Re: meal planner questions/calories - to

November 28, 2004

Dear

After a couple of months on lower ratios (down to 2:1) 's mental state got

squirrelly, she was always hungry and obsessed with food, and finally had a huge

breakout of seizuring this past week. She doesn't do great with high ketones,

but these lower ones are just as bad, I think, on her. If you think

could tolerate a higher ratio, for his sake, maybe you should try one. I have

at 2.5:1 and am considering 3:1, knowing it is easier to bring the ketones

down than to get them up. Apple slices / apple juice will get them down without

a huge calorie swing for the day.

Just an idea, as you are getting started, and it is so much easier if you start

right than to try to right everything later.

.

Bill Barber torontobarber@...> wrote:

,

You will have to spend some time on tuning the diet; calories and ratio.

The calories seem high and the ratio low.

All the best,

Bill

lloydandleslie@... wrote:

> For those of you using Stanford Mealplanner, I was wondering, when you input

> data in the food values section, do you use the number 100 in the per

> section then follow your food label for the protein, fat and carbs. ex.

Goldfish

> crackers I put in 100 in per then 2 prot, 6 fat and 19 carbs. This is the

way

> I have always done it and I wonder if I was doing it wrong?

>

> started back on the keto last Sat at home. He is 47.5 pounds

> and 35 inches tall, seven years old. His calories are 1290 and protein is 26

> g. He is on the 2:1 ratio because that is where he left off at the end of

the

> diet with 98% control. He only had breaksthorughs with illness or sneaking

> food in mass quantities. He is still having the morning seizures every day.

> He will cluster with 4-10 head drops in the am. He gets 3 meals and 3

> snacks. His meals are 333 calories and he gets 6.67 g protein/ 30.3 g fat

and 8.5

> g carb. The rest is divided into snacks. We are not having as good as

> control as before and I am wondering if any of you see any red flags in this

> calculation or the mealplanner. He is ambulatory with low tone. I would not

say

> highly active physically but active. It takes him more effort to be active.

>

> Any thoughts?

> Thanks

>

November 29, 2004

,

That is something we are considering. I must tell you that we realized

(thanks to this list) that we were doing the mealplanner wrong. Way wrong. I

feel like such a failure because the last year was on the keto diet

on the 2:1 ratio, we were using the mealplanner wrong. Which meant that he

was getting inconsistent ratios and calories. It somewhat explains the

random seizure control he was having. I feel so foolish and stupid.

Now that we have things figured out with the mealplanner, we are going to

give it a try on this ratio and then move up if needed. He has had 2 sz free

days so we'll just have to see. gets highly ketotic and acidic.

He was on the 4:1 ratio twice and ended up dehydrated and in the ER. It was

our neuros decision to lower the ratio and it worked. What is confusing is

how did he have seizure control for almost 2 years with the inconsistencies in

his meals??? Big question.

Another issue that we have is that is low average in IQ so he

knows his letters numbers etc and is verbal but his motor skills and

social/emotional skills are more like a 3 year old and will probably stay that

way.

This makes for a very strong willed, frustrated and stubborn child that we have

to be very careful to get him on this diet at all.

With all of those things to consider, we are very cautiously going up on

ratio. His seizures have reduced since we started the diet and now that the

meal planner is correct we're going to give it some time. I have to say that

he

is very moody and attention is very poor on this ratio so far. Time will

tell. We are meeting with 2 dieticians locally this THursday to consider for

the diet.

I am so sorry to hear about . This disease can be so hard on not only

the kids but as the parents. It is so difficult to do this diet and then if

they are hungry or grouchy it just makes things worse. I hope you can find

the answers you are looking for. Where are you from?

Thanks for your input and I'll keep you posted on the fine tuning.

HUGS to you

November 29, 2004

Dear

Two days seizure free is nothing to sniff at! What a great start, and good to

know how to rightly use the planner. , too, had an incident with acidosis,

so that is why I so loved the lower ratios for her, but it simply wasn't doing

what it needed to do, and when the seizures began I felt like we are back to

" square one. " How discouraging.

I am reading the book, AGAIN. It is helping me, and is very encouraging

reading. is pulling out of the mess, but she will be down for a week and

is wetting herself and doing all sorts of behaviors that say she is not feeling

good. Hate those seizures.

We are now doing 3:1 and I am holding fast for a couple of weeks to see how it

goes. In the book it clearly says that the ketones must be between 80 & 160 to

do the job. So, we will go for it! The lower ones finally caught up with her,

so we have skipped right back up and are starting over, so to speak.

We are from northern Michigan... the land of snow, snow and more snow.

Actually, lower northern Michigan, which isn't nearly the snow of the Upper

Peninsula! But, it is already here!

The moods came with the lower ratios for . And they worsened until the

ratio started up... now, except she is feeling rough, she is seeming a bit

sunnier.