Hi all

[Guest guest]

Hi Jen,

Welcome to the group. I am sorry that it is this rotten disease that has

brought us all together but feel free to jump in anytime with a question or

comment.

My name is Lin I live in Oregon. I have RSD in both legs, I didn't have an

injury or anything, it just decided to show up one day. I am 46 live with

my husband of 28 years, we have 2 grown daughters, both married and I have 1

granddaughter who is the sweetest thing on earth no bias there. We have 3

cats and I dog.

So that is my story in a nutshell. So you said a client attacked, what

kind of work did you do?

Lin

-- hi all

Hi, my name's Jen. I just joined. I'm a member of also

RSD-CRPSjustusfriends so if you're in that group, you know me. I'm

friends with Casey. If you don't know me, I'm 21 years old and was

attacked June 27th, 2004 by a client at work. I was diagnosed with RSD

3 weeks later. It originated in my left hand but has spread to all

four of my extremities. I'm currently having tons of problems with

doctors and the workman's comp. insurance. But I'm glad that these

support groups exist. I don't know what I'd do without them.

Jen

[Guest guest]

Hi Pam,

I hope you faired well with your " minor stuff " . I don't think there

is anything minor anymore when it comes to tinkering with a Body

with RSD. And, I wanted to thank you for your prayers, I am doing

much better and hope I can give back support to you and our grand

group. With love and caring, Lyn

, Pamela Fredette <patches13033@y...> wrote:

.. GOING TO HAVE MINOR STUFF DONE TODAY DONT KNOW IF I WILL BE ON FOR

COUPLE OF DAYS..........LYN I HOPE YOUR DOING BETTER I PRAYING FOR

YOU. ....... GROUP IS WONDERFUL MY BRAIN IS SHUTTING DOWN WITH PAIN

AND I

> CANT THINK THANK YOU EVERY ONE LOVE PAM

[Guest guest]

Hi Pam,

I hope you faired well with your " minor stuff " . I don't think there

is anything minor anymore when it comes to tinkering with a Body

with RSD. And, I wanted to thank you for your prayers, I am doing

much better and hope I can give back support to you and our grand

group. With love and caring, Lyn

, Pamela Fredette <patches13033@y...> wrote:

.. GOING TO HAVE MINOR STUFF DONE TODAY DONT KNOW IF I WILL BE ON FOR

COUPLE OF DAYS..........LYN I HOPE YOUR DOING BETTER I PRAYING FOR

YOU. ....... GROUP IS WONDERFUL MY BRAIN IS SHUTTING DOWN WITH PAIN

AND I

> CANT THINK THANK YOU EVERY ONE LOVE PAM

[Guest guest]

Hi Pam,

I hope you faired well with your " minor stuff " . I don't think there

is anything minor anymore when it comes to tinkering with a Body

with RSD. And, I wanted to thank you for your prayers, I am doing

much better and hope I can give back support to you and our grand

group. With love and caring, Lyn

, Pamela Fredette <patches13033@y...> wrote:

.. GOING TO HAVE MINOR STUFF DONE TODAY DONT KNOW IF I WILL BE ON FOR

COUPLE OF DAYS..........LYN I HOPE YOUR DOING BETTER I PRAYING FOR

YOU. ....... GROUP IS WONDERFUL MY BRAIN IS SHUTTING DOWN WITH PAIN

AND I

> CANT THINK THANK YOU EVERY ONE LOVE PAM

[Guest guest]

Janet,

I just have such a deep sign reflex when I read your post. I have

been wondering myself just how smart is it to " act " and protect our

friends and family from the reality of the pain. My experience is

recent and I don't know what is the best thing to do but, your

experience is making me learn in one direction rather than the other.

For the first week or so I put on a brave face when RSD came back

full force. I thought that it was the best thing to do and that my

mate would appreciate my doing so. Instead after a week of putting

on a " happy face " and trying to do a " happy dance " I had some

moments of grim reality and needed some support and encouragement.

You know what happened? He said I was being difficult!! I was

shocked. I dealt with it the only way I knew how. After calming

myself because I wanted to throw him out on his ear I was so very

hurt. Instead I gathered all my diary entries from the previous

years of pain and began reading out loud and continued for I don't

know how long following it with a reading from the stages of

symptoms for RSD. He didn't react but the next morning he acted as

if nothing had happened and he was a new person to me. Since then

he has made me feel loved and encouraged me.

I continued to tell him about every stinking ache and pain every

day and a blow by blow of what goes on in my head. Now that I have

been doing that for awhile I've been thinking that I need to tone

it

down a bit because that can get old too. So this morning I even

said to him I think I am going to not say anything about how I feel

for two days. He jokingly said, " I'll bet you can't do

it " . I

laughed and said that I was serious and I told him that I thought

that eventually I needed to do that because hearing this stuff will

get old and I don't know how to deal with it. Now that I've

read

your experience I just don't know that being quiet about it is a

good thing either. I'll ponder this problem it must be a problem

for everyone with chronic pain. If we aren't honest with what we

deal with " they " are lulled into a false sense that we are

doing " fine " but if we tell them everything all the time they

will

eventually run away to protect themselves from the constant

negativity.

Good grief I've gone on too long. Guess you have the picture of

what I'm trying to say.

Take care of yourself and I feel so bad for you. It hurts so much

to have the important people in your life turn on you like that.

With love and caring, Lyn

" nannyshere " <nannyshere@m...> wrote:

>

> My 14 yr. old granddaugther always calls me a hyprocontriac.

I don't even act like I am in pain when she is here;

I put on my " mask "

It is hard to " act "

She said " Nanny's meds are placebos. "

[Guest guest]

Janet,

I just have such a deep sign reflex when I read your post. I have

been wondering myself just how smart is it to " act " and protect our

friends and family from the reality of the pain. My experience is

recent and I don't know what is the best thing to do but, your

experience is making me learn in one direction rather than the other.

For the first week or so I put on a brave face when RSD came back

full force. I thought that it was the best thing to do and that my

mate would appreciate my doing so. Instead after a week of putting

on a " happy face " and trying to do a " happy dance " I had some

moments of grim reality and needed some support and encouragement.

You know what happened? He said I was being difficult!! I was

shocked. I dealt with it the only way I knew how. After calming

myself because I wanted to throw him out on his ear I was so very

hurt. Instead I gathered all my diary entries from the previous

years of pain and began reading out loud and continued for I don't

know how long following it with a reading from the stages of

symptoms for RSD. He didn't react but the next morning he acted as

if nothing had happened and he was a new person to me. Since then

he has made me feel loved and encouraged me.

I continued to tell him about every stinking ache and pain every

day and a blow by blow of what goes on in my head. Now that I have

been doing that for awhile I've been thinking that I need to tone

it

down a bit because that can get old too. So this morning I even

said to him I think I am going to not say anything about how I feel

for two days. He jokingly said, " I'll bet you can't do

it " . I

laughed and said that I was serious and I told him that I thought

that eventually I needed to do that because hearing this stuff will

get old and I don't know how to deal with it. Now that I've

read

your experience I just don't know that being quiet about it is a

good thing either. I'll ponder this problem it must be a problem

for everyone with chronic pain. If we aren't honest with what we

deal with " they " are lulled into a false sense that we are

doing " fine " but if we tell them everything all the time they

will

eventually run away to protect themselves from the constant

negativity.

Good grief I've gone on too long. Guess you have the picture of

what I'm trying to say.

Take care of yourself and I feel so bad for you. It hurts so much

to have the important people in your life turn on you like that.

With love and caring, Lyn

" nannyshere " <nannyshere@m...> wrote:

>

> My 14 yr. old granddaugther always calls me a hyprocontriac.

I don't even act like I am in pain when she is here;

I put on my " mask "

It is hard to " act "

She said " Nanny's meds are placebos. "

[Guest guest]

Janet,

I just have such a deep sign reflex when I read your post. I have

been wondering myself just how smart is it to " act " and protect our

friends and family from the reality of the pain. My experience is

recent and I don't know what is the best thing to do but, your

experience is making me learn in one direction rather than the other.

For the first week or so I put on a brave face when RSD came back

full force. I thought that it was the best thing to do and that my

mate would appreciate my doing so. Instead after a week of putting

on a " happy face " and trying to do a " happy dance " I had some

moments of grim reality and needed some support and encouragement.

You know what happened? He said I was being difficult!! I was

shocked. I dealt with it the only way I knew how. After calming

myself because I wanted to throw him out on his ear I was so very

hurt. Instead I gathered all my diary entries from the previous

years of pain and began reading out loud and continued for I don't

know how long following it with a reading from the stages of

symptoms for RSD. He didn't react but the next morning he acted as

if nothing had happened and he was a new person to me. Since then

he has made me feel loved and encouraged me.

I continued to tell him about every stinking ache and pain every

day and a blow by blow of what goes on in my head. Now that I have

been doing that for awhile I've been thinking that I need to tone

it

down a bit because that can get old too. So this morning I even

said to him I think I am going to not say anything about how I feel

for two days. He jokingly said, " I'll bet you can't do

it " . I

laughed and said that I was serious and I told him that I thought

that eventually I needed to do that because hearing this stuff will

get old and I don't know how to deal with it. Now that I've

read

your experience I just don't know that being quiet about it is a

good thing either. I'll ponder this problem it must be a problem

for everyone with chronic pain. If we aren't honest with what we

deal with " they " are lulled into a false sense that we are

doing " fine " but if we tell them everything all the time they

will

eventually run away to protect themselves from the constant

negativity.

Good grief I've gone on too long. Guess you have the picture of

what I'm trying to say.

Take care of yourself and I feel so bad for you. It hurts so much

to have the important people in your life turn on you like that.

With love and caring, Lyn

" nannyshere " <nannyshere@m...> wrote:

>

> My 14 yr. old granddaugther always calls me a hyprocontriac.

I don't even act like I am in pain when she is here;

I put on my " mask "

It is hard to " act "

She said " Nanny's meds are placebos. "

[Guest guest]

Yes, dont miss your meetings, they might set you back......Kaiser always

held that over our heads....Good luck,

Mike T

Hi all

>I am suppose to go to a groupeeting before I see the surgeon but I

> have no one to go with me should I go alone

>

>

>

>

>

>

>

>

> We are a very active support group.

> If the email becomes overwhelming,

> please change your setting to NO EMAIL!

> Please contact Group Creator

> Robyn@...

>

>

>

[Guest guest]

Yes, dont miss your meetings, they might set you back......Kaiser always

held that over our heads....Good luck,

Mike T

Hi all

>I am suppose to go to a groupeeting before I see the surgeon but I

> have no one to go with me should I go alone

>

>

>

>

>

>

>

>

> We are a very active support group.

> If the email becomes overwhelming,

> please change your setting to NO EMAIL!

> Please contact Group Creator

> Robyn@...

>

>

>

[Guest guest]

Yes, dont miss your meetings, they might set you back......Kaiser always

held that over our heads....Good luck,

Mike T

Hi all

>I am suppose to go to a groupeeting before I see the surgeon but I

> have no one to go with me should I go alone

>

>

>

>

>

>

>

>

> We are a very active support group.

> If the email becomes overwhelming,

> please change your setting to NO EMAIL!

> Please contact Group Creator

> Robyn@...

>

>

>

[Guest guest]

I would go, you will meet people who are going through the same

process as you. You might meet some new friends.

Hugs!!

>

> I am suppose to go to a groupeeting before I see the surgeon but I

> have no one to go with me should I go alone

>

[Guest guest]

I would go, you will meet people who are going through the same

process as you. You might meet some new friends.

Hugs!!

>

> I am suppose to go to a groupeeting before I see the surgeon but I

> have no one to go with me should I go alone

>

[Guest guest]

I would go, you will meet people who are going through the same

process as you. You might meet some new friends.

Hugs!!

>

> I am suppose to go to a groupeeting before I see the surgeon but I

> have no one to go with me should I go alone

>

[Guest guest]

I would go, you will meet people who are going through the same

process as you. You might meet some new frieds.

Hugs!!

>

> I am suppose to go to a groupeeting before I see the surgeon but I

> have no one to go with me should I go alone

>

[Guest guest]

I would go, you will meet people who are going through the same

process as you. You might meet some new frieds.

Hugs!!

>

> I am suppose to go to a groupeeting before I see the surgeon but I

> have no one to go with me should I go alone

>

[Guest guest]

Go alone , I found going to group meetings alone worked better for me.

I was able to focus on myself and making new contact with others just

like me.

Keep us posted on how things go!

~

[Guest guest]

Go alone , I found going to group meetings alone worked better for me.

I was able to focus on myself and making new contact with others just

like me.

Keep us posted on how things go!

~

[Guest guest]

Go alone , I found going to group meetings alone worked better for me.

I was able to focus on myself and making new contact with others just

like me.

Keep us posted on how things go!

~

[Guest guest]

Yes you should. Then tell us about it afterwards if you're comfortable

with doing that. We're a group.

Mike in GR

>

> I am suppose to go to a groupeeting before I see the surgeon but I

> have no one to go with me should I go alone

>

[Guest guest]

Yes you should. Then tell us about it afterwards if you're comfortable

with doing that. We're a group.

Mike in GR

>

> I am suppose to go to a groupeeting before I see the surgeon but I

> have no one to go with me should I go alone

>

[Guest guest]

Yes you should. Then tell us about it afterwards if you're comfortable

with doing that. We're a group.

Mike in GR

>

> I am suppose to go to a groupeeting before I see the surgeon but I

> have no one to go with me should I go alone

>

[Guest guest]

Welcome back Leeann! Glad you had a nice time! I still have to take in

a protein shake to get all my protein in. That's how I start my morning

as my stomach can't handle food first thing.

W

380/282/160

leelee35_2000 wrote:

> Hello,

> Boy did I miss you folks. Although I don't post much I really

> missed reading every one's posts. I went to sunny Flordia for my last

> 2 weeks of disability. It was beautiful and my kids had a great time.

> The salt water caused a slighty infection in 2 of my incisions but it

> was worth it. Mickey Mouse says " hello to all " .

> I had my one month check up and am down 37 lbs total. I feel great.

> I am now on solid foods but am having trouble getting 60gm oprotein

> per day. How does evey one do it? That would be 20gm per meal but how

> is that possible when one scrambled egg fills you up? Any suggestions??

> I was going to try to catch up on posts but 2 weeks worth would

> take me about 2 days, lol. I think I'll just start from here. I hope

> all has been good.

> Leeann

>

>

>

[Guest guest]

Leeann,

Protein shakes.......In the beginning I was having 1-3 a day.....Im

really bad now, I need to get back with my shakes.

Mike T

Hi all

> Hello,

> Boy did I miss you folks. Although I don't post much I really

> missed reading every one's posts. I went to sunny Flordia for my last

> 2 weeks of disability. It was beautiful and my kids had a great time.

> The salt water caused a slighty infection in 2 of my incisions but it

> was worth it. Mickey Mouse says " hello to all " .

> I had my one month check up and am down 37 lbs total. I feel great.

> I am now on solid foods but am having trouble getting 60gm oprotein

> per day. How does evey one do it? That would be 20gm per meal but how

> is that possible when one scrambled egg fills you up? Any suggestions??

> I was going to try to catch up on posts but 2 weeks worth would

> take me about 2 days, lol. I think I'll just start from here. I hope

> all has been good.

> Leeann

>

>

>

>

> We are a very active support group.

> If the email becomes overwhelming,

> please change your setting to NO EMAIL!

> Please contact Group Creator

> Robyn@...

>

>

>

[Guest guest]

Leeann,

Protein shakes.......In the beginning I was having 1-3 a day.....Im

really bad now, I need to get back with my shakes.

Mike T

Hi all

> Hello,

> Boy did I miss you folks. Although I don't post much I really

> missed reading every one's posts. I went to sunny Flordia for my last

> 2 weeks of disability. It was beautiful and my kids had a great time.

> The salt water caused a slighty infection in 2 of my incisions but it

> was worth it. Mickey Mouse says " hello to all " .

> I had my one month check up and am down 37 lbs total. I feel great.

> I am now on solid foods but am having trouble getting 60gm oprotein

> per day. How does evey one do it? That would be 20gm per meal but how

> is that possible when one scrambled egg fills you up? Any suggestions??

> I was going to try to catch up on posts but 2 weeks worth would

> take me about 2 days, lol. I think I'll just start from here. I hope

> all has been good.

> Leeann

>

>

>

>

> We are a very active support group.

> If the email becomes overwhelming,

> please change your setting to NO EMAIL!

> Please contact Group Creator

> Robyn@...

>

>

>

[Guest guest]

Today is a good day. Just popping in again to say HI. I seem to be

in and out these days a good bit. Hope you have all been feeling

good. Sorry to read Judy is not feeling well.

More fun stuff - my achilles tendonitis turned out to be gout.

Funny. All this time I've been saying my kidneys are the only things

that work correctly - now we find out that isn't the case at all. I

can't processess protein correctly. Boy that sucks! With diabetes

and Celiac disease good old grilled steak and a glass of wine was

about the only thing I really had to look forward to. I got really

contrary yesterday and ate a corn bread muffin. Boy that'll show em.

S, Lubbock, TX

NSIP w/PF 12/2006 et al