Re: Kalob-New Keto Kid/

[Guest guest]

,

Kalob's 3rd day of keto sounds just like my 11 year old son's.

Ehtna was fine for the first few days, and just as we were about to

leave the hospital, he started throwing up. Even The thought of food

made him feel sick. We went home anyway, since we were already

checked out, and I thought maybe I could prepare more tasty meals

for him. But he remained sick to his stomach for several days,

throwing up meals and not wanting to eat. I know now that it was

his body adjusting to the ketones. Relief finally came on Sunday

morning.(we initiated keto on Tuesday) I made a rootbeer float

using his cream allotment (or maybe only half of it at that point),

sugar-free rootbeer and ice crushed in my food processor (snow cone

machine or just a hammer would work, too.) He sipped this and I

could see the relief literally flood his body. Finally something

tasted good! If you are staying away from asparteme, you could use

club soda, cream, crushed ice, sweetner and orange flavoring (We

call it an orange julius). It really sounds to me like Kalob is

adjusting to ketosis. Keep checking his glucose level and as long

as that is high enough, just hang in there. I'll bet things will

improve for him as his body adjusts. Also, don't try to give him

full meals, try 1/2 meals until his appetite returns. I think Ethan

lived on rootbeer floats for a few days. He lost about 10 of his 71

pounds, but he eventually got that all back. We had a very rough

start to keto, but knowing I had no other options, and with the

support of this group, I kept going. Today my son is seizure free,

off medicine, and keeping up at school with very little help from

the aid who last year assisted him full time. You can do it!

Gretchen

> Again. We just got home last night from restarting the diet after

> being off for a year about. I have to admit that this time around

it

> has been a NIGHTMARE!

>

> Not sure how many of you would remember us, or some may know us

from

> EFA, but i'm , mom to 6yo Kalob who has epilepsy resulting

from

> a traumatic brain injury. We just got home from the hospital last

> night where we've been since last Thursday, when Kalob went

> completely unresponsive after what were guessing was a seizure. I

> say it like that because he normally doesn't have a post ictal

> period after seizures (myoclonic jerks). We were supposed to be

> admitted on Tuesday to start keto but they just kept us over the

> weekend and we started on Monday.

>

> I hate to bombard everyone, but we are already having PROBLEMS! We

> didn't go through this last time, last time things went smoothly.

>

> They sent Kalob home last night, but he's vomiting EVERYTHING

since

> we've been home. He was in the hospital but they figured that he

> would be fine, that he just had a bad day. Personally I think his

> ratio may be too high, and he's too ketotic??

>

> When you test his urine, the strip instantly goes darker than the

> darkest block on the bottle. He keeps going through periods of

> EXTREME sleepiness, spaciness, throws up, doesn't want to eat.

Then,

> if we give him sugar water (the dietician showed me to do this) he

> perks right up.

>

> His dexi in the hospital went as low as 54, but mainly ranged 59-

67.

> THey didn't send us home with a monitor but my husbands cousin has

> one and i've been checking it anyway.

>

> I'm nervous, and scared for him. Part of me wants to say screw the

> diet, but this is our last non-surgical option and the only

surgical

> option we have is VNS so were giving this our all. Any tips?

Ideas?

> Why is this happening? He is on a 4:1 ratio and at 1250 calories.

>

> I'm gonna try to slow drip a ketocal meal into him this am and see

> how he does, i've given him his meds early so that if he does

vomit

> those will stay down. I'm fearing were gonna end up back in for

> dehydration if this doesn't stop soon, he threw up just sugar free

> jello last night! And the neurologist that was on call when I

paged

> him got upset cuz I woke him up! The dietician had told me once

> before that if something like this happened they should page her

but

> they insist theres no way to get in touch with her... UGH!

>

> Sorry for the book here, i'm terrified. I hope to get to know you

> all better, and look forward to seeing those of you that I do know

> from EFA's site... Thanks for anything that you guys can add to

> this, ya ole pros! hehe...