Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 Oops. I just read the post about 's experience dropping phenobarbital. Maybe I was wrong to encourage further weaning. As long as had good control on phenobarbital plus the diet, perhaps you should go back to what worked. Sorry, that I am of no help whatsoever. I'm hoping you gain control again, soon. > We are having an awful time, here w/return of day time seizures after six > months of control. Have been monitoring blood ketones on and off...they're > always fine. Am blaming the return of these seizures as well as ten-fold > increase in nocturnals on our latest phenobarb wean. (Quick history on the wean: > We've successfully cut the dose in HALF yet have not seen a level change > until the last drop about 2 1/2 weeks ago.) > > Now, Skyler's just been brought home from school after his biggest seizure > yet during the day...and his blood ketones are off the > chart...literally...higher than they've ever been. > > COULD HIS KETONES BE TOO HIGH?? He's got no other symptoms of hyperketosis, > though. > > Also....CAN ANYONE IDENTIFY THIS SEIZURE TYPE: It is new and foreign to us. > It looks like his whole face is in complete convulsions--both sides. His > limbs don't move...he doesn't drop anything or fall...and he is totally > cognizant of the seizure...a bit 'foggy' afterward. > > Any help will be greatly appreciated. > I'm so distraught.... > > Tracey > > > Quote Link to comment Share on other sites More sharing options...
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