Re: starting tommorrow at home HAVE QUESTIONS

[Guest guest]

I wouldn't, can't see the need, and since he has high ketones already,

it actually might be a little dangerous to fast

lloydandleslie@... wrote:

> Hey friends,

>

> I have a few questions. We got diet formula from his

> dietician

> in Chicago which is 4 hours away and we have a neuro here who has

> done the

> diet and given us the ok but we have little support. We are starting

> at home

> tommorrow and I'm wondering if I should fast him at all. Since we're

> starting

> at home and he's already on the Atkins and his ketones are large,

> what do

> you think?

>

> Today, he has had head drop seizures and I just gave him diastat. His

>

> clusters this am were in the number of 60+. I bet he's had almost

> 100. So hard

> to watch my little guy go through this again. Breaks my heart and

> I'm just so

> scared of the what if's-he gets sick and has to go to the hospital,

> he gets

> worse or his seizures don't go away. Then what? Short of the VNS

> and Corpus

> Collosum, we've done everything and the only thing that worked was

> the diet.

>

> Anyways, what do you think about fasting??

>

> Thanks a bunch and I'm sure I'll be bugging you with more questions

>

>

>

>

>

[Guest guest]

Best of luck to Christoper on the diet. I can't see the point of

fasting, since he's in large ketosis already. I think one center, my

memory says Mayo Clinic, is getting away from the fasting to induce

ketosis, and doing more what you did with Christoper. Actually, with

Lily, we sort of started the diet that way. She did Atkins for a day

or so, and was in large ketosis right away. They started on the keto

shake. No point in keeping food from them if their bodies are

cooperating.

Lily has drop seizures as well, and Topamax and Klonopin didn't work

for her. The diet has worked much better than the drugs, but not

perfectly. It seems like control is getting better, however, so

fingers are crossed.

Best of luck,

Caitlin

> Hey friends,

>

> I have a few questions. We got diet formula from his

dietician

> in Chicago which is 4 hours away and we have a neuro here who has

done the

> diet and given us the ok but we have little support. We are

starting at home

> tommorrow and I'm wondering if I should fast him at all. Since

we're starting

> at home and he's already on the Atkins and his ketones are large,

what do

> you think?

>

> Today, he has had head drop seizures and I just gave him diastat.

His

> clusters this am were in the number of 60+. I bet he's had almost

100. So hard

> to watch my little guy go through this again. Breaks my heart and

I'm just so

> scared of the what if's-he gets sick and has to go to the hospital,

he gets

> worse or his seizures don't go away. Then what? Short of the VNS

and Corpus

> Collosum, we've done everything and the only thing that worked was

the diet.

>

> Anyways, what do you think about fasting??

>

> Thanks a bunch and I'm sure I'll be bugging you with more questions

>

>

>

>

>

[Guest guest]

You are right and we did not fast this am. The transition went very

smoothly and he ate every drop. I'm so scared. I think more this time than

the

last time just because of what I know the alternative is.

I'll keep you posted. How did the ratio increase go? and the behaviors?

You know something I remember from when went through that the last

time, which is why we took him off the diet because he was soooo crazy and

obsessed with food. We had to lower the calories. Too many calories can

produce excess hunger. you probably know this but I thought I 'd tell you our

experience.

Hang in there and thanks a bunch for your support

[Guest guest]

Hi! Good luck and hope all goes smoothly for you as you re-start the diet! It

seems to me the purpose of fasting is to get the kids into ketosis. If his

ketones are already large (are they 80 or 160 on your sticks?) you should only

have to try to maintain it with the diet. Anyway, this is the way I understood

the initiation process! We're fairly new to all of this, so I'm sure someone

with more expertise will come along!

Leigh

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