She hates the diet-all the food!

[Guest guest]

The little girl I care for started the diet in July. Her seizures

have been reduced, but we are having to force feed her every meal.

She hates the butter and the cream. Does anyone have any ideas to

help us? When she initially started the diet she ate great, and her

seizures were drastically reduced. She was able to walk indpendently

for virtually the first time in about a year. Her quality of life

seemed to be improving, but this only lasted about 2 weeks. Her

seizures are still improved from the past (she's having 20-30 a day

now), but her quality of life is no better than before the diet. She

is lethargic, she is not sleeping well and meal times are a

disaster. Can anyone help?

Thanks and God Bless,

[Guest guest]

,

Great that you had success early on with the diet.

There could be many different reasons for the problems you are having

now. Most of them are very common on the diet, so most people have to

deal with them. You should read Dr. Freeman's book several times cover

to cover to find the answers you need. I will give you some of the

possible problems. There are others in the book. You have to read the

book cover to cover because it is difficult to locate things in it.

Ketones are too high

Calories are too high (most likely) or too low

Constipation

Reflux

Dehydration or the opposite, too much water

Errors in calculating or doing meals

Insufficient vitamins or minerals (this may take a little longer to show up)

Illness

Inexperienced keto team

You have to be patient and a bit of a sleuth to work things out. It

requires superhuman courage, patience and determination, but I am sure

that you will succeed.

Bill

tiffcheyenne wrote:

> The little girl I care for started the diet in July. Her seizures

> have been reduced, but we are having to force feed her every meal.

> She hates the butter and the cream. Does anyone have any ideas to

> help us? When she initially started the diet she ate great, and her

> seizures were drastically reduced. She was able to walk indpendently

> for virtually the first time in about a year. Her quality of life

> seemed to be improving, but this only lasted about 2 weeks. Her

> seizures are still improved from the past (she's having 20-30 a day

> now), but her quality of life is no better than before the diet. She

> is lethargic, she is not sleeping well and meal times are a

> disaster. Can anyone help?

> Thanks and God Bless,

>

>

>

>

>

[Guest guest]

Have they checked her blood gasses for metabolic acidosis? Your

description of her situation sounds exactly like my daughter's

situation several months ago. I actually called the dietician for

new meals b/c I thought my child was getting bored with the ones we

fed her- she was screaming through meals and refusing to eat. She

was also lethargic and seemed to not have any energy- a vast

difference from what we were used to. The dietician saw the signs

and told the neuro, who ordered blood work. It turned out that my

daughter was critically acidotic- she was at a very dangerous acid

level. They began treating it and, unfortunately, could not get it

under control while on keto, which is why we had to wean. BUT most

kids can be treated for acidosis and stay on the diet. In fact, our

neuro said Langan is the first child whose acidosis she has not been

able to get under control while on keto. So I would encourage the

parents to talk to the neuro about checking bicarbs. It can make a

world of difference, and the treatment (normally) is very simple-

sodium bicarbonate by mouth. We got to the point where we could tell

if the acidosis was back before we did bloodwork, just by Langan's

mood and how she handled meals.

Good luck and keep us posted!

, mom to Langan, 2 yrs old and keto kid 11/03 to 9/7/04 but keto

kid at heart forever!

> The little girl I care for started the diet in July. Her seizures

> have been reduced, but we are having to force feed her every meal.

> She hates the butter and the cream. Does anyone have any ideas to

> help us? When she initially started the diet she ate great, and

her

> seizures were drastically reduced. She was able to walk

indpendently

> for virtually the first time in about a year. Her quality of life

> seemed to be improving, but this only lasted about 2 weeks. Her

> seizures are still improved from the past (she's having 20-30 a day

> now), but her quality of life is no better than before the diet.

She

> is lethargic, she is not sleeping well and meal times are a

> disaster. Can anyone help?

> Thanks and God Bless,

>