Re: Re: Newbie - Low Ketones - to Cammie

[Guest guest]

Duh..... why didn't I think of that! Of course, skip carbs in next meal to

bring them up, Have certainly done the opposite when they are too high! thanks

for sharing. .... mumma to the other .

cammie562003 jms@...> wrote:

Leigh,

Welcome to you and , the new " keto kid " . I'm Cammie, mom to

, 8rys. old, seizure free on the diet for 14 months now. I'm so

happy to hear you are seeing success the first week--that's a great

sign. Some teams do recommend that you fast your child for a few

meals if ketones drop. Per our dietician, I would just omit the carb

portion of 's meal(s) when her ketones dropped. That's less

drastic than fasting. Check ketones again before the next meal to

see if they are stronger. Hopefully, that will bump the ketones up

for now -- do call your dietician on Monday for recommendations.

Sometimes it just takes a while for the ketone level to " settle " .

Other reasons for temporary low ketones are new foods, too much fluid

intake, and fighting an illness (whether the child actually comes

down with it or not). Also toothpaste, lotions, etc. can lower

ketones if they contain hidden carbs. Hopefully, you received a list

of things like this that are " o.k " for keto.

Is on any meds? AEDs can negatively affect the diet, too--

some worse than others.

Sounds like he's off to a good start, though -- WOOO HOOOO!!

Cammie

>

> Hi everyone!

> We started our initiation last monday and just came home friday.

We

> have seen improvements each day in 's seizure control. He is

> on 4:1. Ketones were in the large 160 range in the hosptial and

> even most of yesterday. Today they are reading only 40-80. I have

> re-read my keto manual and done a search in Dr. Freeman's book and

> can't find what to do if they are dropping. Do I go back to a fast

> until they drop or just keep feeding the dietician prescribed menus

> and they should settle back up? Obviously, I will call dietician

in

> the am, but was wondering if there is something I should know to do

> that I have simply forgotten in all the new stuff I have learned

> this week!

> Thanks for any advice!

> Leigh

" The Ketogenic Diet....a realistic treatment option, NOT just a last resort! "

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