Speech-Language Pathologist- I think my child is apraxic.

[Guest guest]

Hello all,

I am a speech-language pathologist from Connecticut and I am new to

this group. I was searching the internet for some information because

I think my 17 month old daughter may be apraxic. Does anyone know a

good pediatric neurologist in Connecticut? I have worked primarily

with children with autism and with adults in SNF. I have 2 children

(a 17 month old and a 3 month old). My husband and I are looking

forward to learning more about our daughter's " late talking " and

solving some of mommy's worries. I look forward to chatting with

everyone about their experiences and knowledge. Thank you, Kristy

[Guest guest]

I am in CT and my 29 mo. old son is Apraxic and on the Autism Spectrum. We saw

a ped. neuro and it was a waste of time. All she did was rule out CP and write

that her impression is that his oromotor difficulties are due to Apraxia and

that he may be on the Autism Spectrum and reccommended we follow up with a

developmental or neurodevelopmental pediatrician. We saw one of the few in CT

on the 18th and FINALLY got an actual written diagnosis of oromotor apraxia and

autism spectrum disorder. I would reccommend seeing a dev. ped. first and

foremost, if they feel there's more going on neurologically than the apraxia

they can make the referral to the neuro. We saw Dr. Deepa Limaye in Farmington

and loved her. There is also Dr. Ann Milanese at CT Childrens Med. Center in

Hartford, buy her wait list is over a year and is no longer taking new patients.

Dr. Avni-Singer at Yale is no longer seeing pt's for dev. disorders...just

regular peds. The woman dev ped at Yale (can't

remember her name) doesn't see pt's because she is an attending. There is a

new dev ped in Canton, I don't remember her name, but she does not take ins and

is rather pricey. There is Schwartz (not a dev ped) at Ct communications

center in Ridgefield that does eval and has a good program for apraxia according

to some people. hope this helps.

blbaa <blbaa@...> wrote:

Hello all,

I am a speech-language pathologist from Connecticut and I am new to

this group. I was searching the internet for some information because

I think my 17 month old daughter may be apraxic. Does anyone know a

good pediatric neurologist in Connecticut? I have worked primarily

with children with autism and with adults in SNF. I have 2 children

(a 17 month old and a 3 month old). My husband and I are looking

forward to learning more about our daughter's " late talking " and

solving some of mommy's worries. I look forward to chatting with

everyone about their experiences and knowledge. Thank you, Kristy

[Guest guest]

,

Thank you so much. I may have more questions as I figure things out (not sure

if she is apraxic yet). She has some sounds and 2 words, but some of the

earlier developing sounds are not there and she shows some difficulty imitating.

She has 10 or less signs and is able to express herself with signs and gestures

and some speech. She is so young so it is sometimes hard to figure out if she

is a late talker or apraxic. How is your son doing now? How long have you been

trying to get a diagnosis? Thank you again for this information. Kristy

wendy mazza <wendybird115@...> wrote:

I am in CT and my 29 mo. old son is Apraxic and on the Autism

Spectrum. We saw a ped. neuro and it was a waste of time. All she did was rule

out CP and write that her impression is that his oromotor difficulties are due

to Apraxia and that he may be on the Autism Spectrum and reccommended we follow

up with a developmental or neurodevelopmental pediatrician. We saw one of the

few in CT on the 18th and FINALLY got an actual written diagnosis of oromotor

apraxia and autism spectrum disorder. I would reccommend seeing a dev. ped.

first and foremost, if they feel there's more going on neurologically than the

apraxia they can make the referral to the neuro. We saw Dr. Deepa Limaye in

Farmington and loved her. There is also Dr. Ann Milanese at CT Childrens Med.

Center in Hartford, buy her wait list is over a year and is no longer taking new

patients. Dr. Avni-Singer at Yale is no longer seeing pt's for dev.

disorders...just regular peds. The woman dev ped at Yale (can't

remember her name) doesn't see pt's because she is an attending. There is a new

dev ped in Canton, I don't remember her name, but she does not take ins and is

rather pricey. There is Schwartz (not a dev ped) at Ct communications

center in Ridgefield that does eval and has a good program for apraxia according

to some people. hope this helps.

blbaa <blbaa@...> wrote:

Hello all,

I am a speech-language pathologist from Connecticut and I am new to

this group. I was searching the internet for some information because

I think my 17 month old daughter may be apraxic. Does anyone know a

good pediatric neurologist in Connecticut? I have worked primarily

with children with autism and with adults in SNF. I have 2 children

(a 17 month old and a 3 month old). My husband and I are looking

forward to learning more about our daughter's " late talking " and

solving some of mommy's worries. I look forward to chatting with

everyone about their experiences and knowledge. Thank you, Kristy

[Guest guest]

,

Thank you so much. I may have more questions as I figure things out (not sure

if she is apraxic yet). She has some sounds and 2 words, but some of the

earlier developing sounds are not there and she shows some difficulty imitating.

She has 10 or less signs and is able to express herself with signs and gestures

and some speech. She is so young so it is sometimes hard to figure out if she

is a late talker or apraxic. How is your son doing now? How long have you been

trying to get a diagnosis? Thank you again for this information. Kristy

wendy mazza <wendybird115@...> wrote:

I am in CT and my 29 mo. old son is Apraxic and on the Autism

Spectrum. We saw a ped. neuro and it was a waste of time. All she did was rule

out CP and write that her impression is that his oromotor difficulties are due

to Apraxia and that he may be on the Autism Spectrum and reccommended we follow

up with a developmental or neurodevelopmental pediatrician. We saw one of the

few in CT on the 18th and FINALLY got an actual written diagnosis of oromotor

apraxia and autism spectrum disorder. I would reccommend seeing a dev. ped.

first and foremost, if they feel there's more going on neurologically than the

apraxia they can make the referral to the neuro. We saw Dr. Deepa Limaye in

Farmington and loved her. There is also Dr. Ann Milanese at CT Childrens Med.

Center in Hartford, buy her wait list is over a year and is no longer taking new

patients. Dr. Avni-Singer at Yale is no longer seeing pt's for dev.

disorders...just regular peds. The woman dev ped at Yale (can't

remember her name) doesn't see pt's because she is an attending. There is a new

dev ped in Canton, I don't remember her name, but she does not take ins and is

rather pricey. There is Schwartz (not a dev ped) at Ct communications

center in Ridgefield that does eval and has a good program for apraxia according

to some people. hope this helps.

blbaa <blbaa@...> wrote:

Hello all,

I am a speech-language pathologist from Connecticut and I am new to

this group. I was searching the internet for some information because

I think my 17 month old daughter may be apraxic. Does anyone know a

good pediatric neurologist in Connecticut? I have worked primarily

with children with autism and with adults in SNF. I have 2 children

(a 17 month old and a 3 month old). My husband and I are looking

forward to learning more about our daughter's " late talking " and

solving some of mommy's worries. I look forward to chatting with

everyone about their experiences and knowledge. Thank you, Kristy

[Guest guest]

We knew before he was 2 he was Apraxic. It has taken us until last week to get

the official giagnosis from the doctors. He has one intelligible word " mama " .

He uses signs, though most of the time we have to prompt him to. We got him to

say " mama " by cueing him with our hands. He has great intonation...but outside

of the family no one would understand him. We have become pretty well versed in

" samspeak " . He also has the oral apraxia...he can not blow bubbles, blow out a

candle, never did raspberries or tongue play. He can now blow bubbles in water

as long as he has a straw in his mouth to form his lips and prompt him to blow

the air through it. He usually breathes through his nose and his speech is

hypernasal and glottal. He talks with his mouth closed. It's hard because if

you put any pressure on them to make a letter sound or say a word they have a

harder time than if it were spontaneous. We have been working on combining

sounds and words with physical

activity. We are working on " H " and will have him knock down a tower of blocks

or find something and say " ha ha " . It works in small amounts at the time were

doing it. Most professionals will not diagnose a child with apraxia under the

age of 3 and have a harder time doing it under the age of 2....because it does

resemble articulation disorders at times and it's hard to get a child that you

to even begin the type of therapy needed and useful to treat it. But you gotta

push for it. We are also working on ruling out a diagnosis of Velopharyngeal

Incompetence since he is hypernasal and glottal and has a lot of air escaping

from his nose when trying to talk instead of his mouth. We see the specialist

for that on 12/6. It could be an actual defect in structure or just plain

incompetence caused by the Apraxia itself. We are increasing his 1hour twice a

week speech therapy to 2 hours twice a week. Due to his Autism he would do

better if the therapists came only 2 days a

week for 2 hours at a time instead of 4 days a week for 1 hour at a time.

Hopefully he will do okay with the increase and not pull back on us again. It's

all trial and error. Hopefully you find someone that will lead you in the right

direction.

K G <blbaa@...> wrote:

,

Thank you so much. I may have more questions as I figure things out (not sure if

she is apraxic yet). She has some sounds and 2 words, but some of the earlier

developing sounds are not there and she shows some difficulty imitating. She has

10 or less signs and is able to express herself with signs and gestures and some

speech. She is so young so it is sometimes hard to figure out if she is a late

talker or apraxic. How is your son doing now? How long have you been trying to

get a diagnosis? Thank you again for this information. Kristy

wendy mazza <wendybird115@...> wrote:

I am in CT and my 29 mo. old son is Apraxic and on the Autism Spectrum. We saw a

ped. neuro and it was a waste of time. All she did was rule out CP and write

that her impression is that his oromotor difficulties are due to Apraxia and

that he may be on the Autism Spectrum and reccommended we follow up with a

developmental or neurodevelopmental pediatrician. We saw one of the few in CT on

the 18th and FINALLY got an actual written diagnosis of oromotor apraxia and

autism spectrum disorder. I would reccommend seeing a dev. ped. first and

foremost, if they feel there's more going on neurologically than the apraxia

they can make the referral to the neuro. We saw Dr. Deepa Limaye in Farmington

and loved her. There is also Dr. Ann Milanese at CT Childrens Med. Center in

Hartford, buy her wait list is over a year and is no longer taking new patients.

Dr. Avni-Singer at Yale is no longer seeing pt's for dev. disorders...just

regular peds. The woman dev ped at Yale (can't

remember her name) doesn't see pt's because she is an attending. There is a new

dev ped in Canton, I don't remember her name, but she does not take ins and is

rather pricey. There is Schwartz (not a dev ped) at Ct communications

center in Ridgefield that does eval and has a good program for apraxia according

to some people. hope this helps.

blbaa <blbaa@...> wrote:

Hello all,

I am a speech-language pathologist from Connecticut and I am new to

this group. I was searching the internet for some information because

I think my 17 month old daughter may be apraxic. Does anyone know a

good pediatric neurologist in Connecticut? I have worked primarily

with children with autism and with adults in SNF. I have 2 children

(a 17 month old and a 3 month old). My husband and I are looking

forward to learning more about our daughter's " late talking " and

solving some of mommy's worries. I look forward to chatting with

everyone about their experiences and knowledge. Thank you, Kristy

[Guest guest]

Time for omega 3 + vit E.

A good starting point: 2 capsules EFA + 1 EPA (from nordic natural)

plus 400 IU of alpha-d-tocophorol (NOT alpha " dl " tocophorol.

If you are impressed over the next 2-4 weeks, because normal babbling

develops, the ability to pucker etc and generally more attempts to

repeat...double the dose ie give it twice a day and add a gamma

tocophorol (I use Jarrow Gamma 300) to one of your doses.

The capsules are more stable than the liquid, so worth it to just pop

the capsule with a sharp fork tip or something similar, and put it in

food, juice, yogurt...or squeeze onto a tablespoon and give straight

if tolerated. You may be pleasantly surprised with the results.

-

> Hello all,

> I am a speech-language pathologist from Connecticut and I am new to

> this group. I was searching the internet for some information

because

> I think my 17 month old daughter may be apraxic. Does anyone know a

> good pediatric neurologist in Connecticut? I have worked primarily

> with children with autism and with adults in SNF. I have 2 children

> (a 17 month old and a 3 month old). My husband and I are looking

> forward to learning more about our daughter's " late talking " and

> solving some of mommy's worries. I look forward to chatting with

> everyone about their experiences and knowledge. Thank you, Kristy

>

[Guest guest]

Time for omega 3 + vit E.

A good starting point: 2 capsules EFA + 1 EPA (from nordic natural)

plus 400 IU of alpha-d-tocophorol (NOT alpha " dl " tocophorol.

If you are impressed over the next 2-4 weeks, because normal babbling

develops, the ability to pucker etc and generally more attempts to

repeat...double the dose ie give it twice a day and add a gamma

tocophorol (I use Jarrow Gamma 300) to one of your doses.

The capsules are more stable than the liquid, so worth it to just pop

the capsule with a sharp fork tip or something similar, and put it in

food, juice, yogurt...or squeeze onto a tablespoon and give straight

if tolerated. You may be pleasantly surprised with the results.

-

> Hello all,

> I am a speech-language pathologist from Connecticut and I am new to

> this group. I was searching the internet for some information

because

> I think my 17 month old daughter may be apraxic. Does anyone know a

> good pediatric neurologist in Connecticut? I have worked primarily

> with children with autism and with adults in SNF. I have 2 children

> (a 17 month old and a 3 month old). My husband and I are looking

> forward to learning more about our daughter's " late talking " and

> solving some of mommy's worries. I look forward to chatting with

> everyone about their experiences and knowledge. Thank you, Kristy

>