Re: Can you replace MCT oil with Flax Seed Oil?/

September 27, 2004

Hi - hope you don't mind if I jump in - I tried adding flaxseed oil to

Lily's diet, and I don't think it was too successful. She was on a

3.75 ratio and 875 calories a day. I lowered her ratio a tad to 3.5

and stopped the flaxseed oil. She was having an upswing in seizures

and I think her ketones might have been too high. I went back to a

butter/safflower oil combo, which she seems to tolerate better. She

had a nice 2 week seizure free period, with a mild episode yesterday.

On the BM issue, hers are nasty. She either doesn't go at all, or

just has runny diarrhea. God-awful and impossible to contain. We use

Miralax, but can't seem to find the happy medium.

For the flaxseed oil, you'd need to have the recipes recalculated.

It's not on the Stanford excel program, which is what I use and it's

not interchangeable.

Best,

Caitlin

> > Re: replacing MCT with flax oil

> > Be really careful with the flax oil....I tried to replace the MCT

> Rebekah has been on for the past three years, just recently. I

> decided to keep her on the MCT until all of her meds were gone

> because as soon as I started to decrease it her ketones also

dropped.

> I tried replacing part of it with MCT..only about 3 mls with flax

oil

> and by the end of the day she had a MAJOR explosive runny BM....so

> just a warning to be cautious since flax tends to get things moving

> rather quickly....at least in her case it did!!!

> > LaVerna, mom to Rebekah

> >

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