Frustrated meals THANKS to ALL

[Guest guest]

Thanks for the quick response. I had an error on the second meas total calories

was 309 not 390. I have the Stanford meal planner. My daughter talked at length

with the dietetian. They do some by hand and use SHS North American planner. All

the planners are a little different. The dietetian told Kim that she had a

little girl that was seizure free and started having seizures again. The mom

told her she had been doing her own meals for about 2 weeks on the Stanford

planner. Apparently what ever you do, you have to be consisent. It was the

slight difference that started her seizures again.

I know we have to be patient, but these kids have been through so much, you want

it done right. has gotten the side effects from every med she has been on,

kidney stones, light sensitive, rash, and the last on dilantin, had an inflamed

liver, plus they don't help her seizures, just seem to make them worse. They now

only use diastat as needed.

Thanks again for you input. I joined the group when we knew was going to

start the diet. Just from what I've read, you guys are a great support and have

a wealth of knowledge to share.

Georgia, 's grandma 9/13/04