Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 Illness often has this effect on our little ones! The book says to keep them hydrated and not worry too much about getting in all of the meals. Ketosis will return (if it leaves) after the illness is gone and she starts eating again. When my 2.5 year old daughter loses her appetite, we just drop an NG tube and pump her food down her. Good Luck. She'll be ok. Jim Help! Urgent! Dear All, Alice, my 2.5 years old daughter, has been on the diet for 11 months and everything is perfect shape. She has been seizure-free for two months. However, her appetite suddenly dropped a lot & she is just refusing drinking & eating from the day before yesterday for unknown reasons. She ate very well before and usually finished one meal in 5 minutes. Her ketone level is 120-160 even higher all day long. She has a tiny bit of fever because she played a lot with a kid with running nose on Sunday. Now she just refuse to drink and eat. We are worried very much. Any suggestion? Alice's mother " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 Sounds like maybe a flu bug. Have you called your dr & dietician? Will she eat sugar-free jello? Steph Mom to Noah, age 3, med-free, & seizure-free on the keto diet emilyqtang emilyqtang@...> wrote: Dear All, Alice, my 2.5 years old daughter, has been on the diet for 11 months and everything is perfect shape. She has been seizure-free for two months. However, her appetite suddenly dropped a lot & she is just refusing drinking & eating from the day before yesterday for unknown reasons. She ate very well before and usually finished one meal in 5 minutes. Her ketone level is 120-160 even higher all day long. She has a tiny bit of fever because she played a lot with a kid with running nose on Sunday. Now she just refuse to drink and eat. We are worried very much. Any suggestion? Alice's mother " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 I would have her bicarb level checked. Sounds like acidosis to me. It is treatable but can be dangerous so it is important to check. , mom to Langan, 2 yrs old and keto kid since 11/03, slowing weaning from keto due to severe metabolic acidosis > Dear All, > > Alice, my 2.5 years old daughter, has been on the diet for 11 months > and everything is perfect shape. She has been seizure-free for two > months. However, her appetite suddenly dropped a lot & she is just > refusing drinking & eating from the day before yesterday for unknown > reasons. She ate very well before and usually finished one meal in 5 > minutes. Her ketone level is 120-160 even higher all day long. She > has a tiny bit of fever because she played a lot with a kid with > running nose on Sunday. Now she just refuse to drink and eat. We are > worried very much. > > Any suggestion? > > Alice's mother Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2004 Report Share Posted August 26, 2004 You can give her 30cc's of apple juice right now and see if that makes a difference in the way she feels. If so then you definitely know that her ketones are too high right now. This would indicate that it is probably time to lower her ratio. Her situation sounds a lot like 's daughter, . Rhonda Help! Urgent! Dear All, Alice, my 2.5 years old daughter, has been on the diet for 11 months and everything is perfect shape. She has been seizure-free for two months. However, her appetite suddenly dropped a lot & she is just refusing drinking & eating from the day before yesterday for unknown reasons. She ate very well before and usually finished one meal in 5 minutes. Her ketone level is 120-160 even higher all day long. She has a tiny bit of fever because she played a lot with a kid with running nose on Sunday. Now she just refuse to drink and eat. We are worried very much. Any suggestion? Alice's mother " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " List is for parent to parent support only. It is important to get medical advice from a professional keto team! Subscribe: ketogenic-subscribe Unsubscribe: ketogenic-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 When did you introduce the carnitine ? This may be boosting her ketones too high - it can also, (well we found this anyway) as a chain reaction increase med strength from having those ketones going higher, so I'd be v cautious about any dilantin increases you do. Blood levels don't always give a true reflection as to how the med itself is affecting the child, so watch for any seizure increases (toxicity induced) as the meds peak perhaps... Carnitine deficiency could have been a problem diet wise for her, and introducing it may see a good response ketone/seizure wise, but it can also on the othr side of the coin, cause a parodoxical seizure increase, so another one to keep an eye on... With med increases, introducing carnitine, and a calorie increase, as well as an infection, she has a lot going on right now, so you may have to sit tight and see what happens in all depts. I know the 'one change at a time' thing is ideal but like you, we have had to jump in with more than one change at a time in the past, so I know how confusing and frustrating it can all get Hope things are on the improve - those drop attacks are the WORST, hated them with a passion, almost as much as I hated 's helmet - but needs must, safety first ----- Original Message ----- From: Quan Tang Alice is eating and drinking again. She still has some temperature. She sweats a lot during her sleep--there are sweat on her nose, her hair is wet, and T-shirt is wet, which is unusual. She did a blood test last Friday, her dr told us it was usual. Now I am guessing maybe it is a bacteria infection... We don't know if the fever changed her metabolic rate or other, her Dilantin level dropped from 16 last month to 7, which might be the reason why the seizures are going on like crazy. We did increase her calorie by 25cal, and added Carnitine since her level was " very low " . Any thoughts? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 Alice's mom, Most likely she is getting an illness, as you suspect. You may get seizures as a result. Ketones normally go down and glucose goes up with an illness. Treat the illness first. Give her broth and other liquids as tolerated. Gradually reintroduce meals. You may use the " keto eggnog " at first as it is in ratio and she doesn't have to finish it all. Not eating or drinking is like the original regime of fasting to control seizures. Don't worry too much about it. If the fever gets high you can use cool face clothes and/or diabetic cold medicine. Bill emilyqtang wrote: > Dear All, > > Alice, my 2.5 years old daughter, has been on the diet for 11 months > and everything is perfect shape. She has been seizure-free for two > months. However, her appetite suddenly dropped a lot & she is just > refusing drinking & eating from the day before yesterday for unknown > reasons. She ate very well before and usually finished one meal in 5 > minutes. Her ketone level is 120-160 even higher all day long. She > has a tiny bit of fever because she played a lot with a kid with > running nose on Sunday. Now she just refuse to drink and eat. We are > worried very much. > > Any suggestion? > > Alice's mother > > > > Quote Link to comment Share on other sites More sharing options...
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