Re: PREDISONE DECREASE/Venting

[Guest guest]

Hi! They are finally weaning my son off predisone. He is 9 and put on 30+

pounds. He is quite lethargic - depressed like -I assume its related to the

weaning. Does anyone have tips?

This week has been a pain. He has hallucinations from predisone and ringing

in ears - Zithomax we believe....I am going to vent now:

I am so damn sick of these meds and their side effects. The kid is 9 and has

no neck! The kids call him FAT BOY...he woddles when he walks and now sees

things coming out of walls and words coming out of books.

My husband is good for nothing!!! HE just can't cope. He sits and sits and

sits and I do not like it not one little bit!!!!!!!!

Sorry for venting.........it does feel great since who else can I say these

things to......thank you all for being there for me..

Rosemary in New York with three children with CF - they are 11, 9, 5.......

I coined the phrase " BREATHE DAMMIT "

[Guest guest]

Rosemary---The first two times Ash was on Prednisone and she finished her

round, she was like a bear to be around for a few days afterwards.....I got

the first glimpses of what it will be like to be around her when she starts

her period---YIKES!!!! This should pass in few days though. The last two

times she has been on it it did not faze her to come off of it, so I don't

know why it varies each time?!? As far as the ringing, I've heard of Tobi

causing ringing but not Zithromax....I'm sorry I can't be too much help there.

My husband works alot....so I try to do the majority of treatments, etc. BUT

when I've had enough....I always ask him...and helps out but he doesn't help

out unless I ask....what happens when you ask? Tell your husband to get off

the couch and help you.....you have to have the help---you cannot be expected

to do everything!!!

Karin mom to

Austin 11 nocf/asthma

9 cf

[Guest guest]

Where do you get these nursing books? Deb A

[Guest guest]

Rosemary,

Just an FYI. Zithromax does not usually have ear ringing as a side effect.

Most antibiotics or drugs that are metabolized in the kidney also have hearing

side effects but Zithromax is metabolized in the liver primarily.

Hope this helps.

p.s. I am a nurse and I use a nursing drug handbook for work and for my kids

meds that I bought at and Nobles. You can buy nurse's drug books that

tell you everything, Proper doses, side effects, drug interactions, etc.

Everyone should own one. I tell my patients that all the time.

Re: PREDISONE DECREASE/Venting

Rosemary---The first two times Ash was on Prednisone and she finished her

round, she was like a bear to be around for a few days afterwards.....I got

the first glimpses of what it will be like to be around her when she starts

her period---YIKES!!!! This should pass in few days though. The last two

times she has been on it it did not faze her to come off of it, so I don't

know why it varies each time?!? As far as the ringing, I've heard of Tobi

causing ringing but not Zithromax....I'm sorry I can't be too much help there.

My husband works alot....so I try to do the majority of treatments, etc. BUT

when I've had enough....I always ask him...and helps out but he doesn't help

out unless I ask....what happens when you ask? Tell your husband to get off

the couch and help you.....you have to have the help---you cannot be expected

to do everything!!!

Karin mom to

Austin 11 nocf/asthma

9 cf

[Guest guest]

Deb,

I bought mine at and Nobles. You can get them at www.amazon.com too.

Mine is called Saunders Nursing Drug Handbook 2001. There is a lot of medical

terminology there too but if you have a friend who is a nurse or doctor or you

want to email me I can explain the definitions. It's a great deal. they cost

like 39.95. I can write mine off as a job expense so you can probably write

yours off as a medical expense. I have actually caught a couple of mistakes

that my local pharmacy made with Allie's scripts. My doctor wrote Prednisone

20mg po qd x 7days then wo. the pharmacy thought it was 7 days then stop. We

all know you are supposed to wean off steroids and my drug book said that when I

looked it up. I called the pharmacy and they noticed the error. It has been a

lifesaver for my family and my patients. I love it and carry it to work and

keep it on my desk at home. email me if you have any questions.

4Given5@...

Re: PREDISONE DECREASE/Venting

Where do you get these nursing books? Deb A

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

As far as the medical terminology goes there are web pages online where you

can look stuff up like that. I have a list of web sites if you want them.

Karrie 24, asthma n/cf mother to Chasity age 6 1/2, normal and healthy and

Abby age 4 1/2 microcephaly, epilepsy, pachygyria, and possible Cystic

Fibrosis. The list is growing.

www.clik.to/abigail

Re: PREDISONE DECREASE/Venting

>

> Where do you get these nursing books? Deb A

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

,

They have screwed up my daughters med.'s before to they prescribed to strong

of a dose for my youngest. It was after we had started it I about died but

they said the only thing that would happen would that she might get diarrhea.

But thanks for the information. I have to sisters that are nurses I will have

to ask them about it too. Thanks again. Deb A