Re: High ketones the culprit? to Caitlin

September 28, 2004

I hope Lily has the progress that has had! And if I may ask, how

do you know her ketones rise and fall with such accuracy? I use the

sticks, and Lily is almost always in the last two colors on the large

end. The numbers I read here mean nothing to me. I can only tell if

she's in large ketosis or not. The strips haven't been turning so

quickly lately, but other than that, I don't know how to fine tune

things.

Caitlin

September 28, 2004

I check her urine with almost every pee! :-) After having her go into acidosis

and be really sick, I am overly conscious of ketones. I keep a close eye on

them. She is almost always at the 80 during the day. If she drinks and drinks

it may go lower. By evening, I have concluded since last night's seizure, she

must be at 160 (the highest) and cannot have a whole lot of water after dinner,

or that lowers them. 's prime seizure time is at about 5 a.m. Her ketones

must be high enough to stay high through the night until she is awake in the

morning. She had 20 seizure free days and I let her go to bed with lower than

usual ketones and my poor baby paid for my mistake. Nasty seizure. I hate 'em.

You can bet the ketones were higher tonight! ... 's mumma

cchatch1402 cchatch1402@...> wrote: I hope Lily has the progress that

has had! And if I may ask, how

do you know her ketones rise and fall with such accuracy? I use the

sticks, and Lily is almost always in the last two colors on the large

end. The numbers I read here mean nothing to me. I can only tell if

she's in large ketosis or not. The strips haven't been turning so

quickly lately, but other than that, I don't know how to fine tune

things.

Caitlin

" The Ketogenic Diet....a realistic treatment option, NOT just a last resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional keto

team!

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