RE: New to group - to Mike - Stanford ? J H Planner outdated?????

[Guest guest]

Hmmmmm.... I am wondering if the Stanford planner is outdated, too. When I

began doing 's meal plans a friend used her Excel & Stanford and did them

for me. However, since I did not know the exact amounts had been receiving

for proteins, carbs, and fats, she plugged in some of the meals my dietitian had

done for us and they were varied, sometimes quite a bit. If the dietitian was

using something more current than Stanford, maybe the Stanford is not great,

either.

I am having my friend check out some of 's favorite meals, comparing what I

have figured on the JH planner with the Stanford, to see how they compare.

Might it be that only those who can get on the one that is restricted to health

professionals on the internet are getting current updated food values??? Time

to find out, as it may be affecting all who are doing thier own meal plans.

Thanks for letting me know. Actually, it does not appear that we are having

trouble, and I know the keto diet is not forgiving, so will see when my friend

works them all up.

, 's mumma

is@... wrote:

Jane, who is the dietician at Hopkins, does all of our meal plans. She uses

the JH Meal Planner but admitted it was somewhat outdated. We were told

that one of the staff, I forget who, has a son that is working on an updated

version.

Mike

_____

From: Falk

Sent: Friday, September 10, 2004 9:49 PM

To: ketogenic

Subject: RE: New to group - to Mike

Mike

What planner is s Hopkins having you use. I guess I am concerned,

althought have not had any problems, as said Langan's keto team

thought the JH planner outdated... That is what I am using and it sure is

user friendly and am not having any problems, that I am aware of, anyway.

What do they have you using???? .

is@... wrote:

We just got back from Hopkins where Broc started the Keto. I asked about

the Atkins and we talked about it briefly. From what I understood the

Atkins diet calls for 20 grams of carbs per day. Hopkins is using 10 grams.

Mike

_____

From: Falk

Sent: Friday, September 10, 2004 5:47 PM

To: ketogenic

Subject: Re: New to group

Dear

Welcome to " the group! "

Yes, J Hopkins is doing a 6 month study for volunteer children, putting them

on a version of the Atkins diet. If you don't want to wait to get into the

keto diet, that may be an option.

There is an Atkins group for seizure-disabled called atkins4seizures. To

subscribe type in atkins4seizures-subscribe . You will get

answers about how the Atkins diet works for children, and you may want to be

in the 6 month trial they are conducting.

, 's mumma

Stettz catatao@...> wrote:

Hi,

I just joined this group and thought I should introduce myself.

My 7 year old daughter is currently on the waiting list for the keto program

at Hopkins (they tell me it will likely be until January), and I am hoping

to prepare myself as well as possible by learning from the group. Her

tentative diagnosis is idiopathic atypical absence seizures or juvenile

absence. My daughter has been on Zarontin, Depakote and Topamax. Her

seizures were much worse on all three drugs in terms of frequency, duration,

and seizure type. She also experienced other side effects such as

excessive weight gain, dizziness, sadness, and agitiation. While she was

taking the drugs, I felt that my daughter had completely disappeared. She

is not taking any medications at the moment. I am giving her various

supplements. Eating junk food, sugar or a great deal of carbohydrates seems

to be a seizure trigger for her in my opinion. I believe strongly that a

dietary approach will likely help her significantly.

I am wondering if anyone who has done the program at Hopkins would be

willing to provide more detailed info about what " it's really like " ,

especially during the first week of hospitalization. This could be

off-group if you prefer, since probably not everyone is interested in the

logistical specifics of Hopkins.

On a separate note, does anyone have any experience with the Atkins Diet for

seizure control? I know that they are in the early stages of research on

this, but I would be curious to hear other's opinions on this since this was

something that was offered to us as a possible option for my daughter.

Thanks for your input.

Re: Heavy cream

Bill,

Lately, the only thing we could think of was that about the same time we

saw

an increase in seizures was the time we changed creams. We have used

thesame brand for years and have been fine. All of the sudden, these

seizures

started happening daily and we thought it might be the probiotics or the

cream.

We stopped the probiotics and the seizures have slowed down but not

completely. Now, I'm going back to the old cream. All of this has

happened since the

constipation issues in July. We just can't get him back on track. Its

sooooooooo frustrating. You would think after 3 years on this diet, the

fine

tuning would be over. Not so.

Thanks for your help

[Guest guest]

We did some research into the differences in meal plans when stella was

first initiated back in May. She was never in ketosis so to speak and

when I compared the programs the JH planner and Stanford planner to

the keto calculator which many dieticians use here in the US they were

all way off. I've since erased all the nutritional data and reentered

it using the usda web site or the british values as they are more

accurate than the US. In England they have to put the nutritional data

to the nearest .1g while the US has a law which only suggests the 1g.

Huge difference. It's a lot of work, but so worth it when you see the

differences. Basically for most of Stella's meals she only getting a

3.2 at best before changing all the nutritional info. Now it's always

4.o-1. If i'm not sure on the nutritional info I contact the company

direct and ask for their unrounded #'s.

amanda

On Saturday, September 11, 2004, at 12:04 PM, Falk wrote:

> Hmmmmm.... I am wondering if the Stanford planner is outdated, too. 

> When I began doing 's meal plans a friend used her Excel &

> Stanford and did them for me.  However, since I did not know the exact

> amounts had been receiving for proteins, carbs, and fats, she

> plugged in some of the meals my dietitian had done for us and they

> were varied, sometimes quite a bit.  If the dietitian was using

> something more current than Stanford, maybe the Stanford is not great,

> either.

>

> I am having my friend check out some of 's favorite meals,

> comparing what I have figured on the JH planner with the Stanford, to

> see how they compare.

>

> Might it be that only those who can get on the one that is restricted

> to health professionals on the internet are getting current updated

> food values???  Time to find out, as it may be affecting all who are

> doing thier own meal plans.

>

> Thanks for letting me know.  Actually, it does not appear that we are

> having trouble, and I know the keto diet is not forgiving, so will see

> when my friend works them all up.

>

> , 's mumma

>

> is@... wrote:

> Jane, who is the dietician at Hopkins, does all of our meal plans. 

> She uses

> the JH Meal Planner but admitted it was somewhat outdated.  We were

> told

> that one of the staff, I forget who, has a son that is working on an

> updated

> version.

>

> Mike

>

>   _____ 

>

> From: Falk

> Sent: Friday, September 10, 2004 9:49 PM

> To: ketogenic

> Subject: RE: New to group - to Mike

>

>

> Mike

>

> What planner is s Hopkins having you use.  I guess I am concerned,

> althought have not had any problems, as said Langan's keto team

> thought the JH planner outdated...  That is what I am using and it

> sure is

> user friendly and am not having any problems, that I am aware of,

> anyway.

> What do they have you using????  .

>

> is@... wrote:

> We just got back from Hopkins where Broc started the Keto.  I asked

> about

> the Atkins and we talked about it briefly.  From what I understood the

> Atkins diet calls for 20 grams of carbs per day.  Hopkins is using 10

> grams.

>

> Mike

>

>   _____ 

>

> From: Falk

> Sent: Friday, September 10, 2004 5:47 PM

> To: ketogenic

> Subject: Re: New to group

>

>

> Dear

>

> Welcome to " the group! "

>

> Yes, J Hopkins is doing a 6 month study for volunteer children,

> putting them

> on a version of the Atkins diet.  If you don't want to wait to get

> into the

> keto diet, that may be an option. 

>

> There is an Atkins group for seizure-disabled called atkins4seizures. 

> To

> subscribe type in atkins4seizures-subscribe .   You

> will get

> answers about how the Atkins diet works for children, and you may want

> to be

> in the 6 month trial they are conducting.

>

> , 's mumma

>

> Stettz catatao@...> wrote:

> Hi,

>

> I just joined this group and thought I should introduce myself. 

>

> My 7 year old daughter is currently on the waiting list for the keto

> program

> at Hopkins (they tell me it will likely be until January), and I am

> hoping

> to prepare myself as well as possible by learning from the group.  Her

> tentative diagnosis is idiopathic atypical absence seizures or juvenile

> absence. My daughter has been on Zarontin, Depakote and Topamax.  Her

> seizures were much worse on all three drugs in terms of frequency,

> duration,

> and seizure type.  She also experienced  other side effects such as

> excessive weight gain, dizziness, sadness, and agitiation.  While she

> was

> taking the drugs, I felt that my daughter had completely

> disappeared.   She

> is not taking any medications at the moment.  I am giving her various

> supplements.  Eating junk food, sugar or a great deal of carbohydrates

> seems

> to be a seizure trigger for her in my opinion.  I believe strongly

> that a

> dietary approach will likely help her significantly.

>

> I am wondering if anyone who has done the program at Hopkins would be

> willing to provide more detailed info about what " it's really like " ,

> especially during the first week of hospitalization.   This could be

> off-group if you prefer, since probably not everyone is interested in

> the

> logistical specifics of Hopkins.

>

> On a separate note, does anyone have any experience with the Atkins

> Diet for

> seizure control?  I know that they are in the early stages of research

> on

> this, but I would be curious to hear other's opinions on this since

> this was

> something that was offered to us as a possible option for my daughter. 

>

> Thanks for your input. 

>

>

>   Re: Heavy cream

>

>

>   Bill,

>   Lately, the only thing we could think of was that about the same

> time we

> saw

>   an increase in seizures was the time we changed creams.  We have

> used 

>   thesame brand for years and have been fine.  All of the sudden, these

> seizures

>   started happening daily and we thought it might be the probiotics

> or  the

> cream. 

>   We stopped the probiotics and the seizures have slowed down but  not

>   completely.  Now, I'm going back to the old cream.  All of this  has

> happened since the

>   constipation issues in July.  We just can't get him  back on track. 

> Its

>   sooooooooo frustrating.  You would think after 3  years on this

> diet, the

> fine

>   tuning would be over.  Not so.

>

>   Thanks for your help

>  

>

>

>