Guest guest Posted June 29, 2006 Report Share Posted June 29, 2006 My husband has stuttering issues whenever he feels pressured. He does not realize he is stuttering until I bring it to his attention. He has an internal coping skill that he uses to relax his train of thought plus will begin taking Omega fish oils to regain focusing. He also plays mind games to strengthen his cognitive area and processing speed. He tends to go to the site put out by Mensa. http://mindgames.us.mensa.org/participant/index.php Click on 2006 game directory for some ideas. all the best, Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2009 Report Share Posted March 25, 2009 If you are currently taking two Pro Efa and One pro Epa would the next step be three Pro efa and one pro epa? Jen In a message dated 3/24/2009 10:41:45 P.M. Eastern Daylight Time, kiddietalk@... writes: Hi ! Just to clarify; you are using 2 1/2 capsules of ProEFA a day (if you used the regular) Most of us found that when you raise the dosage from the 2 ProEFA you are best off going to 2 ProEFA to 1 ProEPA. You'll also find it much easier, and half the cost, to switch to the regular ProEFA vs the ProEFA Jr. as it will be the same amount of capsules for around the same cost. Actually you are using the commercial line of Nordic 60 capsules (the Pro line of ProEFA has 90 capsules per bottle) I do like the Jr. to teach how to swallow capsules. OK about stuttering..O For my son Tanner who used to stutter as well the way we know if a formula isn't right is he stutters- other than that he no longer does. But can fish oil 'cause' the stuttering? Hard to say...I mean my son didn't say anything and couldn't put the sound " ch " together with the sound " ooo " previous to fish oil. A normal developmental stage is dysfluency so perhaps fish oil gets our children to a stage that they wouldn't be at if they were still essentially nonverbal Below is a huge amount of archives on this topic. No fish oil has never been linked to stuttering in our group or anywhere...but as I started off the message -you probably are not using the best formula that has worked for most: (a mix of archives from over the years on this topic) Tanner at 5: Dsyfluency/Speech Disorder - Re: Pro EFA and Vitamin supplement question Hi Kim, With , you didn't mention if there were also signs of apraxia. There would be other signs if she did have a neurologically based disorder like apraxia-for example, many children with apraxia also have low tone (hypotonia-where they look cherub like) or sensory integration, etc. This is why we recommend comprehensive evaluations with speech as well as neurodevelopmental doctors who are both respected and knowledgeable about apraxia and other disorders. We've seen and heard positive things in many areas for children with the ProEFA for apraxia, late talking, behavior, focus, motor planning issues, skin... but I unfortunately know about the dysfluency/apraxia issue too for personal reasons and can tell you about that and ProEFA. Tanner, who is now 4 years and 9 months has the same dysfluency issues you describe that " come and go " as . The " come and go " dysfluency is almost more of an issue than the apraxia at this point. Tanner's been supplemented with fish oil since before he was three, and the dysfluency started about age 4 when Tanner started to try to talk more. Tanner is talking all the time now, where he would just say a few things before spontaneously, so perhaps it's just more obvious and there is more he's trying to tell us. The " stuttering " The " stuttering " <WBR>stage is partly developmental, a motor planning, but children, like my son Tanner who have apraxia tend to go through this " stage " later than normal, and many apraxic children that do go through it tend to get stuck in it. I know there has been some interesting research into dysfluency with brain scans and all, but the dysfluency from apraxia is not the same from what I'm told. If your child is not apraxic, and is dyfluent, there is a wealth of information online for you to research. Unfortunately there just is not enough research into apraxia to know all the twists and turns, and how best to handle them. The good news is that if your child is in the dysfluency stage and he or she is apraxic, then he or she is probably really starting to communicate thoughts and ideas, which is wonderful. As far as the blocked ears from ear infections, during language development depending how long the sounds were blocked could have affected her ability to talk early. You can even find information on this from one of the schools for the hearing impaired in your area. Where I live in NJ, they are some of the best schools for apraxic children since they are academic, and their speech therapies that work for hearing impaired in the class seem to work for apraxic children too. They have a high success rate. Our speaker for the homebase CHERAB meeting, May 7 at the Children's Specialized Hospital in Mountainside, NJ is Dr. Joan Sheppard from Columbia, who is also going to speak at the next NJSHA conference on teaching hearing apraxic children in schools for the hearing impaired. You can explore for all the details in the archives for this grouplist at _http://groups.http://grohttp://groups.<Whttp://gro_ ( ,) or for next month's homebase CHERAB meeting information at _http://www.cherab.htt_'>http://www.cherab.htt_ (http://www.cherab.org/) We have a new website being built for us right now (by professionals- not me...yeah!!!not me...yeah!!!<WBR>) The new site About the ProEFA by the way, you all may want to pick up this weeks Newsweek since I was told there is an article on Omega 3s and 6s (like the ProEFA you can find at _http://www.speech41http:/_ (http://www.speech411.com/) ) written by one of CHERAB's board members Stoll MD from Harvard who just wrote The Omega 3 Connection. ~~~~~~~~~~~~~ WhenTanner was 7: Re: motor apraxia??? (and stuttering) Hi Noelle, We may know each other then if you used to be on the other grouplist for apraxia and our kids are the same age. I recall someone with a son around Tanner's age also named Tanner (and also nicknamed Tan-man too) who lived in or around Massachusetts that I remember I was maybe going to meet up with when I was working with a bandage company in Massachusetts around three years ago. Maybe not -it was awhile ago -I'd have to check my emails from two computers ago! Anyway -yes our Tanner's have much in common in that they are around the same age (Tanner is turning seven tomorrow) he too is one of the best in his class in reading -and has had girlfriends since preschool (First -and now and Tanner are inseparable) I know how you feel about all the testing -right before we moved to Florida -Tanner, with his low tone, DSI, and apraxia who has been well off the charts tall for his age since three was tested by his geneticist for everything -he even had a wrist X ray -and Tanner tested negative for any syndrome...and I guess he always will until they figure out the test for apraxia. As you found out just because your son Tanner who has a history of apraxia does an activity once and not again would not mean that Tanner has CAPD since one of the definitions of apraxia is being able to do or say something - but not always being able to do or say the same thing on command. Even if Tanner did have CAPD -it would still be co-existing with the apraxia. On top of all that -some children with apraxia who lack confidence in an activity develop avoidance techniques. Since the neurologist confirmed that the apraxia in Tanner is global then you do know what to do! Same things that helped Tanner with his verbal apraxia -multisensory approaches. Apraxia does not discriminate and stay in just the mouth -it can affect anywhere in the body -and it's more typical than not that it is present in the body as well -however most of us don't find this out until our children age because at young ages the children are able to keep up if it's mild -but as they age more and more is expected of them so if global apraxia is there and not addressed - they break down because they can only push so far. Tanner went through occupational and physical therapy for mild motor planning issues in his body for the past few years and has learned strategies to overcome much of it. I have personally found in addition to traditional (mainly ST and OT but some PT too) and alternative therapies like O3/O6 EFAs, cranial sacral therapy, therapeutic listening therapy, and other multisensory therapies -his motor planning and other skills greatly improved by putting Tanner into " normal " kid activities when he turned around five where he really started pushing himself hard to keep up. (when he was younger he regressed around other children) Right now through the extended school year for the summer Tanner is receiving 3 1/2 sessions of ST and one of OT -but the great news is that we are watching him to possibly drop OT for him for next year since he has met all of his goals and is up to speed. As I posted the other day -Tanner's soccer team came in second place in the league -and it was hard for him to run across that field and compete against " normal " kids like he did -but he did it and he enjoys it. The bad news... My Tanner's problem today at almost seven is with stuttering on and off. Today Tanner's doing really well in speech -but as I posted below -now that he is learning to read and his vocabulary is expanding and he's pushing himself to speak in longer more complex sentences -he ranges from having almost no stuttering to hesitation on many words. For this reason -I just took Tanner to see stuttering expert Dr. Dale from Florida Atlantic University who diagnosed Tanner as having 20% fluency issues. Dr. believes that Tanner's stuttering is not a true stuttering -but a developmental one. Apraxic stuttering..developmental one. Apraxic s thing -so I guess down the road we will hear more about this. Dr. confirmed that once apraxic children learn to talk -they are hearing more and more about children with apraxia and stuttering together. What was of great interest to those of you in this group who also report hearing stuttering coming and going in your apraxic child is that Dr. said that " we have done an injustice as you say to apraxia and have not studied it enough, so we really don't know how long is " normal " for the dysfluency stage in an apraxic child -we really don't. We do know that many apraxic children appear to take longer to go through stages. " Dr. advised not to proceed with traditional stuttering therapy for now -outside of continuing with slow and easy speech practices. So here is the good news for all of us in this group who have children going through this -Dr. said " I don't believe this is something that Tanner will be dealing with for life at this point " ~~~~~~~~~~~~~ Tanner at 12 Stuttering is either a stage apraxic children go through or it's a sign of regression that you are using the wrong formula or dosage or both. For my son the stuttering on Speak was his first sign of regression. Unlike with fish oils however for my son Tanner the regression on the fat soluble vitamin didn't just go away. My advice is don't mess around with fat soluble vitamins and look at every possible reason for the stutter which means don't assume it's the fish oils. What dosage and type of vitamin E and why not try stopping them? Vitamin E is a newer aspect we explored as a group but in the end we learned that it appears it's not benign as fish oils have been. ~~~~~~~~~~~~~~~~~~~~~ As Earl once said about his stuttering..As Earl once said about his stuttering..<WBR>. " Once a stutterer, always a stutterer " Yet Read this list and be amazed who is on it _http://www.stutterihttp://www.http://www.sthttp://ww_ (http://www.stutteringhelp.org/Default.aspx?tabid=128) Stuttering some may not know, like apraxia, is a motor planning impairment of speech. Re: Stuttering Hi Amy! My son Tanner never stutters at all anymore -he's 9 now. Well there was that one day recently when we went to Orlando for my boys and a friend of theirs when they were supposed to just be a film my friend was directing as " background kids " and last minute she had two bit roles and there was that on the spot audition that the group of " background kids " read for...Tanner had no head's up to this. Was in front of everyone. He read it OK -but didn't act it like the other kids -and read it slow and yes, he stuttered just a bit. Even then, however, he really didn't stutter. It's over -the developmental stage of apraxia where they can go to stuttering is over (!) And yes -this is a stage you probably won't learn about anywhere else because it hasn't been studied enough yet. But years ago I was also first to talk about neuroMDs, schools for the hearing impaired, EFAs, even when others laughed. But mark my words -all will know this too one day. There is more than one stage of apraxia. (see the " nonverbal " stage below for that topic) sigh Well anyway: it's not stuttering in the classic sense -it is stuttering in the normal developmental stage sense and it can just happen later and last a bit longer and it does drive you and your child to the heights of frustration. I mean how cruel, they finally can talk more, and now they stutter! Since this has come up lots before -here's a recent archive -way more in the archives!: From: sherry silvern <_srsilvern@..._ (mailto:srsilvern@...) > Date: Mon Oct 17, 2005 2:00 pm Subject: Re: [childrensapraxianeSubject: Re: [childrensapraxian WOW! Thanks - that was incredibly helpful! Josh's SLP still has not heard the " stutter " but said she will keep an ear out for it and try to recreate it - it only happens on the vowel sounds, 'o' in particular - pretty unusual from what I understand. She said it could be a breath support issue, since it is on the vowels, or he's trying to say things too quickly. When I do hear it, I stroke his arm and get him to slow down, then he can get the words out without a problem. For a kid who loves oatmeal and ovaltine, getting stuck on the 'o' is pretty rough! Thanks again, Sherry kiddietalk <_kiddietalk@..._ (mailto:kiddietalk@...) > wrote: Hi Sherry! I have advice. Once again a topic I wish I wasn't personally an expert on! My advice today -don't worry about stuttering and apraxia. It's a really hard stage to go through, believe me I know, but there is a light at the end...and there is an end! It took Tanner years to pass through his developmental stage of stuttering which started at 4 and lasted about 3-4 years -but it's over now. (listen to Tanner with developmental stuttering at 4 years 9 months here _http://www.debtsmarhttp://www.http://www._ (http://www.debtsmart.com/talk/tanner.html) ) Some days or times his stuttering would be worse then others. Some days it would be not so bad. It would completely go away the day after we went to Universal or Disney and went on Gforce rides for example as I posted here. But once again it's gone now -rides or no rides. Tanner who is now nine, was never diagnosed as a " stutterer " by any SLP, or SLP PhD that has seen him. And that includes two PhDs who specialized in stuttering, one being Dr. Dale . Both considered Tanner's Stuttering to be developmental, and both of them as well as the rest did not recommend stuttering therapy for apraxia. All agreed the best approach for this " stage " is " slow and easy speech " and to continue therapy for the apraxia. Tanner today at 9 speaks clearly today without stuttering. His dysfluency stage lasted way too long in my opinion, but it's over now and he just keeps improving. Like learning to speak however - it's all at a way slower pace. Even though Tanner's communication abilities at this point are still developmentally delayed, he is diagnosed to be comparable to that of a 5 or 6 year old child in regards to his communication skills, he is now at the stage where he is able to speak in full grammatically correct sentences. With shorter utterances he is indistinguishable from his peers. He clearly breaks down in trying to verbally express his views academically using the more sophisticated language necessary for his curriculum in science, history, language arts, etc. which is where this years problem has arisen since some teachers are shockingly negatively judging Tanner's ability on his inability to communicate verbally (even though he " tests well " ahhhh) None of Tanner's communication delays however affect his ability to " communicate " with adults or his peers. He is very popular at school with everyone, even children that are developmentally advanced or even years older. Tanner hangs out with children that are his age and older. His " one " best friend we have a play date with this week is . was just tested as genius level, working well above his grade level in all subjects, and at 8 just advanced to the forth grade. This is the child I spoke about somewhere in the archives that was at 6 speaking in great detail about the " philosophical aspects of space and time travel " -opposite of speech delayed! To fight the discrimination against Tanner's verbal disability we are once again going the testing route which is my tried and true method of stopping the negative spiral downward in it's tracks. Dr. Renai Jonas will complete Tanner's expressive and receptive testing. And the " clinical and forensic psychologist " who tested (above story) will also be testing Tanner's IQ later this month. I just dropped off to him The Late Talker book yesterday to make sure he is aware of Tanner's limitations with verbal communication in testing -and he promised all nonverbal IQ tests that I approve. Don't want to say which ones yet because I don't know all for sure -I know one may be the Leiter-R. Will keep you guys posted. The following quote is from Tanner's therapist Dr. Renai Jonas from Boca Raton, Florida who has personally now witnessed Tanner finally pass through the 'developmental stage' of stuttering that started for him at around 4 and lasted till around seven or eight years old. This quote was not specifically for stuttering -but I know that's part of what she's referring to. " In the area of apraxia, not being able to talk affects ones ability to practice and learn in the same way as ones peers. Apraxia creates a developmental delay that lasts longer, however the child can catch up and can even surpass his peers. " Dr. Renai Jonas (561) 361 - 0307. Early Steps Program, Palm Beach County, FL Adjunct Professor, Florida Atlantic University Here's an archive of mine of this subject: Stuttering and apraxia, is it a stage or overlap? Dysfluency can be part of normal development in speech in young children -and if our kids can go through drooling and teething at three -why would it be impossible for them to go through dysfluency at three or older? When did I first bring this up on the web...over three years ago _http://cahn.http://cahttp://cahttp://cahn.<WBhtt_ (http://cahn.mnsu.edu/profin4/_disc1/0000008c.htm) Tanner today at 7 and a half, I wouldn't describe it as stuttering anymore. He at times speaks a bit slower, but not always. He almost always needs to break his long thoughts into shorter sentences, and pause between each one. He can talk -but it takes longer to get it out then most of us. You can hear his most recent talking page update here _http://www.debtsmarhttp://www.http://www._ (http://www.debtsmart.com/talk/tanner.html) Below I cut and pasted some archives on this -but there are many more. In particular notice the parent observed " stages of apraxia " that I wrote below. There are that many apraxic children that go through this " stuttering " thing I call it a " stage " I say I wouldn't change anything below but I take that back. Now that I think of it, since our children don't go through normal developmental stages young -it's OK they go through them older. With appropriate therapy they will continue to develop past these stages. At least that's what I have seen in Tanner and some others in this group. But that's not a fact -just my opinion. ~~~~~~~~~~~~~~~~~~~~~~~~<W My Tanner's problem today at almost seven is with stuttering on and off. Today Tanner's doing really well in speech -but as I posted below -now that he is learning to read and his vocabulary is expanding and he's pushing himself to speak in longer more complex sentences -he ranges from having almost no stuttering to hesitation on many words. For this reason -I just took Tanner to see stuttering expert Dr. Dale from Florida Atlantic University who diagnosed Tanner as having 20% fluency issues. Dr. believes that Tanner's stuttering is not a true stuttering -but a developmental one. Apraxic stuttering..developmental one. Apraxic s thing -so I guess down the road we will hear more about this. Dr. confirmed that once apraxic children learn to talk -they are hearing more and more about children with apraxia and stuttering together. What was of great interest to those of you in this group who also report hearing stuttering coming and going in your apraxic child is that Dr. said that " we have done an injustice as you say to apraxia and have not studied it enough, so we really don't know how long is " normal " for the dysfluency stage in an apraxic child -we really don't. We do know that many apraxic children appear to take longer to go through stages. " Dr. advised not to proceed with traditional stuttering therapy for now -outside of continuing with slow and easy speech practices. So here is the good news for all of us in this group who have children going through this -Dr. said " I don't believe this is something that Tanner will be dealing with for life at this point " ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ I first wrote this over two years ago in January 2002 for inclusion in The Late Talker as parent observed stages of apraxia viewed through our grouplist. This list was approved by all CHERAB advisors _http://www.cherab.http://www.cherahttp://www.cherhttp://www.chehttp_ (http://www.cherab.org/information/speechlanguage/advisoryboard.html) (but needed cleaning up which I never did) We ended up not including this in The Late Talker because even though approved, in the final cut we needed to edit out almost 300 pages for our book, and this included awesome pages that were already completed. Dr. Marilyn Agin, Malcolm Nicholl and I chose to leave in only the most critical information for a parent of a newly diagnosed apraxic child to know. I still don't want to clean this up, or change from my original writing from over 2 years ago -so here it is, what I still stand by and what still needs to be studied in my opinion and what I'd travel to hear a researcher explain: ~~~~~~~~~~~~ " Just like typically developing speech in a child, a child with apraxia appears from the members of our large Foundation to have stages they go through -and some children skip one or two -or pass through some of them quickly or get stuck in one or more of them. We don't know if all the member's children were properly diagnosed with apraxia or not, but this may be worth looking into. OBSERVED APRAXIA STAGES (?) THAT SHOULD BE EXPLORED FURTHER Stage 1 non verbal stage Where the child uses one or two sounds to communicate everything with gestures, and made up elaborate sign. At this stage, depending on the infant's or child's age you may not be able to diagnose verbal apraxia, but neurological soft signs should be looked for, as well as signs of oral motor problems or oral apraxia. An older apraxic child who is stuck at this stage will be using augmentative devices and could be at risk for misdiagnosis of cognitive ability if not tested appropriately. Stage 2 simple talk stage Where the child begins to just like a typically developing child learn new sounds or words, but unlike a typically developing child, most (not all) appear to forget how to say the sounds or words again, so they lose that ability to " build " their speech like most other children do. This is in most cases the only stage that is acknowledged by ASHA and described by most of the speech professionals*professionals*<WBR>. Please see examples above (b longer utterances, etc.) An older apraxic child who is stuck at this stage will be using augmentative devices and could be at risk for misdiagnosis of cognitive ability if not tested appropriately. Stage 3 Dysfluency stage Where the child who seemed to be progressing so well suddenly begins to stutter. Most speech professionals do not consider classic " stuttering " only a normal developmental dysfluency. However with apraxic children this stage is especially frustrating in that if the apraxic child does go through this stage, they appear to get " stuck " here. In speaking to members from the CHERAB Foundation who's apraxic child goes through this stage, there is frequently another member of the family who is a stutterer, which may mean there is some type of genetic link. Type of therapy to provide to an apraxic child at this stage that is appropriate is not clear and depends on which expert you speak to-in some cases there are direct oppositional views. Stage 4 Baby Talk stage Where the child who is now talking and being understood continues to mix up past and present tense, as well as sentence structure, and frequently will leave out the " little words " like " the " and " a " . This may not have anything to do with SLI as discussed above, an apraxic child typically does keep sentences shorter than average, but there may be children diagnosed in the SLI area that are apraxic, and visa versa -and being there is a genetic link to both SLI as well as apraxia, a closer look needs to be taken at this stage. A five year old apraxic child who receives appropriate therapy, including some of the recent discoveries we will talk about later, may progress faster than previously stated, however just like in the previous stage, apraxic children also seems to get stuck in this stage. An example would be " Me want doe too " for " I want to go too " or " Mommy me walk store too? " for " Mommy can I walk to the store too? " Stage 5 Full language stage Where the child, teenager, or adult apraxic has learned strategies to overcome the apraxia enough that it's not noticed by the average listener. However upon closer observation you will notice that an apraxic in the full language stage will frequently use less sophisticated language. An example comes in right here. Instead of saying " an apraxic in the full language stage will frequently use less sophisticated language " they may say " an apraxic in the full langwer' stage will not sound as grown up most of the time " So in other words, there will still be words that he or she can not pronounce correctly, and being aware of them, will avoid them and substitute when they can. They can be highly intelligent, but due to their lack of expressing themselves using sophisticated language at times others may not know this. This is perhaps in some ways just as frustrating a stage as any other. In some cases maybe more so because now that they are " talking " and talking fine most of the time, ASHA professionals may not consider them candidates for further services. The genetic possibilities and medical involvement needs to establish these stages, including this one, so the population can understand and accept this disability just like they do for those with poor eyes or poor hearing. This is an example of a late talker that unfortunately for all did not " just start talking " Another strong point that our Foundation has seen that is not acknowledged by most professionals yet is that a child with apraxia at two may not have had it from birth. So for this reason, the " signs " of apraxia always stated may not relate to the parent of a late talker, and for that reason they may not believe their late talker to be apraxic ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Tanner's therapist tried the therapeutic listening for Tanner to help stop some dysfluency he developed when he started talking based on the theory that it would help with the right-left brain activity. My experience makes me recommend auditory therapies as part of the treatment for our children with multisensory communication impairments. I believe a multi -sensory approach will be proven to be most effective for our children down the road -I just don't believe in waiting, and was thrilled to have an open minded SLP like working with Tanner. Anecdotally -Tanner would have trouble speaking clear and getting his words out -and then within a minute of putting the headphones on his words would come clear and smooth -not sure why but since it appeared to help we used it. He had a waist band to wear so he could wear his CD player around when playing, during therapy -etc. The only activities we were told not to let him do while wearing the headphones were watching TV or playing on the computer. Tanner doesn't use the therapeutic listening program much anymore, however his speech is also much better now, and he's older and is more aware of " what's cool " (at 6 and a half can you believe it?!!) I just want all of you to know you will probably not read the above anywhere else since this is not what the program is intended for. It was just a theory of 's -but it worked amazingly well for Tanner! was trained by Vital Links so I was able to order the special headphones which had the " right " and " left " ear marked -and the " correct " CDs for Tanner from Vital Links _http://www.vitalsouhttp://w_ (http://www.vitalsounds.com/) You can not order from this company without the training code of the professional that took the course. Supposedly using the wrong CDs can be harmful somehow. (any OTs want to explain the danger of listening to the wrong CDs?) ~~~~~~~~~~~~~~~~~ From: " Quote Link to comment Share on other sites More sharing options...
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