Re: Digest Number 928

[Guest guest]

Laila

I already cut the hair, that was a few months ago, before the RA came on. I

have a big handle brush, the problem is it hurts to squeeze it. Anything

that has to use pressure of my hands, hurts, when it is active. Keep in mind

I have not been to a specialist yet, that comes in a week or two. Hopefully

then with meds it will be better, in the meantitme I have to grin and bare it.

I am about an hour from Stuttgart Germany, the villiage I am in is called

Ammerbuch. Trust me it is a small place, not even a grocery store. We do

have a butcher shop and a veggie shop (metzgeri und gemuse )that I can walk

to on days, that my feet are not involved with the RA. Last week was terrible

for my feet, nine days of hobbling and limping. They are better at the moment.

Where did you grow up at here?

Kitt

[Guest guest]

I have a question, do any of you have itching where the RA is effecting the

joints? My fingers are soooo swollen and at the joints they sometimes

itch......Kitt

[Guest guest]

Laila

your words are so kind and so thoughtful, yes, you sent this earlier, private

email, and I emailed you back (smile) but here is part of it again, you and

the others have made a difference in my life in such a short time, and I

thank you from the deepest parts of my heart. You can understand the feelings

I have being in a foreign country, it just adds to the fears and uncertainty.

German doctors are reupted to be the best, but to be honest with you, I have

yet to see it. When I was first here, I went to one that said he spoke

English, I told him I had a bladder infection, what he heard was blatt (page

in german) and then he heard, going to the bathroom every five min, and he

assumed diahreha, so he gave me meds for this and nearly killed me. Then, I

was pregnant, I was miscarrying, went to the dr hemorahging, they left me in

a room, just me and myhusband for a half hour, I could have died. Now this

travesty with the diabetes, the dr gives me a four mon supply and says come

back when you run out. This to me is stupid.

Now so you do not think it is just me getting lousy treatment here, my mother

inlaw has cancer. She had a double mast. but the cancer spread. She is a

brave and courageous woman and I love her very much. She went to a dr, with

abd. pain, he told her she had liver cancer now, she went to another one, he

did a spin tomography, told her no cancer, the pain was still there, worse

and worse, stomach swelling looked like she was preg.....she goes to another

dr, the cancer is all over her. I think there might be some good doctors

here, but so far I have not found them.

Kitt

[Guest guest]

Carolyn, I am glad I found this group too, and you are right, Laila's letter

was heart warming. Eveoyone here has been so sweet and I am luck to have

found you all, Kitt

[Guest guest]

Kitt,

When my fingers were swollen, I would feel like they itched. It is a

disturbing feeling and not easily relieved. Hopefully, they will get you on

an effective medication soon and lower the swelling.

Pat

At 10:04 AM 03/22/2000 -0500, you wrote:

>From: kitt0213@...

>

>I have a question, do any of you have itching where the RA is effecting the

>joints? My fingers are soooo swollen and at the joints they sometimes

>itch......Kitt

>

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[Guest guest]

RE: CAT Skan / MRI/Luvox

I think it is a positive that you are receiving care for your son, and not

being ignored. Chronically nauseated tummy ...why are they not sending

you/him to a gastro doc? I can't see Luvox causing that. The stomach

problems may be due to stress, but it needs to be addressed. Also, have

you ruled out bulimia? (spelling on that one?)

My son is on Luvox and the weight is an issue. He has finally begun to eat

more healthy snacks and exercise daily.

Keep us posted,

JMW.Marshall@...

[Guest guest]

......Your story is fantastic - its exactally like mine.

Its amazing how a little placement can really change your whole outlook

(your chi).

After moving my house around, and creating a much better chi......

I found I finally made prettier soaps (more colourful soaps with more

detail).

*L* Im not a big MP maker, but these were fun to do...I felt good when I

made them - they're bright colourful and full of detail - even my Dad was

proud (he's a hard man to please).

The Chi progressed into my work as well as my personal life.

I definatly recommend buying the books and learning about this - you dont

have to be an unhappy person, or lack sleep, everyone can benifit from

this - or - if your not into reading...they do have a video out too.

Happy Soaping,

& The Soap Goat Crew.

Check out our Fast Buys for ultra super $$avings.

Christmas in July starts now!! Super Store Wide over stocked inventory

sale!!

http://www.thesoapgoat.com

[Guest guest]

I'll second that, . I've never found anything that has helped as

much as feng shui. I was very skeptical that anything as easy as

changing the placement of furniture and adding a few mirrors etc. could

make a difference in how you feel. But it does. It also helps with

your business and finances. I have sold more and received more money

since I started by hanging a wind chime on my front porch. I moved my

computer into the wealth corner of my livingroom. (I've also had more

company since I moved the furniture around in my livingroom) I too

recommend that if you are having financial, marriage, sleep, or any

other kind of trouble, to look into feng shui.

--

Green Kennewick, WA

AJ's Udder Delight Dairy Goats: http://www.nwinfo.net/~milkmaid

NSBA Raffle: http://www.agdomain.com/web/ajudgoats/raffle/

[Guest guest]

a,

I feel you are right on with your 2 cents on a Beauty Pageant. I have

been a

member of LPA since 1972. They had the King & Queen when I first joined and I

didn't like it either, and I guess the organization agreed, since it no

longer exists.

The Talent & Fashion Shows are very positive functions for the organization.

Thank you for your thoughts.

Pat

[Guest guest]

In a message dated 11/4/01 9:09:37 AM Central Standard Time,

angelo@... writes:

> If I'm not mistaken, I believe Dr Goldberg to be quite critical of ABA.

>

>

The times that we have talked with Dr. G. about ABA, what he criticizes is

the robotic rote learning that never attempts to assimilate the skill into

the child's everyday existence. Some ABA trainers do end up doing this. But

ABA is practiced/administered in a huge wide variety of ways by a host of

different people and organizations, some affiliated with Dr. Lovaas, who

created the therapy, and some not. To paint all of ABA with such a wide

brush does a disservice to those who DO go the extra mile to make sure that

the kids are integrating the skills into their daily lives.

For those interested in a holistic approach to ABA--one that I'm sure Dr. G

would find acceptable, if he had the time to investigate it (which he

doesn't, since he's spending all of his time trying to help our kids)--I

recommend wholeheartedly the Center for Autism and Related Disorders (CARD)

out of Woodland Hills, Calif.--in fact, just a couple of miles from Dr. G's

Tarzana office. You can access information at www.CenterForAutism.com. They

have been fabulous to work with, and are completely in sync with the

biomedical approach Dr. G has taken with our son.

Warren

[Guest guest]

If I'm not mistaken, I believe Dr Goldberg to be quite critical of ABA.

Chris

> Message: 1

> Date: Fri, 02 Nov 2001 21:33:33 -0000

> From: dmccreary@...

> Subject: EDUCATION

>

> Dear ,

> I am so sorry for all the grief that you have been put through.

> What state are you in, I'm in Canada so I can't be a lot of help with

> you questions but I'm sure that there are lots of supporters out

> there who will be happy to guide you. Don't let all those uninformed,

> closed minded doctors get you down you are on the right track and

> looking in all the right areas for your son, ABA and Dr. Goldberg. If

> you haven't already call and book an appt. with Dr. G 818-343-1010,

> then begin the diet. You are going to be just fine.

> Mc

>

>

>

>

> ________________________________________________________________________

> ________________________________________________________________________

>

>

>

>

[Guest guest]

In a message dated 11/4/2001 9:09:32 AM Central Standard Time,

angelo@... writes:

>

No, I believe you are mistaken here. I heard Dr. Goldberg say that even with

his treatment, you should keep your therapists as the our children will still

need to catch up to their peers. I have never heard him say anything

critical of ABA.

tracy

[Guest guest]

In a message dated 11/4/2001 1:39:10 PM Central Standard Time,

warrenlea@... writes:

> he criticizes is

> the robotic rote learning that never attempts to assimilate the skill into

>

Much of this depends on the parents. You can't expect strangers to save your

child. You must be willing to do a lot of hard work yourself. If you are

not involved in the formal teaching, you should at least work on generalizing

these same skills in your childs everyday life.

[Guest guest]

I agree with Warren completely, when done CORRECTLY, ABA is an

invaluable asset. My own personal opinion is either doing just the

protocol or just ABA is like treating half the child. I feel

that ABA alone is BEHAVIOR MODIFICATION, when it is combined with the

protocol it then becomes REHABILITATION and helps children catch

up on all those milestones that they have missed and need.

> In a message dated 11/4/01 9:09:37 AM Central Standard Time,

> angelo@c... writes:

>

>

> > If I'm not mistaken, I believe Dr Goldberg to be quite critical

of ABA.

> >

> >

>

> The times that we have talked with Dr. G. about ABA, what he

criticizes is > have been fabulous to work with, and are completely

in sync with the

> biomedical approach Dr. G has taken with our

> the robotic rote learning that never attempts to assimilate the

skill into

> the child's everyday existence. Some ABA trainers do end up doing

this. But

> ABA is practiced/administered in a huge wide variety of ways by a

host of

> different people and organizations, some affiliated with Dr.

Lovaas, who

> created the therapy, and some not. To paint all of ABA with such a

wide

> brush does a disservice to those who DO go the extra mile to make

sure that

> the kids are integrating the skills into their daily lives.

>

> For those interested in a holistic approach to ABA--one that I'm

sure Dr. G

> would find acceptable, if he had the time to investigate it (which

he

> doesn't, since he's spending all of his time trying to help our

kids)--I

> recommend wholeheartedly the Center for Autism and Related

Disorders (CARD)

> out of Woodland Hills, Calif.--in fact, just a couple of miles from

Dr. G's

> Tarzana office. You can access information at

www.CenterForAutism.com. They

son.

>

> Warren

>

>

>

[Guest guest]

Hi Warren,

Just curious, how much does C.A.R.D. charge? Thanks, KathyP

P.S. We met at the Judson College meeting.

Re: Digest Number 928

In a message dated 11/4/01 9:09:37 AM Central Standard Time,

angelo@... writes:

> If I'm not mistaken, I believe Dr Goldberg to be quite critical of ABA.

>

>

The times that we have talked with Dr. G. about ABA, what he criticizes is

the robotic rote learning that never attempts to assimilate the skill into

the child's everyday existence. Some ABA trainers do end up doing this. But

ABA is practiced/administered in a huge wide variety of ways by a host of

different people and organizations, some affiliated with Dr. Lovaas, who

created the therapy, and some not. To paint all of ABA with such a wide

brush does a disservice to those who DO go the extra mile to make sure that

the kids are integrating the skills into their daily lives.

For those interested in a holistic approach to ABA--one that I'm sure Dr. G

would find acceptable, if he had the time to investigate it (which he

doesn't, since he's spending all of his time trying to help our kids)--I

recommend wholeheartedly the Center for Autism and Related Disorders (CARD)

out of Woodland Hills, Calif.--in fact, just a couple of miles from Dr. G's

Tarzana office. You can access information at www.CenterForAutism.com. They

have been fabulous to work with, and are completely in sync with the

biomedical approach Dr. G has taken with our son.

Warren

[Guest guest]

Hi,

I disagree, Dr.G has told me on a few occasions that I shouldn't be allowing

anyone to be doing strict drills on my son and that he should always be treated

like a child. He has also said that he thought that very good O.T., speech

therapy by a good speech pathologist, and Developmental therapy was all he would

recommend. I don't know that he knows all that much about all of the ABA

programs that are out there, because I have heard there are so many different

types, so I really think you have to find out for yourself what therapies will

help your child. KathyP

Re: Digest Number 928

In a message dated 11/4/2001 9:09:32 AM Central Standard Time,

angelo@... writes:

>

No, I believe you are mistaken here. I heard Dr. Goldberg say that even with

his treatment, you should keep your therapists as the our children will still

need to catch up to their peers. I have never heard him say anything

critical of ABA.

tracy

[Guest guest]

Dr. Goldberg has told me on many occasions that I would be better off

with Dr. Fosnot at $150 per hour than my therapists. He has been very

critical of ABA and has suggested that we stop. We did go to Dr. Fosnot

every month for one year and yes, she was helpful but it became cost

prohibitive. Each child is different and each family is unique.

Lici

Re: Digest Number 928

In a message dated 11/4/2001 9:09:32 AM Central Standard Time,

angelo@... writes:

>

No, I believe you are mistaken here. I heard Dr. Goldberg say that even

with

his treatment, you should keep your therapists as the our children will

still

need to catch up to their peers. I have never heard him say anything

critical of ABA.

tracy

[Guest guest]

Just a little input.. i refuse blood transfusions for religious reasons but

look at all the different diseases that would not be spread so rampant if we had

followed God's command.. " ...Keep abstaining from .. blood... " Acts 15:28, 29 .

I am NOT trying to preach but just hit me when read this about the Pakistan

children.

Still got it tho!! LOL

Dawn

Message: 5

Date: Thu, 13 Jun 2002 02:24:32 -0500

From: " "

Subject: Containing hepatitis C - Pakistan

Containing hepatitis C

A recent study conducted by the National Institute of Child Health has some

shocking findings regarding the spread of hepatitis C through blood transfusion

in Pakistan. Though not deadly in all cases - the death rate is under two per

cent - hepatitis C can lead to other complications, including liver cancer,

which can be fatal.

The study confirmed the rise in the spread of hepatitis C in Karachi, Lahore and

Islamabad through unsafe blood transfusions, particularly among the poorer

sections of society. It went on to say that 60 per cent of the children

suffering from thalassaemia - who require regular transfusions - were found to

be infected with hepatitis C, which puts some 60,000 families in the country at

grave risk of contracting the disease.

These disturbing facts call for serious soul searching on the part of those

involved in the administration of public and private hospitals and clinics.

Public hygiene standards in Pakistan are among the poorest in the world, and

people contract infectious diseases by eating in an unclean environment, by

going to roadside dentists and barbers, by using infected syringes and through

ear-piercing.

Unfortunately, hospitals and clinics, as reported by the study, add to the

spread of deadly diseases. Maybe it is time to follow the example of the

incinerators installed at bigger public hospitals, which serve as a pool

facility for destroying hospital waste generated by smaller hospitals in the

same city.

The government should seriously advocate the pooling of blood transfusion

facilities among hospitals and clinics along similar lines, so that the spread

of hepatitis C and other infectious diseases through unsafe transfusions can be

contained effectively.

http://www.dawn.com/2002/03/03/ed.htm#3

[Guest guest]

Just a little input.. i refuse blood transfusions for religious reasons but

look at all the different diseases that would not be spread so rampant if we had

followed God's command.. " ...Keep abstaining from .. blood... " Acts 15:28, 29 .

I am NOT trying to preach but just hit me when read this about the Pakistan

children.

Still got it tho!! LOL

Dawn

Message: 5

Date: Thu, 13 Jun 2002 02:24:32 -0500

From: " "

Subject: Containing hepatitis C - Pakistan

Containing hepatitis C

A recent study conducted by the National Institute of Child Health has some

shocking findings regarding the spread of hepatitis C through blood transfusion

in Pakistan. Though not deadly in all cases - the death rate is under two per

cent - hepatitis C can lead to other complications, including liver cancer,

which can be fatal.

The study confirmed the rise in the spread of hepatitis C in Karachi, Lahore and

Islamabad through unsafe blood transfusions, particularly among the poorer

sections of society. It went on to say that 60 per cent of the children

suffering from thalassaemia - who require regular transfusions - were found to

be infected with hepatitis C, which puts some 60,000 families in the country at

grave risk of contracting the disease.

These disturbing facts call for serious soul searching on the part of those

involved in the administration of public and private hospitals and clinics.

Public hygiene standards in Pakistan are among the poorest in the world, and

people contract infectious diseases by eating in an unclean environment, by

going to roadside dentists and barbers, by using infected syringes and through

ear-piercing.

Unfortunately, hospitals and clinics, as reported by the study, add to the

spread of deadly diseases. Maybe it is time to follow the example of the

incinerators installed at bigger public hospitals, which serve as a pool

facility for destroying hospital waste generated by smaller hospitals in the

same city.

The government should seriously advocate the pooling of blood transfusion

facilities among hospitals and clinics along similar lines, so that the spread

of hepatitis C and other infectious diseases through unsafe transfusions can be

contained effectively.

http://www.dawn.com/2002/03/03/ed.htm#3

[Guest guest]

Just a little input.. i refuse blood transfusions for religious reasons but

look at all the different diseases that would not be spread so rampant if we had

followed God's command.. " ...Keep abstaining from .. blood... " Acts 15:28, 29 .

I am NOT trying to preach but just hit me when read this about the Pakistan

children.

Still got it tho!! LOL

Dawn

Message: 5

Date: Thu, 13 Jun 2002 02:24:32 -0500

From: " "

Subject: Containing hepatitis C - Pakistan

Containing hepatitis C

A recent study conducted by the National Institute of Child Health has some

shocking findings regarding the spread of hepatitis C through blood transfusion

in Pakistan. Though not deadly in all cases - the death rate is under two per

cent - hepatitis C can lead to other complications, including liver cancer,

which can be fatal.

The study confirmed the rise in the spread of hepatitis C in Karachi, Lahore and

Islamabad through unsafe blood transfusions, particularly among the poorer

sections of society. It went on to say that 60 per cent of the children

suffering from thalassaemia - who require regular transfusions - were found to

be infected with hepatitis C, which puts some 60,000 families in the country at

grave risk of contracting the disease.

These disturbing facts call for serious soul searching on the part of those

involved in the administration of public and private hospitals and clinics.

Public hygiene standards in Pakistan are among the poorest in the world, and

people contract infectious diseases by eating in an unclean environment, by

going to roadside dentists and barbers, by using infected syringes and through

ear-piercing.

Unfortunately, hospitals and clinics, as reported by the study, add to the

spread of deadly diseases. Maybe it is time to follow the example of the

incinerators installed at bigger public hospitals, which serve as a pool

facility for destroying hospital waste generated by smaller hospitals in the

same city.

The government should seriously advocate the pooling of blood transfusion

facilities among hospitals and clinics along similar lines, so that the spread

of hepatitis C and other infectious diseases through unsafe transfusions can be

contained effectively.

http://www.dawn.com/2002/03/03/ed.htm#3

[Guest guest]

Just a little input.. i refuse blood transfusions for religious reasons but

look at all the different diseases that would not be spread so rampant if we had

followed God's command.. " ...Keep abstaining from .. blood... " Acts 15:28, 29 .

I am NOT trying to preach but just hit me when read this about the Pakistan

children.

Still got it tho!! LOL

Dawn

Message: 5

Date: Thu, 13 Jun 2002 02:24:32 -0500

From: " "

Subject: Containing hepatitis C - Pakistan

Containing hepatitis C

A recent study conducted by the National Institute of Child Health has some

shocking findings regarding the spread of hepatitis C through blood transfusion

in Pakistan. Though not deadly in all cases - the death rate is under two per

cent - hepatitis C can lead to other complications, including liver cancer,

which can be fatal.

The study confirmed the rise in the spread of hepatitis C in Karachi, Lahore and

Islamabad through unsafe blood transfusions, particularly among the poorer

sections of society. It went on to say that 60 per cent of the children

suffering from thalassaemia - who require regular transfusions - were found to

be infected with hepatitis C, which puts some 60,000 families in the country at

grave risk of contracting the disease.

These disturbing facts call for serious soul searching on the part of those

involved in the administration of public and private hospitals and clinics.

Public hygiene standards in Pakistan are among the poorest in the world, and

people contract infectious diseases by eating in an unclean environment, by

going to roadside dentists and barbers, by using infected syringes and through

ear-piercing.

Unfortunately, hospitals and clinics, as reported by the study, add to the

spread of deadly diseases. Maybe it is time to follow the example of the

incinerators installed at bigger public hospitals, which serve as a pool

facility for destroying hospital waste generated by smaller hospitals in the

same city.

The government should seriously advocate the pooling of blood transfusion

facilities among hospitals and clinics along similar lines, so that the spread

of hepatitis C and other infectious diseases through unsafe transfusions can be

contained effectively.

http://www.dawn.com/2002/03/03/ed.htm#3

[Guest guest]

I thought about that too but, I suppose I would have

died if not for the 28 pints. Stuck between a rock

and a hardplace or a catch 22 type situation. They

would have went to a Judge anyway and got permission

and would be given the blood anyway. FL is like that

not sure of other states.

Connie

--- Curlykew <curlykew12@...> wrote:

>

> Just a little input.. i refuse blood transfusions

> for religious reasons but look at all the different

> diseases that would not be spread so rampant if we

> had followed God's command.. " ...Keep abstaining

> from .. blood... " Acts 15:28, 29 .

__________________________________________________

[Guest guest]

I thought about that too but, I suppose I would have

died if not for the 28 pints. Stuck between a rock

and a hardplace or a catch 22 type situation. They

would have went to a Judge anyway and got permission

and would be given the blood anyway. FL is like that

not sure of other states.

Connie

--- Curlykew <curlykew12@...> wrote:

>

> Just a little input.. i refuse blood transfusions

> for religious reasons but look at all the different

> diseases that would not be spread so rampant if we

> had followed God's command.. " ...Keep abstaining

> from .. blood... " Acts 15:28, 29 .

__________________________________________________

[Guest guest]

Look how many children died because of things written in bibles and

korans..

Containing hepatitis C - Pakistan

Containing hepatitis C

A recent study conducted by the National Institute of Child Health has some

shocking findings regarding the spread of hepatitis C through blood transfusion

in Pakistan. Though not deadly in all cases - the death rate is under two per

cent - hepatitis C can lead to other complications, including liver cancer,

which can be fatal.

The study confirmed the rise in the spread of hepatitis C in Karachi, Lahore

and Islamabad through unsafe blood transfusions, particularly among the poorer

sections of society. It went on to say that 60 per cent of the children

suffering from thalassaemia - who require regular transfusions - were found to

be infected with hepatitis C, which puts some 60,000 families in the country at

grave risk of contracting the disease.

These disturbing facts call for serious soul searching on the part of those

involved in the administration of public and private hospitals and clinics.

Public hygiene standards in Pakistan are among the poorest in the world, and

people contract infectious diseases by eating in an unclean environment, by

going to roadside dentists and barbers, by using infected syringes and through

ear-piercing.

Unfortunately, hospitals and clinics, as reported by the study, add to the

spread of deadly diseases. Maybe it is time to follow the example of the

incinerators installed at bigger public hospitals, which serve as a pool

facility for destroying hospital waste generated by smaller hospitals in the

same city.

The government should seriously advocate the pooling of blood transfusion

facilities among hospitals and clinics along similar lines, so that the spread

of hepatitis C and other infectious diseases through unsafe transfusions can be

contained effectively.

http://www.dawn.com/2002/03/03/ed.htm#3

[Guest guest]

Look how many children died because of things written in bibles and

korans..

Containing hepatitis C - Pakistan

Containing hepatitis C

A recent study conducted by the National Institute of Child Health has some

shocking findings regarding the spread of hepatitis C through blood transfusion

in Pakistan. Though not deadly in all cases - the death rate is under two per

cent - hepatitis C can lead to other complications, including liver cancer,

which can be fatal.

The study confirmed the rise in the spread of hepatitis C in Karachi, Lahore

and Islamabad through unsafe blood transfusions, particularly among the poorer

sections of society. It went on to say that 60 per cent of the children

suffering from thalassaemia - who require regular transfusions - were found to

be infected with hepatitis C, which puts some 60,000 families in the country at

grave risk of contracting the disease.

These disturbing facts call for serious soul searching on the part of those

involved in the administration of public and private hospitals and clinics.

Public hygiene standards in Pakistan are among the poorest in the world, and

people contract infectious diseases by eating in an unclean environment, by

going to roadside dentists and barbers, by using infected syringes and through

ear-piercing.

Unfortunately, hospitals and clinics, as reported by the study, add to the

spread of deadly diseases. Maybe it is time to follow the example of the

incinerators installed at bigger public hospitals, which serve as a pool

facility for destroying hospital waste generated by smaller hospitals in the

same city.

The government should seriously advocate the pooling of blood transfusion

facilities among hospitals and clinics along similar lines, so that the spread

of hepatitis C and other infectious diseases through unsafe transfusions can be

contained effectively.

http://www.dawn.com/2002/03/03/ed.htm#3