive, expressive speech, and abstract thinking. Chez said I-carnozine apparently works in the front part of the brain. So far, he said he's used it on about 1,000 children, with a 90 percent success rate. On some children, the change has been dramatic. " " " " " -- __________________________________________________________ Sign-up for your own FREE Personalized E-mail at Mail.com http://www.mail.com/?sr=signup Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2002 Report Share Posted November 4, 2002 I had heard about carnosine on an apraxia list. I recently ordered it but we haven't started it yet. I tried to find some of the posts about it but so far I haven't. I can at least point you to the apraxia web site and the info on carnosine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2002 Report Share Posted December 6, 2002 Margaret, I started on carnosine, but on a really small dose because she seems to react to much less of things than the " therapeutic dose. " I haven't seen a change yet either, but I'm planning on slowly upping the dose. I'm not sure how it specifically affects speech - here's a quote form the original article - " It affected language, receptive language, eye contact, communication, all of which are things which children with autism have big gaps with, " Chez said. " I'll let you know if I see any change if you'll let me know likewise. , mom to , ds-asd, age 9 >From: mfroof@... >Subject: L-Carnosine/Acidophilus > >Hi, Everyone.......I wanted to let you know that Gareth was on the >L-Carnosine supplement for a month and, for what it's worth, he did not >progress one iota in speech. I think there was another mom going to try >it....any luck on your end? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Has anyone heard of or tried a supplement called L-Carnosine, which is reputed to help symptoms of autistic spectrum disorder? About a month ago, I read a post from someone on another support group who had great success with it. I did a websearch and found some press releases detailing promising research results. Theresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 I sent this message yesterday and apparently it didn't go through. I'm really curious if anyone has had any experience with this: --------- Forwarded message ---------- From: <@...> Date: Mon, 21 Apr 2003 21:04:52 -0400 Subject: Re: ( ) L-carnosine Has anyone heard of or tried a supplement called L-Carnosine, which is reputed to help symptoms of autistic spectrum disorder? About a month ago, I read a post from someone on another support group who had great success with it. I did a websearch and found some press releases detailing promising research results. Theresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Dear Theresa, L-carnitine is a substance that the body produces to break down fats and fatty acids. There are some people that do not produce enough in their bodies and need to take a supplement. This can be easily diagnosed by getting a blood test for carnitine level. Our dd saw a pediatric gastroenterologist for a variety of things and in part of his evaluation, he checked her carnitine level, which was normal. He said that had it not been normal that he would have started her on a supplement, which would not " cure " her AS but may have improved some of the undesirable moods that she has. Hope that this is helpful. Take care. Lydia > Has anyone heard of or tried a supplement called L-Carnosine, which is > reputed to help symptoms of autistic spectrum disorder? About a month > ago, I read a post from someone on another support group who had great > success with it. I did a websearch and found some press releases > detailing promising research results. > > Theresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Hi Lydia: The supplement is L-Carnosine which is different than L-Carnitine. I didn't want anyone reading this to be confused. I ordered some already (L-Carnosine). I'll let everyone know whether I see improvements. Theresa On Tue, 06 May 2003 08:46:38 -0000 " ljcsoghmomaws " <nlme.paraskevas@...> writes: > Dear Theresa, > > L-carnitine is a substance that the body produces to break down fats > > and fatty acids. There are some people that do not produce enough in > > their bodies and need to take a supplement. This can be easily > diagnosed by getting a blood test for carnitine level. Our dd saw a > > pediatric gastroenterologist for a variety of things and in part of > > his evaluation, he checked her carnitine level, which was normal. He > > said that had it not been normal that he would have started her on a > > supplement, which would not " cure " her AS but may have improved some > > of the undesirable moods that she has. Hope that this is helpful. > Take care. > > Lydia > > > > Has anyone heard of or tried a supplement called L-Carnosine, > which is > > reputed to help symptoms of autistic spectrum disorder? About a > month > > ago, I read a post from someone on another support group who had > great > > success with it. I did a websearch and found some press releases > > detailing promising research results. > > > > Theresa > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 > > >Anyone on the list using l-carnosine? >-O > I use Carnosine from www.lef.org, 1 capsule twice a day. Look on their site for a writeup of the benefits. -- el (andreafrankel at sbcglobal dot net) " wake now! Discover that YOU are the song that the morning brings... " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 Hi All, I am using L-Carnosine as a way of reducing some of the factors that cause aging or disease damaging of various celular systems. I hope it works. I am taking 500mg /day of Source Naturals product. It is supposed to reduce glycation, the harmful crosslinking of various tissues in the body which is supposed to cause aging damage. I am taking it on a theoretical basis and have not noticed anything yet. I've been taking it for about a month. Take Care All, Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 YOu can get most things at www.iherb.com good service MAndi in UK > Does anyone know where I can get L-Carnosine? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 > YOu can get most things at www.iherb.com good service > MAndi in UK > > > Does anyone know where I can get L-Carnosine? > > > Thanks.Have you used this product? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 you can get it at www.iherb.com (phone 1-888-792-0028) or www.puritan.com (phone 1-800-645-1030). They are about $10 for 30 capsules 500 mg or $30 for 90 capsules for 500 mg. Vinutha Shreyas's mom On Thu, 18 Dec 2003 21:40:22 -0000 " libertystreetsoftware " <PDD@...> writes: > Does anyone know where I can get L-Carnosine? > > Nikki > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 I get ours from either www.iherb.com or www.doctorstrust.com ( search for just carnosine) -GA L-Carnosine Does anyone know where I can get L-Carnosine? Nikki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 --- Can anyone tell me if they have had any good results with L- Carnosine and speech? In , " Cj " <gstone98@t...> wrote: > I get ours from either > www.iherb.com > or www.doctorstrust.com > ( search for just carnosine) > -GA > L-Carnosine > > > Does anyone know where I can get L-Carnosine? > > Nikki > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 > Does anyone know where I can get L-Carnosine? I purchased mine from my local health food store. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 > --- > Can anyone tell me if they have had any good results with L- > Carnosine and speech? Not with speech, but one of my kids had an improvement in behavior for the time I used it. I stopped it when his behavior remained good even without it. This took about 3-4 months. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 --- Dana, Was there any one intervention that you felt really helped speech?I do not want to leave any stones unturned. Thanks, nikki In , " danasview " <danasview@y...> wrote: > > > --- > > Can anyone tell me if they have had any good results with L- > > Carnosine and speech? > > > Not with speech, but one of my kids had an improvement in behavior for the time I used it. I stopped it when his behavior remained > good even without it. This took about 3-4 months. > > Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 Not Dana, but the best supplement we used was Carnitine. The best intervention was FastForWord. -GA Re: L-Carnosine --- Dana, Was there any one intervention that you felt really helped speech?I do not want to leave any stones unturned. Thanks, nikki In , " danasview " <danasview@y...> wrote: > > > --- > > Can anyone tell me if they have had any good results with L- > > Carnosine and speech? > > > Not with speech, but one of my kids had an improvement in behavior for the time I used it. I stopped it when his behavior remained > good even without it. This took about 3-4 months. > > Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 --- , Can you give me more info on FastforWord and Carnitine? Thanks ! In , " Cj " <gstone98@t...> wrote: > Not Dana, but the best supplement we used was Carnitine. > The best intervention was FastForWord. > -GA > Re: L-Carnosine > > > --- > Dana, > > Was there any one intervention that you felt really helped speech?I > do not want to leave any stones unturned. > > Thanks, > nikki > > > > > In , " danasview " <danasview@y...> > wrote: > > > > > --- > > > Can anyone tell me if they have had any good results with L- > > > Carnosine and speech? > > > > > > Not with speech, but one of my kids had an improvement in behavior > for the time I used it. I stopped it when his behavior remained > > good even without it. This took about 3-4 months. > > > > Dana > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2003 Report Share Posted December 20, 2003 > --- > Dana, > > Was there any one intervention that you felt really helped speech?I > do not want to leave any stones unturned. You can look at my list of supplements I used for my son http://www.danasview.net/chel6380.htm Basically what recovered my son was ALA chelation for food issues and did help with language and a few other things. Before ALA, I gave enzymes and still had to remove luteins, artificials, and a few other things. High dose vitamin A protocol [with one extra] was the " final kick " . Several supplements [see above page] were also helpful. I use an ABA/AVB/DTT approach to education, which works well for my kids. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 > What kind of improvement in behavior? For my #3, carnosine made him more cooperative. Carnitine did not have an effect on either of my kids, but they don't have low muscle tone. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 Hi : My son will be 12 in March- and 108 lbs. He takes 500mg twice a day. -GA (http://autismcoach.com/Carnosine%20Study.htm and I was wondering if anyone had any thoughts on this, particularly dosage if you happen to be using L-Carnosine. As always, thanks so much for your help! (from MA) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 , I have been giving CarnAware to my son for several months now and have seen a lot of improvement in his speech (he had none before, just signs). Each capsule of CarnAware has 200 mg of L-carnosine. I started with 2 capsules a day and after a couple months increased to 3 capsules a day. Dr. Chez, who created CarnAware, said I could increase up to 4 capsules a day as long as there were no side effects. He said the main side effect would be poor sleep. I did stop using it for a few weeks when my son was sleeping very poorly. It seems to have just been a phase for him, as we restarted the CarnAware and haven't had the disturbed sleep again. The website for CarnAware is www.carn-aware.com. Hope that helps a little. Robin (also from MA) L-Carnosine > Hi, everyone. There were some posts on L-carnosine recently but I can't > find them in the archives. Given the improvements seen in two studies > (http://autismcoach.com/Carnosine%20Study.htm and > http://www.enzymestuff.com/rtcarnosine.htm) I just bought a bottle from > Kirkman's to try with my son. The doctor in the first study shared the > dosage he used. The other study also cited improvements in all kids using > the supplement and talked about something called CarnAware but didn't > discuss dosage. > > I was wondering if anyone had any thoughts on this, particularly dosage if > you happen to be using L-Carnosine. > > As always, thanks so much for your help! > (from MA) > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2004 Report Share Posted January 20, 2004 , Sorry, I forgot to put in my previous post that my son is 3 and weighs about 27 or 28 pounds. Robin > , > > I have been giving CarnAware to my son for several months now and have seen > a lot of improvement in his speech (he had none before, just signs). Each > capsule of CarnAware has 200 mg of L-carnosine. I started with 2 capsules a > day and after a couple months increased to 3 capsules a day. Dr. Chez, who > created CarnAware, said I could increase up to 4 capsules a day as long as > there were no side effects. He said the main side effect would be poor > sleep. I did stop using it for a few weeks when my son was sleeping very > poorly. It seems to have just been a phase for him, as we restarted the > CarnAware and haven't had the disturbed sleep again. The website for > CarnAware is www.carn-aware.com. Hope that helps a little. > > Robin (also from MA) > > L-Carnosine > > > > Hi, everyone. There were some posts on L-carnosine recently but I can't > > find them in the archives. Given the improvements seen in two studies > > (http://autismcoach.com/Carnosine%20Study.htm and > > http://www.enzymestuff.com/rtcarnosine.htm) I just bought a bottle from > > Kirkman's to try with my son. The doctor in the first study shared the > > dosage he used. The other study also cited improvements in all kids using > > the supplement and talked about something called CarnAware but didn't > > discuss dosage. > > > > I was wondering if anyone had any thoughts on this, particularly dosage if > > you happen to be using L-Carnosine. > > > > As always, thanks so much for your help! > > (from MA) > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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