New Member and question

[Guest guest]

,

Don't know that paint fumes would lower your immunity. However, with most LD

patients, odors can cause nausea, wooziness, dizziness, and the lot. We become

sensitive to colognes, foods, etc. for some reason. I cannot stand the smell of

popcorn, for example. It makes me vomit and so woozy that I feel as though I

will faint. You may want to try a mask, if possible. I wear a CPAP at night

and rule here is, no popping popcorn until that is on my mug. It has helped a

great deal.

Sue

daltondave1 <ash@...> wrote: Hi, My name is , I am 34 and from Iowa.

I was diagnosed with

Late Stage Lyme Disease, Babesiosis, and Bartonella in May, 2002

after a short visit to the Ozarks and a run in with a Lonestar Tick.

It has been a rough road every since. I have a couple of questions

on my mind today:

(1) Has anyone had prolotherapy recommended to them by their

physician and have you seen a difference after treatments?

(2) I work in a factory which has recently required a new paint

proceedure to take place. My office is right next to the paint booth

and the fumes are making me sick (nausiated, dizzy, headache)

everyday. The theory is that the paint fumes may be lowering my

immune system and therefore making my lyme worse. Does this sound

right to anyone? I have noticed that since this has started, my Lyme

has been giving me more problems.

Sincerely,

[Guest guest]

One of my symptoms is I can't take strong chemicals/odors.

the other my LLMD does have, but I dont' need it as I am not in pain.

[ ] New Member and Question

Hi, My name is , I am 34 and from Iowa. I was diagnosed with

Late Stage Lyme Disease, Babesiosis, and Bartonella in May, 2002

after a short visit to the Ozarks and a run in with a Lonestar Tick.

It has been a rough road every since. I have a couple of questions

on my mind today:

(1) Has anyone had prolotherapy recommended to them by their

physician and have you seen a difference after treatments?

(2) I work in a factory which has recently required a new paint

proceedure to take place. My office is right next to the paint booth

and the fumes are making me sick (nausiated, dizzy, headache)

everyday. The theory is that the paint fumes may be lowering my

immune system and therefore making my lyme worse. Does this sound

right to anyone? I have noticed that since this has started, my Lyme

has been giving me more problems.

Sincerely,

[Guest guest]

I believe that exposure can worsen the immune system. For one thing, processing

the chemicals takes glutathione, and when glutathione is depleted the immune

system cannot work well.

Doris

----- Original Message -----

From: Sue Vogan

Don't know that paint fumes would lower your immunity. However, with most LD

patients, odors can cause nausea, wooziness, dizziness, and the lot. We become

sensitive to colognes, foods, etc. for some reason. I cannot stand the smell of

popcorn, for example. It makes me vomit and so woozy that I feel as though I

will faint. You may want to try a mask, if possible.

[Guest guest]

:

I relapsed severely with Lyme while working in an automobile stamping plant. I

was exposed to multiple chemicals and industrial pollution daily.

I strongly believe that the exposure there did exactly what you just described.

Unfortunately, I've been disabled and out of that environment for almost 2 years

and I'm still extremely ill.

Best wishes,

carol aka dizz

[ ] New Member and Question

Hi, My name is , I am 34 and from Iowa. I was diagnosed with

Late Stage Lyme Disease, Babesiosis, and Bartonella in May, 2002

after a short visit to the Ozarks and a run in with a Lonestar Tick.

It has been a rough road every since. I have a couple of questions

on my mind today:

(1) Has anyone had prolotherapy recommended to them by their

physician and have you seen a difference after treatments?

(2) I work in a factory which has recently required a new paint

proceedure to take place. My office is right next to the paint booth

and the fumes are making me sick (nausiated, dizzy, headache)

everyday. The theory is that the paint fumes may be lowering my

immune system and therefore making my lyme worse. Does this sound

right to anyone? I have noticed that since this has started, my Lyme

has been giving me more problems.

Sincerely,

[Guest guest]

It is used by the liver to process / break down chemicals (as well as toxins

produced by normal cells.) You will find a lot of information about it if you

read about how the liver works in its two stages of detoxification. Many people

with chronic illness become depleted of gluathione. You can increase it with

NAC or SAMe (two supplements). But the best way is with undenatured whey

protein such as immunepro and imuplus. I find that if I am going to be exposed

to chemicals, I can drink undenatured whey protein and I can tolerate the

chemicals much better. If I am exposed it also reduces the effects after the

fact.

These processes of the liver are extremely important to many illness. I'm no

expert as my brain is 10% of what it used to be. But I understand the basics

and it helps me choose supplements and understand how to help myself with

treatments. With lyme, the liver has to detox the dead bacteria as well as the

antibiotics. What it actually does is add chemicals to these things so they are

rendered non toxic and can leave the body. I am not so good at explaining. I

copied some information from some other groups I am in. The first relates it to

CFS but explains the problem. It is very complicated, especially at first. But

the important thing is that in order to get better you need to have enough

gluathione in your cells (among other things!) There is a rather inexpensive

test (a couple hundred dollars) that you can do through Great Smokies Labs if

you can get your doctor to order the kit. http://www.gsdl.com/ It is the

comprehensive detox panel. You take an aspirin and a tylenol and a no-doze, and

how you process those 3 chemicals shows how all the parts of the liver are doing

at detoxing. (Among other things it measures glutathione.) I suspect that

sensitivies to chemicals are caused by some of these processes not working

right. Once you find out what parts of the process your liver is not doing,

there are various supplements that are recommended to help. Sometimes

antioxidants, sometimes whey protein, milk thistle, etc. What is good for one

person is bad for another, because one person's phase 1 might be too fast and

another person's too slow. I know you don't know exactly what I'm talking

about, but I just wanted to get you the idea.

Doris

" I think that in many cases CFS is brought on by the depletion of reduced

glutathione, which occurs because of a combination of various stressors

(physical, chemical, biological, mental, and emotional), often together with a

diet low in sulfur-containing amino acids and/or antioxidants. This combination

produces oxidizing free radicals and (in the case of chemical toxins) directly

depletes glutathione, while not providing the wherewithal to rebuild glutathione

or quench free radicals. Once the level of reduced glutathione has dropped

sufficiently low, three enemies of the body (pathogens--such as viruses,

bacteria, and yeasts--, oxidizing free radicals and toxins) are allowed to rise

in concentration and to begin doing their various types of damage, leading the

the manifold symptoms of CFS. I think

that's it in a nutshell for many PWCs, but probably not for all.

" Glutathione plays several essential roles in our protection. It is composed of

three amino acids connected in tandem: glycine, cysteine, and in an unusual bond

to its acidic group, glutamate. Glutathione is not built by the normal machinery

of protein synthesis. The unusual bond to glutamate poses an impossible problem

to a ribosome. Instead, it is constructed from its three component amino acids

by two custom enzymes. The central cysteine is the key to the protection

afforded by glutathione. Its sulfur atom scavenges destructive molecules like

peroxides and free radicals, converting them to harmless compounds. In the

liver, the enzyme glutathione S-transferase takes the sulfur from glutathione

and attaches it to toxic molecules, making them more soluble and easier to

eliminate, similarly to the oxygen added by

cytochrome p450 enzymes. Glutathione also maintains our proteins in their proper

form. Its sulfur atom reacts with unnatural sulfur-sulfur bonds in proteins,

breaking them and allowing the proper pairings to form. This reactive sulfur

also maintains the iron in hemoglobin (page 75) at the proper charge. Relatively

high concentrations of glutathion, found throughout the body, are necessary for

these functions. Cysteine by itself would probably

serve as well, but free cysteine is quite reactive and would be toxic

at this high level.

" Examples of nondenatured (undenatured) whey protein products are ImmunePro,

Immunocal, Imuplus, Immuneplex, Life Extension Enhanced Whey Protein, or others.

Several of them are sold by www.immunesupport.com, among other places. The

reason for taking the general nutritional supplement (such as Sparx, available

from www.krysalis-sparx.com) is that there are several essential vitamins and

minerals that are needed for your cells to synthesize glutathione, utilize it,

and return it to the chemically reduced state after it has been oxidized.

----- Original Message -----

From: Sue Vogan

Thank you, Doris. This makes perfect sense and something I can add to my data

base. So, does glutathione also process other odors? Please, tell me more.

[Guest guest]

On or about Tuesday, January 27, 2004 4:47 PM [GMT+1=CET],

daltondave1 <ash@...> sprinkled letters onto the page, saying:

> (2) I work in a factory which has recently required a new paint

> proceedure to take place. My office is right next to the paint booth

> and the fumes are making me sick (nausiated, dizzy, headache)

> everyday. The theory is that the paint fumes may be lowering my

> immune system and therefore making my lyme worse. Does this sound

> right to anyone? I have noticed that since this has started, my Lyme

> has been giving me more problems.

> Sincerely,

>

I don't know what policies your union have on having an office in the

proximity of a paint booth without adequate ventilation but headaches,

nausea and dizziness are common symptoms with paint fumes. If I'm painting

at home, particulary glosses or cellulose, I find that 1/2 a peeled onion

placed in a saucer in the room reduces these symptoms and smells. Don't know

how... Old wives tale I know, but it might be a temporary help...

Kezzi. . .

[Guest guest]

Hello 1/22/04,

In reference to your comment:

è I believe that exposure can worsen the immune

è system. For one thing, processing the chemicals

è takes glutathione, and when glutathione is depleted the

è immune system cannot work well. Doris

*****Doris you are absolutely right....I am chemically sensitive to many

things and now with dealing with Lyme's makes it worse. Once your immune is

compromised with illness/disease chemical smells can cause you horrendous

breathing

as well as extreme fatigue. I have removed ALL chemicals from my home, as

well as pesticides.

*****I would be extremely concerned regarding this paint issue as this can

also cause you liver problems. I don't thinks a mask unless it is connected to

a ventilator (which all paint companies are required to have from

OSHA).....this is your livelyhood and IMHO I would request a portable ventilator

with mask

while at work. You can make inquiries at your local OSHA office, they are

very helpful, especially when you tell them about your illness.

Angel Huggzz

or Angel

[Guest guest]

Hello 1/22/04,

In reference to your comment:

è I relapsed severely with Lyme while working in an

è automobile stamping plant. I was exposed to multiple

è chemicals and industrial pollution daily. I strongly

è believe that the exposure there did exactly what you

è just described. Unfortunately, I've been disabled and

è out of that environment for almost 2 years and I'm still

è extremely ill. Best wishes, carol aka dizz

*****Carol unfortunately the exposure you received could take years to get

over, IF you EVER get over it.

*****I own a Hepatitis website Message Board: Hepheimers and message boards

Message Board: Hepheimers and have worked as a volunteer within the Hepatitis

communities for 6 years plus and I can assure you that these types of

chemical exposures could do permanent damage and could also cause liver damage.

you

might want to consider joining the IMMUNE Support lists that I belong to, as

you will soon know more than doctors regarding chemical exposures. The

owner/moderator Cyndi knows more about chemical exposures than anyone I have

ever met

in the medical arena. If you are interested in joining that group here is

the information.....it is well worth it I promise.....

immune@... or write to Cyndi at cyndi@... (personal mail)

this woman is a wonderful lady and extremely knowledgeable. She even makes

chemically save products....her soaps are outstanding.....when you write her

tell her you were referred by angls4hope@... for that matter may

use my name....

*****I would suggest that you address this exposure, as well as your Lyme

diagnosis with cyndi, as she can help you detox, while protecting your liver.

Angel Hugggzz

or Angel

Message Board: Hepheimers

http://www.dream-tool.net/tools/messages.mv?index+hepheimers

Hepheimers Hepatitis Hut

http://hepheimers.com/

[Guest guest]

Hello 1/22/04,

In reference to your comment:

è Thank you, Doris. This makes perfect sense and

è something I can add to my data base. So, does

è glutathione also process other odors? Please, tell me

è more.

Let me quote something out of Chronic Fatigue, Fibromyalgia & Environmental

Illness- page 127-128.

One of the most important substances required by the immune system for

optimal

functioning is an amino acid complex called glutathione. However,

supplementation is made difficult by the complexity of the body's system of

delivering glutathione to cells. Canadian researchers figured out a way to

deliver glutathione effectively in the form of natural milk protein

supplement

called Immunocal, and early research suggests it has benefits for chronic

fatigue syndrome, cancer, AIDS, hepatitis and age related conditions such as

Alzheimer's, Parkinson's and arteriosclerosis.

Glutathione is a tripeptide, a small protein consisting of three amino acids

(glutemic acid, cysteine, and glycine) bound together. The substance

functions

as a principal antioxidant, scavenging free radicals and toxins such as lipid

peroxides that would be otherwise damage, even destroy, cells. It

accomplishes

this valuable task by working with and enzyme called glutathione peroxidase.

Further glutathione regulates the activities of other antioxidants such as

vitamins A, C, and E.

However when the body is suffering from oxidative stress, supplies of

Glutathione become depleted. Oxidative stress is a condition in which the

body is unable to detoxify itself completely and is overrun by free radicals

because antioxidants are depleted. Oxidative stress affects the nervous,

immune and endocrine systems, and it may underlie many of the symptoms of

chronic fatigue.

Glutathione exerts another protective and scavenging role in concert with the

liver, the body's main organ of detoxification and internal cleansing. In

the

liver, Glutathione combines with toxins, carcinogens, and waste products as a

way of more effectively securing their elimination from the body. In

addition, Glutathione helps red cell membranes and other cellular proteins

maintain their structure and aids the production of leukotrines, immune

system cells crucial for working against inflammation.

But Glutathione also has an important role in supporting the activity of

white blood cells called lymphocytes (the key players in the body's immune

response) as well as antibodies (specialized immune defense cells). In fact,

for lymphocytes to do their job, Glutathione must be present. The tricky

fact about Glutathione is that you can't simply take in more Glutathione as a

supplement; it must be made insider the cells. In other words, Glutathione

doesn't enter cells directly; rather, it must be made within them by

precursors.

========

Glutathione is the body's master antioxidant. Glutathione

recycles all the antioxidants. A, C, E, etc. NO GLUTATHIONE no live. The

most authoritative book on glutathione is by Dr. Jimmy Gutman, MD associate

professor at McGill University. He frequently lectures on the topic across

North America. Dr. Gutman is a world authority on the role of GSH

(glutathione) in health issues. He is the author of “Glutathione (GSH)

Your Body’s Most Powerful Healing Agent†– a cornerstone work on

GSH and its functions.

Dr. Gutman has pointed out that the research on medline etc. shows that if

a person's glutathione levels are adequate (in very healthy individuals)

the need for Vitamin C is in the range of 500-1000mg per day. (1000 mg when

feeling symptoms of a cold etc). Higher doses can be detrimental because

they deplete Glutathione stores. Even Dr. Mindell who said some contrary

things in his earlier books (which reflected what was known about

glutathione) has endorsed and written a foreword stating that the

information is most accurate.

Angel Huggzzz

or Angel

[Guest guest]

Hi,

I just joined this group to help me navigate the waters of apraxia.

I have a 21/2 yr old with Prader-Willi Syndrome---any others out

there? He is dyspraxic, among other issues of course, and he takes

EFAs. I am a former PS teacher, who now stays at home, and I

homeschool my older son. I have been teaching my younger son sign

language since he was about a year old, and he can sign and

communicate mostly what he wants, but because he is so smart, it is

getting more difficult for him to tell us things. He has been

reaching some walls with sensory issues, and I think that the lack

of ability to speak is getting in the way as well. In other words,

tantrums have been on the rise. He is very bright, and he will

surprise me by asking me detailed questions through his signs and

gestures. I will think to myself, " I didn't even know that he

noticed that! "

So, I have been trying to get him an AAC device, and I have been

told that he needs to start with a picture book. I want the

capability to create more communication pictures for him as we need

them, as well as make picture books so we can start more on his

letters, as he has shown an interest in words. Since I am going to

homeschool him, I am looking for a picture program to help me do

this at home, so that I don't have to keep asking the school

district personnel to print me out pictures, etc. The school

district that will offer him speech services, will use Boardmaker.

They feel the need to be consistent, but he has pointed and

communicated using photographs with us, so I am not concerned about

that. I also found this similar program, but cheaper, called Picture

This, that uses photographs instead of cartoons. What do you all

use at home? Any other suggestions? This is all new to me, and I

am trying to get picture speech off the ground.

Thanks,

Kim

[Guest guest]

>

> Hi,

>

> I just joined this group to help me navigate the waters of

apraxia.

> I have a 21/2 yr old with Prader-Willi Syndrome---any others out

> there? He is dyspraxic, among other issues of course, and he

takes

> EFAs. I am a former PS teacher, who now stays at home, and I

> homeschool my older son. I have been teaching my younger son sign

> language since he was about a year old, and he can sign and

> communicate mostly what he wants, but because he is so smart, it

is

> getting more difficult for him to tell us things. He has been

> reaching some walls with sensory issues, and I think that the lack

> of ability to speak is getting in the way as well. In other

words,

> tantrums have been on the rise. He is very bright, and he will

> surprise me by asking me detailed questions through his signs and

> gestures. I will think to myself, " I didn't even know that he

> noticed that! "

>

> So, I have been trying to get him an AAC device, and I have been

> told that he needs to start with a picture book. I want the

> capability to create more communication pictures for him as we

need

> them, as well as make picture books so we can start more on his

> letters, as he has shown an interest in words. Since I am going

to

> homeschool him, I am looking for a picture program to help me do

> this at home, so that I don't have to keep asking the school

> district personnel to print me out pictures, etc. The school

> district that will offer him speech services, will use

Boardmaker.

> They feel the need to be consistent, but he has pointed and

> communicated using photographs with us, so I am not concerned

about

> that. I also found this similar program, but cheaper, called

Picture

> This, that uses photographs instead of cartoons. What do you all

> use at home? Any other suggestions? This is all new to me, and I

> am trying to get picture speech off the ground.

>

> Thanks,

>

> Kim

Jeanne here. One book is " first words " for babies and toddlers. by

salt, hawksley

>http://www.pwsausa.org/nj/index.htm