Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 Don't know how pushy you want to be or can be, but you could try reminding them that legally you are entitled to all that info as Nate's parent I know you are having such a rough time, wish we could help more caronath wrote: > , > > I would like to get ël's medocal infos but they don't want > to...I asked them several times but I'll do it again, they said, > controling blood gaz, he's on acidosis but I've not any numbers... > I'll tell you if I can get something! > > Carolyn > > > > > Re: Wish Us Luck!!!/ > > > Carolyn > Since your drs know so little about the diet I would really > question > what they mean exactly when they say iel is having a problem > with > acidosis. They might be right but since the diet tends to make you > a bit > acidic and that is considered normal for the diet they may be > misinterpreting the bloodwork. Is there any way you can get an > actual > copy of the blood gasses and post the numbers here? > , 's mom > > caronath wrote: > > > , > > > > Your story sounds our... > > aël is on keto diet since the end of july 04 and he's on > > > acidosis, We're now at 2.1 ratio too but he's still on acidosis, > the > > problem is that I don't know what to do with this, neuro from > hospital > > didn't say anything ....We are alone!!!! > > I'm very scared too because Nath was a bit better but still > have > > tonic clonic seizures but he's so miserable that it hurts me a > lot > > to see him poor , tired, sick, white and his rings under his > eyes!!! > > I wish you good luck of course for the following and if you > could > > tell me more about metabolic acidosis it'll be great...I give > you my > > email caronath@... . > > I give since yesterday Nath bicarbonate of sodium in powder > but I > > don't even know how much to give him.... > > > > Lots of love > > > > Carolyn, aël's mum > > > > PS/ Saro gave me the idea to ask you,thanks to her! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 , Thank you beeing with us because I'm so desesperated and " fed up " of trying to get my rights! I'll phone again tomorrow the hospital and try to get a neuro...but very difficult to contact them, they say they call you back and they never do it! Carolyn Re: Wish Us Luck!!!/ > > > Carolyn > Since your drs know so little about the diet I would really > question > what they mean exactly when they say iel is having a problem > with > acidosis. They might be right but since the diet tends to make you > a bit > acidic and that is considered normal for the diet they may be > misinterpreting the bloodwork. Is there any way you can get an > actual > copy of the blood gasses and post the numbers here? > , 's mom > > caronath wrote: > > > , > > > > Your story sounds our... > > aël is on keto diet since the end of july 04 and he's on > > > acidosis, We're now at 2.1 ratio too but he's still on acidosis, > the > > problem is that I don't know what to do with this, neuro from > hospital > > didn't say anything ....We are alone!!!! > > I'm very scared too because Nath was a bit better but still > have > > tonic clonic seizures but he's so miserable that it hurts me a > lot > > to see him poor , tired, sick, white and his rings under his > eyes!!! > > I wish you good luck of course for the following and if you > could > > tell me more about metabolic acidosis it'll be great...I give > you my > > email caronath@... . > > I give since yesterday Nath bicarbonate of sodium in powder > but I > > don't even know how much to give him.... > > > > Lots of love > > > > Carolyn, aël's mum > > > > PS/ Saro gave me the idea to ask you,thanks to her! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Carolyn, Hope you get some answers from the hospital. How is ael doing now that he's been on lower ratio for some time? Saro caronath wrote: > , > > Thank you beeing with us because I'm so desesperated and " fed up " of trying to get my rights! > I'll phone again tomorrow the hospital and try to get a neuro...but very difficult to contact them, they say they call you back and they never do it! > > Carolyn > > Re: Wish Us Luck!!!/ > > > > > > Carolyn > > Since your drs know so little about the diet I would really > > question > > what they mean exactly when they say iel is having a problem > > with > > acidosis. They might be right but since the diet tends to make you > > a bit > > acidic and that is considered normal for the diet they may be > > misinterpreting the bloodwork. Is there any way you can get an > > actual > > copy of the blood gasses and post the numbers here? > > , 's mom > > > > caronath wrote: > > > > > , > > > > > > Your story sounds our... > > > aël is on keto diet since the end of july 04 and he's on > > > > > acidosis, We're now at 2.1 ratio too but he's still on acidosis, > > the > > > problem is that I don't know what to do with this, neuro from > > hospital > > > didn't say anything ....We are alone!!!! > > > I'm very scared too because Nath was a bit better but still > > have > > > tonic clonic seizures but he's so miserable that it hurts me a > > lot > > > to see him poor , tired, sick, white and his rings under his > > eyes!!! > > > I wish you good luck of course for the following and if you > > could > > > tell me more about metabolic acidosis it'll be great...I give > > you my > > > email caronath@... . > > > I give since yesterday Nath bicarbonate of sodium in powder > > but I > > > don't even know how much to give him.... > > > > > > Lots of love > > > > > > Carolyn, aël's mum > > > > > > PS/ Saro gave me the idea to ask you,thanks to her! > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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