Guest guest Posted September 28, 2004 Report Share Posted September 28, 2004 Sorry to hear about the seizure, it's so unfair! I know about keeping track and trying to see a pattern, it's so hard, I still can't see a pattern with all the notes I make. The only thing I have noticed is when she is very sleepy like yesterday, (she fell asleep at 3:00 in the afternoon, had some seizures while sleeping and didn't wake up until 3:00 am in the morning after a seizure woke her up) and she skips a meal, she doesn't seize as much. We never fasted Kristan when we started the diet, but now I'm starting to think if she skips meals which is kinda fasting a tiny bit, it seems to help her. So, it makes me wonder why she is still having so many seizures! Her seizures are down a little, but still too many. I hope the rest of Lily's day goes well. Satnam, mom to Kristan, 22 months today Keto kid since August 2003 > I feel as if I know you just a little bit, I've been reading most of > the posts for a while. I'm new to the diet and don't know too much > about it. Lily started on March 17, 2004. She turned 3 on August 17. > Our nice interlude is over, she had a fairly strong seizure this > morning, necessitating the Diastat. So, now we'll start counting > again and hoping for more seizure free periods. > > I'm sure the diet is helping on this. The most we had since they > started (delayed start at 18 months after bacterial meningitis at 1 > month) and were identified was 5-6 days, mostly 3-4 days. She seems > to be having good periods and rough periods. I'm trying to keep > track, but haven't noticed any real patterns. Her meds are really low > now and don't make her so sleepy. I'd love for her to be off them, > but maybe she needs just a little. Too soon to tell. > > Hope Kristan is doing well! > > Take care, > > Caitlin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 kristansmommy wrote: > Sorry to hear about the seizure, it's so unfair! I know about > keeping track and trying to see a pattern, it's so hard, I still > can't see a pattern with all the notes I make. The only thing I have > noticed is when she is very sleepy like yesterday, (she fell asleep > at 3:00 in the afternoon, had some seizures while sleeping and didn't > wake up until 3:00 am in the morning after a seizure woke her up) and > she skips a meal, she doesn't seize as much. We never fasted Kristan > when we started the diet, but now I'm starting to think if she skips > meals which is kinda fasting a tiny bit, it seems to help her. So, it > makes me wonder why she is still having so many seizures! Her > seizures are down a little, but still too many. Too many calories?? , 's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Hi Caitlin, the chiro appointment went well. Time will tell. Glad to hear no more seizures for Lily since the last one. Satnam > > Thanks for your kind thoughts about Lily. I think I read that > was not feeling well over Thanksgiving, either. I'm so sorry to hear > that. I read that is going to a chiropractor as well. Hey, > I firmly believe that if it doesn't hurt, give it a try. I hope both > girls are doing well and will continue to do so. > > Lily is getting off the last of the Topamax. I think that last wean > is making her a little cranky, but of course, I can't be sure. I am > happy to have her off the topamax, of course. She hasn't had a > seizure since last Thursday, but was sleepy for days and days. > > I've been very busy at work these past weeks, so I'm sorry for not > being a better correspondent. > > Best, > > Caitlin Quote Link to comment Share on other sites More sharing options...
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