Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 OK, everyone, here's my latest query. As Skyler's seizures are all nocturnal, awhile back we began giving him a small (200 cal) tube feed at 3 AM. The idea was to keep him in ketosis throughout the night as his seizures get decidedly worse from around 4 AM on. For the last week or so, the sudden increase seems to be occurring around 3:30. Questions: How long does it take for a ketotic meal entering the stomach to produce a rise in blood ketones? Would an earlier feed be more appropriate? Would a higher calorie feed be worth investigating? (Some of the literature on the MCT Oil diet, our version, shows a natural circadian decline in ketone levels at 4 AM although not all patients have seizures at that time, it is indeed our 'witching hour.' Anyway, that's why we give the extra 'snack' in the night. The article mentions a bolus of MCT at that time, but I've concocted a formula that is in keeping w/the rest of his dietary ratios, fearful that a bolus of oil would give him immediately diarrhea. Suppose it's worth trying, though....?) Thanks, as always. Tracey Quote Link to comment Share on other sites More sharing options...
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