Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 The diet doesn't work if the child is ill. Don't give up on the drug weans. They can be hell! Bill Quan Tang wrote: > , > > With med-free and diet under so good control, I am so > happy for , and won't be surprised to hear he is > seizure free as well very soon. Thanks for sharing > your successful story. Alice doesn't seem to have any > allergic reaction to food. She is 94cm, 30lb, on 4:1 > ratio, 850cal. We did increased her calorie to 874 > one month ago, and added carnitine since she has > deficiency 330mgx3. Alice is also on Depakote and > Dilantine. We were just about to wean of Dilantine > before her fever. The low fever she has changed her > metabolic rate and did some tricky thing. Her > Dilantine level dropped from 16 to 7--might be the > reason why things went so bad. It also indicate > another thing that we may not get a chance to wean > this drug in the near future. And how I hate this > part--we are boost her drug level up to get control!! Quote Link to comment Share on other sites More sharing options...
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