Guest guest Posted October 24, 2004 Report Share Posted October 24, 2004 Does anyone else use sugar free jello every meal? Is is an ok food. I put it in my planner and everything but do you think it has any chance of hurting Jordan's seizure control? The reason I like to use it so much is because I mix it with his whipped cream and he LOVES it!! Plus it is easy for me to use it to manipulate the ratio to make sure it is exactly 4 to 1. Sorry for so many questions ya'll are the only support I get really!! TIA! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2004 Report Share Posted October 24, 2004 We use a lot of sugar free jello. Just like Jordan, my loves it mixed with cream. Jello " jigglers " are a good treat food. I've also frozen it for popsicles. Our summer favorite is to make the jello according to the package directions and let it sit at room temp. until it is completely cool (it won't gel). Then pour it over crushed ice for a " snow cone " . The ice will make the jello start to gel. We haven't had any problems at all, but as you've heard from others, aspartame can be a seizure trigger for some people. If you are using it and haven't seen any decrease in seizure control, I'd say it's probably o.k. for him. If you lose seizure control, take the jello away for at least a week (it might take two) and use only foods that have led to better control previously. If seizure control returns, there's a good chance the aspartame is the culprit. You can test by giving jello again with the very same foods you have been using (so that the jello is the only thing that's different). If seizures increase again, you can be pretty sure it's the jello. Cammie > > Does anyone else use sugar free jello every meal? Is is an ok food. > I put it in my planner and everything but do you think it has any > chance of hurting Jordan's seizure control? The reason I like to use > it so much is because I mix it with his whipped cream and he LOVES > it!! Plus it is easy for me to use it to manipulate the ratio to > make sure it is exactly 4 to 1. Sorry for so many questions ya'll > are the only support I get really!! TIA! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2004 Report Share Posted October 24, 2004 Well he is still having seizures. Although they are NOTICABLY weaker!! But I have been crediting them to his cold turkey cut of Depakote. I was just wondering if it could be the aspartame. Maybe I will cut it for a few days. > > Does anyone else use sugar free jello every meal? Is is an ok food. > I put it in my planner and everything but do you think it has any > chance of hurting Jordan's seizure control? The reason I like to use > it so much is because I mix it with his whipped cream and he LOVES > it!! Plus it is easy for me to use it to manipulate the ratio to > make sure it is exactly 4 to 1. Sorry for so many questions ya'll > are the only support I get really!! TIA! > > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2004 Report Share Posted October 24, 2004 Hey, it is worth a try. Each child responds differently to so many of the variables. Also, the cream can be sweetened with stevia or whatever you use for a tastey treat. . dreamerofluna dreamerofluna@...> wrote: Well he is still having seizures. Although they are NOTICABLY weaker!! But I have been crediting them to his cold turkey cut of Depakote. I was just wondering if it could be the aspartame. Maybe I will cut it for a few days. > > Does anyone else use sugar free jello every meal? Is is an ok food. > I put it in my planner and everything but do you think it has any > chance of hurting Jordan's seizure control? The reason I like to use > it so much is because I mix it with his whipped cream and he LOVES > it!! Plus it is easy for me to use it to manipulate the ratio to > make sure it is exactly 4 to 1. Sorry for so many questions ya'll > are the only support I get really!! TIA! > > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 We have used asparteme with no increase in seizures. My son drinks 2 diet pops a day. I don't really like it, but it keeps him happy. I wouldn't worry too much about jello at every meal. If you aren't getting seizure control or see an increase in seizures, then you could take it away. Our center uses asparteme, too. So, I don't really think it causes seizures in all kids prone to seizures. > > Does anyone else use sugar free jello every meal? Is is an ok food. > I put it in my planner and everything but do you think it has any > chance of hurting Jordan's seizure control? The reason I like to use > it so much is because I mix it with his whipped cream and he LOVES > it!! Plus it is easy for me to use it to manipulate the ratio to > make sure it is exactly 4 to 1. Sorry for so many questions ya'll > are the only support I get really!! TIA! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Just a quick question. Hannah is still on liquid diet only (she's 9 1/2 months old, ) but I see a long keto life ahead of us. Does jello contain protein like Knox does? Re: Sugar Free Jello We have used asparteme with no increase in seizures. My son drinks 2 diet pops a day. I don't really like it, but it keeps him happy. I wouldn't worry too much about jello at every meal. If you aren't getting seizure control or see an increase in seizures, then you could take it away. Our center uses asparteme, too. So, I don't really think it causes seizures in all kids prone to seizures. > > Does anyone else use sugar free jello every meal? Is is an ok food. > I put it in my planner and everything but do you think it has any > chance of hurting Jordan's seizure control? The reason I like to use > it so much is because I mix it with his whipped cream and he LOVES > it!! Plus it is easy for me to use it to manipulate the ratio to > make sure it is exactly 4 to 1. Sorry for so many questions ya'll > are the only support I get really!! TIA! " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 Hi , yes, the jello has protein in it. I give it to Kristan once in a while and on the recipe printout I get from her dietitian it does list a value under the protein for the ratio that she is on. How is Hannah doing? Have you been able to get ketones? Satnam, mom to Kristan, 22 months Keto kid since August 2003 and currently weaning from the diet > > > > Does anyone else use sugar free jello every meal? Is is an ok > food. > > I put it in my planner and everything but do you think it has any > > chance of hurting Jordan's seizure control? The reason I like to > use > > it so much is because I mix it with his whipped cream and he LOVES > > it!! Plus it is easy for me to use it to manipulate the ratio to > > make sure it is exactly 4 to 1. Sorry for so many questions ya'll > > are the only support I get really!! TIA! > > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic- unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 YES! We have ketones and about an 80% decrease in seizure activity! What a different baby she is. I feel like our prayers are slowly being answered. Hannah is still behind, she holds her head a little but that is it. She was recently dx with cortical visual impairment and we are still awaiting answers to her underlying mitochondrial and metabolic issues. Perhaps we will have answers soon....we just found out we are pregnant again. Hannah was our first and we always wanted a large family. The reality is a little scary though. Pray and keep your fingers crossed! Re: Sugar Free Jello Hi , yes, the jello has protein in it. I give it to Kristan once in a while and on the recipe printout I get from her dietitian it does list a value under the protein for the ratio that she is on. How is Hannah doing? Have you been able to get ketones? Satnam, mom to Kristan, 22 months Keto kid since August 2003 and currently weaning from the diet > > > > Does anyone else use sugar free jello every meal? Is is an ok > food. > > I put it in my planner and everything but do you think it has any > > chance of hurting Jordan's seizure control? The reason I like to > use > > it so much is because I mix it with his whipped cream and he LOVES > > it!! Plus it is easy for me to use it to manipulate the ratio to > > make sure it is exactly 4 to 1. Sorry for so many questions ya'll > > are the only support I get really!! TIA! > > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic- unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2004 Report Share Posted October 27, 2004 That's great news . I hope you get total control soon. Kristan was very floppy as well but now her head and trunk control are pretty much back to normal. It took a lot of therapy to get her there, but it was worth it. Just wait, Hannah will get there too, do you try to do a lot of tummy time with her, put her on a pillow to raise her up a bit, that helped with Kristan. Kristan's eye doctor thinks she has cortical visual impairment too, but they are not 100% sure, Kristan's vision is not that great. I hope you do find some answers on what is the cause, for us, it looks like we will never know. Congratulations on your second pregnancy, I pray it all goes well and that Hannah has a healthy sibling to play with. Satnam > > > > > > Does anyone else use sugar free jello every meal? Is is an ok > > food. > > > I put it in my planner and everything but do you think it has > any > > > chance of hurting Jordan's seizure control? The reason I like > to > > use > > > it so much is because I mix it with his whipped cream and he > LOVES > > > it!! Plus it is easy for me to use it to manipulate the ratio > to > > > make sure it is exactly 4 to 1. Sorry for so many questions > ya'll > > > are the only support I get really!! TIA! > > > > > > > > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a > last resort! " > > > > List is for parent to parent support only. > > It is important to get medical advice from a > professional keto team! > > Subscribe: ketogenic- subscribe > > Unsubscribe: ketogenic- > unsubscribe > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.