Re: Frustrated meals THANKS to ALL

September 21, 2004

You have the right answer. It must be consistent. That's why we shy away

from processed food as much as possible. And the new labelling

requirements which are not very accurate are making the diet more

difficult to do.

You also have to double check everything, just like you did, to find

mistakes.

It sounds like you have a relatively knowledgable dietician. But double

check everything she does anyway!

There are still some problems with the meals you had. Did you find out

why they weren't adding up.

Bill

Guserbean@... wrote:

> Thanks for the quick response. I had an error on the second meas

> total calories was 309 not 390. I have the Stanford meal planner. My

> daughter talked at length with the dietetian. They do some by hand

> and use SHS North American planner. All the planners are a little

> different. The dietetian told Kim that she had a little girl that was

> seizure free and started having seizures again. The mom told her she

> had been doing her own meals for about 2 weeks on the Stanford

> planner. Apparently what ever you do, you have to be consisent. It

> was the slight difference that started her seizures again. I know we

> have to be patient, but these kids have been through so much, you

> want it done right. has gotten the side effects from every med

> she has been on, kidney stones, light sensitive, rash, and the last

> on dilantin, had an inflamed liver, plus they don't help her

> seizures, just seem to make them worse. They now only use diastat as

> needed. Thanks again for you input. I joined the group when we knew

> was going to start the diet. Just from what I've read, you guys

> are a great support and have a wealth of knowledge to share. Georgia,

> 's grandma 9/13/04

>

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