L-Carnosine

[Guest guest]

CAN I BUY THIS STUFF BY THE FIVE GALLON BUCKET...LOLOL

[Guest guest]

really great

L-carnosine

Has anyone heard of this or had an experience w/ this protein??

A local NBC affiliate aired this story yesterday!!!

http://www.wnbc.com/drdavidmarks/1715238/detail.html

Here is an excerpt from the story/article.....

" " " and Jane have been taking a synthetic version of a

natural protein called l-carnosine. Their pediatric neurologist, Dr.

Chez, of Lake Bluff, has recently completed the first study

of the substance.

It affected language, receptive language, eye contact, communication,

all of which are things which children with autism have big gaps

with, " Chez said.

Over an eight-week period, Chez's study showed that carnosine

improved behavior and communication by 16 percent. Social interaction

improved by 27 percent and, in just four weeks, parents reported an

overall improvement that more than doubled through the length of the

study.

Lites said that more and more research shows that the frontal lobes

and the temporal lobes in the brain control emotion, epileptic

activity, cognitive, expressive speech, and abstract thinking.

Chez said I-carnozine apparently works in the front part of the

brain. So far, he said he's used it on about 1,000 children, with a

90 percent success rate.

On some children, the change has been dramatic. " " " " "

--

__________________________________________________________

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[Guest guest]

I had heard about carnosine on an apraxia list. I recently ordered it but we

haven't started it yet. I tried to find some of the posts about it but so far I

haven't. I can at least point you to the apraxia web site and the info on

carnosine.

[Guest guest]

Margaret,

I started on carnosine, but on a really small dose because she seems to

react to much less of things than the " therapeutic dose. " I haven't seen a

change yet either, but I'm planning on slowly upping the dose. I'm not sure how

it specifically affects speech - here's a quote form the original article - " It

affected language, receptive language, eye contact, communication, all of which

are things which children with autism have big gaps

with, " Chez said. " I'll let you know if I see any change if you'll let me know

likewise.

, mom to , ds-asd, age 9

>From: mfroof@...

>Subject: L-Carnosine/Acidophilus

>

>Hi, Everyone.......I wanted to let you know that Gareth was on the

>L-Carnosine supplement for a month and, for what it's worth, he did not

>progress one iota in speech. I think there was another mom going to try

>it....any luck on your end?

[Guest guest]

Has anyone heard of or tried a supplement called L-Carnosine, which is

reputed to help symptoms of autistic spectrum disorder? About a month

ago, I read a post from someone on another support group who had great

success with it. I did a websearch and found some press releases

detailing promising research results.

Theresa

[Guest guest]

I sent this message yesterday and apparently it didn't go through. I'm

really curious if anyone has had any experience with this:

--------- Forwarded message ----------

From: <@...>

Date: Mon, 21 Apr 2003 21:04:52 -0400

Subject: Re: ( ) L-carnosine

Has anyone heard of or tried a supplement called L-Carnosine, which is

reputed to help symptoms of autistic spectrum disorder? About a month

ago, I read a post from someone on another support group who had great

success with it. I did a websearch and found some press releases

detailing promising research results.

Theresa

[Guest guest]

Dear Theresa,

L-carnitine is a substance that the body produces to break down fats

and fatty acids. There are some people that do not produce enough in

their bodies and need to take a supplement. This can be easily

diagnosed by getting a blood test for carnitine level. Our dd saw a

pediatric gastroenterologist for a variety of things and in part of

his evaluation, he checked her carnitine level, which was normal. He

said that had it not been normal that he would have started her on a

supplement, which would not " cure " her AS but may have improved some

of the undesirable moods that she has. Hope that this is helpful.

Take care.

Lydia

> Has anyone heard of or tried a supplement called L-Carnosine,

which is

> reputed to help symptoms of autistic spectrum disorder? About a

month

> ago, I read a post from someone on another support group who had

great

> success with it. I did a websearch and found some press releases

> detailing promising research results.

>

> Theresa

[Guest guest]

Hi Lydia:

The supplement is L-Carnosine which is different than L-Carnitine. I

didn't want anyone reading this to be confused. I ordered some already

(L-Carnosine). I'll let everyone know whether I see improvements.

Theresa

On Tue, 06 May 2003 08:46:38 -0000 " ljcsoghmomaws "

<nlme.paraskevas@...> writes:

> Dear Theresa,

>

> L-carnitine is a substance that the body produces to break down fats

>

> and fatty acids. There are some people that do not produce enough in

>

> their bodies and need to take a supplement. This can be easily

> diagnosed by getting a blood test for carnitine level. Our dd saw a

>

> pediatric gastroenterologist for a variety of things and in part of

>

> his evaluation, he checked her carnitine level, which was normal. He

>

> said that had it not been normal that he would have started her on a

>

> supplement, which would not " cure " her AS but may have improved some

>

> of the undesirable moods that she has. Hope that this is helpful.

> Take care.

>

> Lydia

>

>

> > Has anyone heard of or tried a supplement called L-Carnosine,

> which is

> > reputed to help symptoms of autistic spectrum disorder? About a

> month

> > ago, I read a post from someone on another support group who had

> great

> > success with it. I did a websearch and found some press releases

> > detailing promising research results.

> >

> > Theresa

>

>

>

>

[Guest guest]

>

>

>Anyone on the list using l-carnosine?

>-O

>

I use Carnosine from www.lef.org, 1 capsule twice a day. Look on their

site for a writeup of the benefits.

--

el (andreafrankel at sbcglobal dot net)

" wake now! Discover that YOU are the song that the morning brings... "

[Guest guest]

Hi All,

I am using L-Carnosine as a way of reducing some of the

factors

that cause aging or disease damaging of various celular systems. I hope

it

works. I am taking 500mg /day of Source Naturals product. It is supposed

to reduce glycation, the harmful crosslinking of various tissues in the

body

which is supposed to cause aging damage. I am taking it on a theoretical

basis and have not noticed anything yet. I've been taking it for about

a

month.

Take Care All,

Mike

[Guest guest]

YOu can get most things at www.iherb.com good service

MAndi in UK

> Does anyone know where I can get L-Carnosine?

>

[Guest guest]

> YOu can get most things at www.iherb.com good service

> MAndi in UK

>

> > Does anyone know where I can get L-Carnosine?

> >

> Thanks.Have you used this product?

>

>

>

[Guest guest]

you can get it at www.iherb.com (phone 1-888-792-0028) or www.puritan.com

(phone 1-800-645-1030). They are about $10 for 30 capsules 500 mg or $30

for 90 capsules for 500 mg.

Vinutha

Shreyas's mom

On Thu, 18 Dec 2003 21:40:22 -0000 " libertystreetsoftware "

<PDD@...> writes:

> Does anyone know where I can get L-Carnosine?

>

> Nikki

>

>

>

>

>

[Guest guest]

I get ours from either

www.iherb.com

or www.doctorstrust.com

( search for just carnosine)

-GA

L-Carnosine

Does anyone know where I can get L-Carnosine?

Nikki

[Guest guest]

---

Can anyone tell me if they have had any good results with L-

Carnosine and speech?

In , " Cj " <gstone98@t...> wrote:

> I get ours from either

> www.iherb.com

> or www.doctorstrust.com

> ( search for just carnosine)

> -GA

> L-Carnosine

>

>

> Does anyone know where I can get L-Carnosine?

>

> Nikki

>

>

>

>

>

>

[Guest guest]

> Does anyone know where I can get L-Carnosine?

I purchased mine from my local health food store.

Dana

[Guest guest]

> ---

> Can anyone tell me if they have had any good results with L-

> Carnosine and speech?

Not with speech, but one of my kids had an improvement in behavior for the time

I used it. I stopped it when his behavior remained

good even without it. This took about 3-4 months.

Dana

[Guest guest]

---

Dana,

Was there any one intervention that you felt really helped speech?I

do not want to leave any stones unturned.

Thanks,

nikki

In , " danasview " <danasview@y...>

wrote:

>

> > ---

> > Can anyone tell me if they have had any good results with L-

> > Carnosine and speech?

>

>

> Not with speech, but one of my kids had an improvement in behavior

for the time I used it. I stopped it when his behavior remained

> good even without it. This took about 3-4 months.

>

> Dana

[Guest guest]

Not Dana, but the best supplement we used was Carnitine.

The best intervention was FastForWord.

-GA

Re: L-Carnosine

---

Dana,

Was there any one intervention that you felt really helped speech?I

do not want to leave any stones unturned.

Thanks,

nikki

In , " danasview " <danasview@y...>

wrote:

>

> > ---

> > Can anyone tell me if they have had any good results with L-

> > Carnosine and speech?

>

>

> Not with speech, but one of my kids had an improvement in behavior

for the time I used it. I stopped it when his behavior remained

> good even without it. This took about 3-4 months.

>

> Dana

[Guest guest]

---

,

Can you give me more info on FastforWord and Carnitine?

Thanks !

In , " Cj " <gstone98@t...> wrote:

> Not Dana, but the best supplement we used was Carnitine.

> The best intervention was FastForWord.

> -GA

> Re: L-Carnosine

>

>

> ---

> Dana,

>

> Was there any one intervention that you felt really helped

speech?I

> do not want to leave any stones unturned.

>

> Thanks,

> nikki

>

>

>

>

> In , " danasview "

<danasview@y...>

> wrote:

> >

> > > ---

> > > Can anyone tell me if they have had any good results with L-

> > > Carnosine and speech?

> >

> >

> > Not with speech, but one of my kids had an improvement in

behavior

> for the time I used it. I stopped it when his behavior remained

> > good even without it. This took about 3-4 months.

> >

> > Dana

>

>

>

>

>

>

[Guest guest]

> ---

> Dana,

>

> Was there any one intervention that you felt really helped speech?I

> do not want to leave any stones unturned.

You can look at my list of supplements I used for my son

http://www.danasview.net/chel6380.htm

Basically what recovered my son was ALA chelation for food issues and did help

with language and a few other things. Before ALA, I

gave enzymes and still had to remove luteins, artificials, and a few other

things.

High dose vitamin A protocol [with one extra] was the " final kick " . Several

supplements [see above page] were also helpful.

I use an ABA/AVB/DTT approach to education, which works well for my kids.

Dana

[Guest guest]

> What kind of improvement in behavior?

For my #3, carnosine made him more cooperative.

Carnitine did not have an effect on either of my kids, but they don't have low

muscle tone.

Dana

[Guest guest]

Hi : My son will be 12 in March- and 108 lbs.

He takes 500mg twice a day.

-GA

(http://autismcoach.com/Carnosine%20Study.htm and

I was wondering if anyone had any thoughts on this, particularly dosage if

you happen to be using L-Carnosine.

As always, thanks so much for your help!

(from MA)

[Guest guest]

,

I have been giving CarnAware to my son for several months now and have seen

a lot of improvement in his speech (he had none before, just signs). Each

capsule of CarnAware has 200 mg of L-carnosine. I started with 2 capsules a

day and after a couple months increased to 3 capsules a day. Dr. Chez, who

created CarnAware, said I could increase up to 4 capsules a day as long as

there were no side effects. He said the main side effect would be poor

sleep. I did stop using it for a few weeks when my son was sleeping very

poorly. It seems to have just been a phase for him, as we restarted the

CarnAware and haven't had the disturbed sleep again. The website for

CarnAware is www.carn-aware.com. Hope that helps a little.

Robin (also from MA)

L-Carnosine

> Hi, everyone. There were some posts on L-carnosine recently but I can't

> find them in the archives. Given the improvements seen in two studies

> (http://autismcoach.com/Carnosine%20Study.htm and

> http://www.enzymestuff.com/rtcarnosine.htm) I just bought a bottle from

> Kirkman's to try with my son. The doctor in the first study shared the

> dosage he used. The other study also cited improvements in all kids using

> the supplement and talked about something called CarnAware but didn't

> discuss dosage.

>

> I was wondering if anyone had any thoughts on this, particularly dosage if

> you happen to be using L-Carnosine.

>

> As always, thanks so much for your help!

> (from MA)

>

>

>

>

>

>

>

[Guest guest]

,

Sorry, I forgot to put in my previous post that my son is 3 and weighs about

27 or 28 pounds.

Robin

> ,

>

> I have been giving CarnAware to my son for several months now and have

seen

> a lot of improvement in his speech (he had none before, just signs). Each

> capsule of CarnAware has 200 mg of L-carnosine. I started with 2 capsules

a

> day and after a couple months increased to 3 capsules a day. Dr. Chez,

who

> created CarnAware, said I could increase up to 4 capsules a day as long as

> there were no side effects. He said the main side effect would be poor

> sleep. I did stop using it for a few weeks when my son was sleeping very

> poorly. It seems to have just been a phase for him, as we restarted the

> CarnAware and haven't had the disturbed sleep again. The website for

> CarnAware is www.carn-aware.com. Hope that helps a little.

>

> Robin (also from MA)

>

> L-Carnosine

>

>

> > Hi, everyone. There were some posts on L-carnosine recently but I can't

> > find them in the archives. Given the improvements seen in two studies

> > (http://autismcoach.com/Carnosine%20Study.htm and

> > http://www.enzymestuff.com/rtcarnosine.htm) I just bought a bottle from

> > Kirkman's to try with my son. The doctor in the first study shared the

> > dosage he used. The other study also cited improvements in all kids

using

> > the supplement and talked about something called CarnAware but didn't

> > discuss dosage.

> >

> > I was wondering if anyone had any thoughts on this, particularly dosage

if

> > you happen to be using L-Carnosine.

> >

> > As always, thanks so much for your help!

> > (from MA)

> >

> >

> >

> >

> >

> >

> >