Re: Hi i'm new ! - Nicola (again) - to Deb

[Guest guest]

When does he start? Sounds like you need to get him on it right away. Poor

little guy. If he has a chance to get free from the nasty seizures, the diet

will be it! Give it your best shot! I am eager to hear he has started and how

he is doing. Remember, it sometimes can take a while to " kick in. " Other times

it is immediate good results. Hopefully, for Matt, it will be immediate. He

needs some relief! .

R CROSSLAND r.crossland1@...> wrote:Hi again Nicola

Matt has infantile spasms (west syndrome) a rare type of epilepsy which left

untreated can lead to severe learning disabilites - and matts had no sz control!

He also has other sz types ( a list is easier)

Adversive

Absence

Clonic

Tonic

(has done 1 major tonic-clonic)

Myoclonic

Think thats it ! Aswell as the spasms (IS)

Just pray the diet (when he eventually goes on it )will have some effect for

him.

Deb

NickyBW@... wrote:

The MCT diet has a liquid called liquigen(or MCT oil) added to food/drinks,

it is not all liquid.Its worth reading about the classical diet as well as

they are both creating ketosis and thus have the same side effects and lots of

other similarities.

What type of epilepsy does your son have?

Nicola