Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 TO anyone who is thinking of doing this it is worth it but it is also really scary I would do it all again because of the improvment that Casey has made I just wish I had had a parent to talk to before because of what Casey was like afer the surgery. She was basicly a vegatable for the first two days and then a light switch came on and she started slowly doing other things it was worth it in our case. Just know it is hard to see what your child has to go through but there is a light at the end of it all. Casey is doing great we are seeing a 50% reduction with her seizures and she saying things she has not said for years. life is so much better and the doctors are saying it is only going to get better. Carol Casey's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 Can you give us details as to where you did it and who the surgeon was? How did you choose this place and person? Corpus Callosotomy > > TO anyone who is thinking of doing this it is worth it but it is > also really scary I would do it all again because of the improvment > that Casey has made I just wish I had had a parent to talk to before > because of what Casey was like afer the surgery. She was basicly a > vegatable for the first two days and then a light switch came on and > she started slowly doing other things it was worth it in our case. > Just know it is hard to see what your child has to go through but > there is a light at the end of it all. Casey is doing great we are > seeing a 50% reduction with her seizures and she saying things she > has not said for years. life is so much better and the doctors are > saying it is only going to get better. > Carol Casey's mom > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 it was done at Memorial Herman Hospital in Houston Texas Casey's nero in Oklahoma sent us to Dr Whelless there and he had Dr Baumgardner do the surgery they work very closely on all the surgical cases. He is the leading surgeon in the United states that was closes to us that had done the surgry on children, He is great one of the nices people you could ever meet. We were very infomed about what to expect when Casey woke up and how she would do as time goes on. Carol Casey's mom > Can you give us details as to where you did it and who the surgeon was? How > did you choose this place and person? > Corpus Callosotomy > > > > > > TO anyone who is thinking of doing this it is worth it but it is > > also really scary I would do it all again because of the improvment > > that Casey has made I just wish I had had a parent to talk to before > > because of what Casey was like afer the surgery. She was basicly a > > vegatable for the first two days and then a light switch came on and > > she started slowly doing other things it was worth it in our case. > > Just know it is hard to see what your child has to go through but > > there is a light at the end of it all. Casey is doing great we are > > seeing a 50% reduction with her seizures and she saying things she > > has not said for years. life is so much better and the doctors are > > saying it is only going to get better. > > Carol Casey's mom > > > > > > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last > resort! " > > > > List is for parent to parent support only. > > It is important to get medical advice from a professional > keto team! > > Subscribe: ketogenic-subscribe > > Unsubscribe: ketogenic- unsubscribe > > > > > > Quote Link to comment Share on other sites More sharing options...
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