Guest guest Posted October 4, 2004 Report Share Posted October 4, 2004 , You are doing great! It is so important to double check everything. Mistakes happen so often. It is so hard to do the diet and be on medications as well. There is so much interaction that is very poorly understood. Diet affects the meds and meds affect the diet. Keep on working with the diet and keeping good records. Who knows? Someday it may all make sense! Bill luvmybrats2 wrote: > > Hello, it's been a bit, sorry. I've been trying to catch up in > school as I got so far behind with Kalob being in the hospital and > such. We've also been having problems with school, finally decided > to pull him out of the one he was in and put him back at the old one > after the nurse was going to send home some extra pills of his that > happened to be his seizure meds! > > She insisted that he was on 600mg tabs and these were 400mg, he's > never been on 600mg tabs, which proves my point, that they screwed > up his meds which landed him in the hospital with felbamate level of > 78, when it's normally at least 102. Now he's on a higher dose and > his seizures are a bit worse and i'm wondering if the unnecessary > uppage was too much as his levels are now 150's. Don't know if that > makes any sense... There was much more to pulling him out, but I > didn't feel that he was safe there and there was no talking to the > teacher, she just didn't understand a word I said... > > Diet wise Kalob's doing pretty good. I finally got him to eat mayo! > He LOVES his cheesecake and keto pancakes! > > Ketones are holding at 160 still and he's finally eating all 3 meals > and starting to get hungry inbetween so we do have two snacks a day > if necessary. Now our problem is he is into EVERYTHING! hehe... > > We had to go out and buy two baby gates and stack them in the > doorway as he learned to pull the wheel chair that we were using as > a gate out of the doorway. The only gate I could find that was tall > enough was 100.00 and I wasn't paying that much! He's almost 4ft > tall, he's getting so big! > > Sooo, Kalob should be back in school regularly by Wednesday, > hopefully i'll have more time to spend on here... Please don't > discount me, I really enjoy talking with you guys. You have helped > me more than you can imagine to get through the rough points so far, > and I hope that I can return the favor sometime... > > > > > > Quote Link to comment Share on other sites More sharing options...
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