Re: casey/corpus collasotomy

[Guest guest]

We are considering one for my son. He has drop and generalized tonic

seizures. Where did you have it done? Are you saying she did leads on the

brain (grid mapping) for a week prior to the CC? My neuro said he would

just do an MRI and EEG before...but didn't have to do more invasive than

that. Wondering about that.

Barb Swoyer, Jake's mom

Re: casey and corpus collasotomy

> Casey has genrelized tonic clonic seizures that would start on one

> side of the brain and move to the other side. She has had many mri's

> and eeg's they were abnormal and showed some abnormal tissue they

> said this was caused from the seizures. She had an inercranial EEg

> for 7 days before her corpus collasotomy. This is how we new that it

> was the way to go

> If you have any other quistions don't hessatate to ask

> Carol Caseys Mom

>

>

>

>

>

>

> > I'm curious about that procedure. What kind of seizures? Did you

> have a

> > abnormal MRI or CT?

> >

> > THanks

> >

> >

> >

> >

[Guest guest]

Have you heard of this procedure for drop seizures? Do they call your drops

atonics? Just curious. Lately we're questioning what kind of seizures he

is having. After all of these years, still wondering. He has head drops that

sometimes involve shoulders when he will lean forward.

[Guest guest]

Yes, yes, yes, that's why they are suggesting it for Jake.

Re: casey/corpus collasotomy

> Have you heard of this procedure for drop seizures? Do they call your

drops

> atonics? Just curious. Lately we're questioning what kind of seizures

he

> is having. After all of these years, still wondering. He has head drops

that

> sometimes involve shoulders when he will lean forward.

>

>

>

>

>

[Guest guest]

There was a boy at the hospital that did have drop seizures he had

a partal only 70% seperation of the corpus. I would ask your doctor

about it or if you want I could give the number to Casey's nero in

Texas I don't know where you are so not sure if it would help?

Carol Casey's mom

> Have you heard of this procedure for drop seizures? Do they call

your drops

> atonics? Just curious. Lately we're questioning what kind of

seizures he

> is having. After all of these years, still wondering. He has

head drops that

> sometimes involve shoulders when he will lean forward.

>

>

>

>

>

[Guest guest]

Yes she did have the grids placed because they were hoping she could

have the damaged portion removed but found out after that it was to

big and involved both the right and left frontal lobs. We did the

surgrey in Houston Texas at Memorial Herman hospital in the EMU unit.

It was so worth it to do the operation Casey is doing so much better

and is talking, walking and eating so much better. Just know taht

after the surgery that he is going to be basicly a vegatable for the

first day or two and then it is like a light switch comes on and

things will slowly come back. We were able to go home 5 days after

the surgery because Casey did so well.

Carol Casey's mom

> > > I'm curious about that procedure. What kind of seizures? Did

you

> > have a

> > > abnormal MRI or CT?

> > >

> > > THanks

> > >

> > >

> > >

> > >