Jump to content
RemedySpot.com

Re: Celiac Mentor Program

Rate this topic


Guest guest

Recommended Posts

Guest guest

I like that idea, I also would love a pen pal program for the kids. It would be helpful if my 5 yr old had someone her own age to talk to with Celiac. It would help her to feel she's not the only one on the planet with it.

I would like to propose a Celiac Mentor Program. This would allow new members to have be paired up with an experienced celiac and would make it easier to transfer all of the knowledge that has been accumulated.I would be happy to be a mentor to new members.Mitch Peipert

KATIE B.Happy Summer

Link to comment
Share on other sites

Guest guest

i would agree---my 3 yr old was just diagnosed and i'm just getting involved with the whole gf thing and would love a mentor who is familiar with toddler-friendly gf information....and a pen pal would also be great....

Re: Celiac Mentor Program

I like that idea, I also would love a pen pal program for the kids. It would be helpful if my 5 yr old had someone her own age to talk to with Celiac. It would help her to feel she's not the only one on the planet with it.

I would like to propose a Celiac Mentor Program. This would allow new members to have be paired up with an experienced celiac and would make it easier to transfer all of the knowledge that has been accumulated.I would be happy to be a mentor to new members.Mitch Peipert

KATIE B.Happy Summer

Link to comment
Share on other sites

Guest guest

Sign me up for becoming a mentor! Great idea!

~

>

> I would like to propose a Celiac Mentor Program. This would allow

new

> members to have be paired up with an experienced celiac and would

make

> it easier to transfer all of the knowledge that has been accumulated.

>

> I would be happy to be a mentor to new members.

>

> Mitch Peipert

>

Link to comment
Share on other sites

Guest guest

>

> I would like to propose a Celiac Mentor Program. This would allow

new

> members to have be paired up with an experienced celiac and would

make

> it easier to transfer all of the knowledge that has been accumulated.

>

> I would be happy to be a mentor to new members.

>

> Mitch Peipert

How about trying to group pairs by geographic region? That way folks

are more likely to have access to the same stores and food brands.

Sign me to be a mentor.

Maureen

Northern California

Link to comment
Share on other sites

Guest guest

I like the idea... but do you have any ideas on how to coordinate something like that? I think many members end up emailing each other (offline) once they seem to find a compatible member they seem to click with.... If anyone has any ideas on how to setup a Mentor Program on SillyYaks... I'm all ears! Melonie ~Melonie, leader for ROCK NoVA/Metro DC & owner of SillyYaks, www.groups.yahoo.com/group/SillyYaks __________________________________________________

Link to comment
Share on other sites

Guest guest

Me too --- I am actually going shopping with someone next week to help her get on track w/the diet for her son.

My "Celiac qualifications" are:

a son w/Down Syndrome who was dx 3 1/2 yrs ago, he's 9 yo, he was extremely malnourished, small and sick prior to gf diet. At the moment we have a "mixed" household - gf & non-gf, and also deal with

peanut & tree nut allergies. (No DQ blizzards for us --- wah!) My 3 yo isn't allowed to eat fish/shellfish again until she's 5, per our allergist --- another real pain!!

If anyone thinks I can help them, just let me know. (I may need a mentor sometime soon, considering taking everyone dairy free too. What would be left to eat??)

in TN

Link to comment
Share on other sites

Guest guest

Thats great that youre going shopping with someone who could use

your help! And I like how you listed your " qualifications " !!

Here are my Celiac qualifications:

*Diagnosed with Celiac at age 16 months. Been GF now for 24 yrs.

*Grew up being the only celiac in the family. (mixed household - GF

and non-GF)

*Was the family the GI would refer his other newly diagnosed

patients to for advice & guidance regarding the GF diet.

*Been a child (the ONLY student) with CD in public schools.

*Been a college student living GF in the dorms & dining halls.

*Graduated with a Nutrition degree.

*Currently work in the Food industry.

*Lived for 2 yrs with a Gluten-LOVING roomate (I mean pasta & bread

with every meal!!)

*Give workshops on GF college living & GF bread making with

breadmachines.

*Give seminars to daycare providers on Dealing with Allergies in the

preschool setting (includes top 8 allergens, Celiac, & lactose

intolerance)

*Now living in mixed household with gluten eating husband.

*Currently 3 months pregnant!! (We'll see if we add another celiac

to our family!!)

Let me know if I can be of any help to anyone!!

~ in NH

>

> Me too --- I am actually going shopping with someone next week to

help her get on track w/the diet for her son.

>

> My " Celiac qualifications " are:

> a son w/Down Syndrome who was dx 3 1/2 yrs ago, he's 9 yo, he was

extremely malnourished, small and sick prior to gf diet. At the

moment we have a " mixed " household - gf & non-gf, and also deal with

> peanut & tree nut allergies. (No DQ blizzards for us --- wah!)

My 3 yo isn't allowed to eat fish/shellfish again until she's 5, per

our allergist --- another real pain!!

>

> If anyone thinks I can help them, just let me know. (I may need a

mentor sometime soon, considering taking everyone dairy free too.

What would be left to eat??)

>

> in TN

>

Link to comment
Share on other sites

Guest guest

,

my 3yr old daughter was just diagnosed and I am looking into pre-schools, where she will be the only GF child....would love any advice and/or materials I can provide to the preschool teachers so that they understand all of the issues and can avoid cross-contamination etc. during snack time and arts & crafts time. Thanks much in advance.

akitsm@...

Re: Celiac Mentor Program

Thats great that youre going shopping with someone who could use your help! And I like how you listed your "qualifications"!!Here are my Celiac qualifications:*Diagnosed with Celiac at age 16 months. Been GF now for 24 yrs.*Grew up being the only celiac in the family. (mixed household - GF and non-GF)*Was the family the GI would refer his other newly diagnosed patients to for advice & guidance regarding the GF diet.*Been a child (the ONLY student) with CD in public schools. *Been a college student living GF in the dorms & dining halls.*Graduated with a Nutrition degree.*Currently work in the Food industry.*Lived for 2 yrs with a Gluten-LOVING roomate (I mean pasta & bread with every meal!!)*Give workshops on GF college living & GF bread making with breadmachines.*Give seminars to daycare providers on Dealing with Allergies in the preschool setting (includes top 8 allergens, Celiac, & lactose intolerance)*Now living in mixed household with gluten eating husband.*Currently 3 months pregnant!! (We'll see if we add another celiac to our family!!) Let me know if I can be of any help to anyone!!~ in NH>> Me too --- I am actually going shopping with someone next week to help her get on track w/the diet for her son. > > My "Celiac qualifications" are: > a son w/Down Syndrome who was dx 3 1/2 yrs ago, he's 9 yo, he was extremely malnourished, small and sick prior to gf diet. At the moment we have a "mixed" household - gf & non-gf, and also deal with > peanut & tree nut allergies. (No DQ blizzards for us --- wah!) My 3 yo isn't allowed to eat fish/shellfish again until she's 5, per our allergist --- another real pain!!> > If anyone thinks I can help them, just let me know. (I may need a mentor sometime soon, considering taking everyone dairy free too. What would be left to eat??)> > in TN>

Link to comment
Share on other sites

Guest guest

,

If you need a mentor for going dairy free, I can probably help you. I have not

only celiac, but multiple food allergies to deal with. The allergies aren't

mine....they belong to my nursing babe, but the effect is the same....I don't

eat the allergens.

Currently I can't eat: gluten, dairy, soy and other legumes/beans, rice, eggs

and peanuts.

With my previous baby it was even more restrictive....I could eat rice, but

nothing else from the above list and no fish, tree nuts.

My mentoring qualifications include:

celiac 2.5 years

GF while pregnant and breastfeeding

GF with other food restrictions

maintain a " mixed " household

GF with a large family (10 kids) (ie on a budget)

Have 4 kids eating GF

Re: Celiac Mentor Program

Me too --- I am actually going shopping with someone next week to help her get

on track w/the diet for her son.

My " Celiac qualifications " are:

a son w/Down Syndrome who was dx 3 1/2 yrs ago, he's 9 yo, he was extremely

malnourished, small and sick prior to gf diet. At the moment we have a " mixed "

household - gf & non-gf, and also deal with

peanut & tree nut allergies. (No DQ blizzards for us --- wah!) My 3 yo isn't

allowed to eat fish/shellfish again until she's 5, per our allergist --- another

real pain!!

If anyone thinks I can help them, just let me know. (I may need a mentor

sometime soon, considering taking everyone dairy free too. What would be left

to eat??)

in TN

Link to comment
Share on other sites

Guest guest

,

If you need a mentor for going dairy free, I can probably help you. I have not

only celiac, but multiple food allergies to deal with. The allergies aren't

mine....they belong to my nursing babe, but the effect is the same....I don't

eat the allergens.

Currently I can't eat: gluten, dairy, soy and other legumes/beans, rice, eggs

and peanuts.

With my previous baby it was even more restrictive....I could eat rice, but

nothing else from the above list and no fish, tree nuts.

My mentoring qualifications include:

celiac 2.5 years

GF while pregnant and breastfeeding

GF with other food restrictions

maintain a " mixed " household

GF with a large family (10 kids) (ie on a budget)

Have 4 kids eating GF

Re: Celiac Mentor Program

Me too --- I am actually going shopping with someone next week to help her get

on track w/the diet for her son.

My " Celiac qualifications " are:

a son w/Down Syndrome who was dx 3 1/2 yrs ago, he's 9 yo, he was extremely

malnourished, small and sick prior to gf diet. At the moment we have a " mixed "

household - gf & non-gf, and also deal with

peanut & tree nut allergies. (No DQ blizzards for us --- wah!) My 3 yo isn't

allowed to eat fish/shellfish again until she's 5, per our allergist --- another

real pain!!

If anyone thinks I can help them, just let me know. (I may need a mentor

sometime soon, considering taking everyone dairy free too. What would be left

to eat??)

in TN

Link to comment
Share on other sites

Guest guest

,

If you need a mentor for going dairy free, I can probably help you. I have not

only celiac, but multiple food allergies to deal with. The allergies aren't

mine....they belong to my nursing babe, but the effect is the same....I don't

eat the allergens.

Currently I can't eat: gluten, dairy, soy and other legumes/beans, rice, eggs

and peanuts.

With my previous baby it was even more restrictive....I could eat rice, but

nothing else from the above list and no fish, tree nuts.

My mentoring qualifications include:

celiac 2.5 years

GF while pregnant and breastfeeding

GF with other food restrictions

maintain a " mixed " household

GF with a large family (10 kids) (ie on a budget)

Have 4 kids eating GF

Re: Celiac Mentor Program

Me too --- I am actually going shopping with someone next week to help her get

on track w/the diet for her son.

My " Celiac qualifications " are:

a son w/Down Syndrome who was dx 3 1/2 yrs ago, he's 9 yo, he was extremely

malnourished, small and sick prior to gf diet. At the moment we have a " mixed "

household - gf & non-gf, and also deal with

peanut & tree nut allergies. (No DQ blizzards for us --- wah!) My 3 yo isn't

allowed to eat fish/shellfish again until she's 5, per our allergist --- another

real pain!!

If anyone thinks I can help them, just let me know. (I may need a mentor

sometime soon, considering taking everyone dairy free too. What would be left

to eat??)

in TN

Link to comment
Share on other sites

Guest guest

Thank you , I would love to chat more about it for sure, probably won't have time until next week.

You can email me directly at kelly@...

Thank you!

kelly

Re: Celiac Mentor ProgramMe too --- I am actually going shopping with someone next week to help her get on track w/the diet for her son. My "Celiac qualifications" are: a son w/Down Syndrome who was dx 3 1/2 yrs ago, he's 9 yo, he was extremely malnourished, small and sick prior to gf diet. At the moment we have a "mixed" household - gf & non-gf, and also deal with peanut & tree nut allergies. (No DQ blizzards for us --- wah!) My 3 yo isn't allowed to eat fish/shellfish again until she's 5, per our allergist --- another real pain!!If anyone thinks I can help them, just let me know. (I may need a mentor sometime soon, considering taking everyone dairy free too. What would be left to eat??) in TN

Link to comment
Share on other sites

Guest guest

I too have a 3 year old--almost 4--going into her first year of preschool. I do not know if she will be the only gf child, but it IS an "at risk" preschool. I rather CRINGED when I read they would be providing a "healthy and nutritious snack daily"...I'm picturing graham crackers, whole wheat crackers, cheerios, etc.

I would love suggestions as to dealing with snack time too. Gabby doesn't seem to have celiac...yet...she has 1 gene marker & does not seem bothered by general cross contamination--just by full assult! (eating 3 cookies!) Art projects with cheerios have not bothered her at all. Have not tried play-doh since diagnosis.

One other thing--Gabby is NOT very verbal yet--doesn't understand what will and will not hurt her tummy--and is NOT well understood by other people. (This includes daddy, grandparents who she sees often & just plain strangers) How do I help her let others know she can't eat certain foods if she can't say it? We've thought about medic-alert bracelets but we're not too sure about them...yet.

I am in the process of typing up a letter for the preschool teacher and director--telling of her diagnosis, what steps need to be taken & asking how I can help them. If anyone can think of anything else, I'm all ears...or eyes, since I'll be reading it! Feel free to e-mail me off-list at smidgentigre@...

Thank you, Laurel

PS--we are in the Detroit, MI suburb of Warren--if that helps at all>> ,> my 3yr old daughter was just diagnosed and I am looking into pre-schools, where she will be the only GF child....would love any advice and/or materials I can provide to the preschool teachers so that they understand all of the issues and can avoid cross-contamination etc. during snack time and arts & crafts time. Thanks much in advance.> > > akitsm@...>

Link to comment
Share on other sites

Guest guest

I too have a 3 year old--almost 4--going into her first year of preschool. I do not know if she will be the only gf child, but it IS an "at risk" preschool. I rather CRINGED when I read they would be providing a "healthy and nutritious snack daily"...I'm picturing graham crackers, whole wheat crackers, cheerios, etc.

I would love suggestions as to dealing with snack time too. Gabby doesn't seem to have celiac...yet...she has 1 gene marker & does not seem bothered by general cross contamination--just by full assult! (eating 3 cookies!) Art projects with cheerios have not bothered her at all. Have not tried play-doh since diagnosis.

One other thing--Gabby is NOT very verbal yet--doesn't understand what will and will not hurt her tummy--and is NOT well understood by other people. (This includes daddy, grandparents who she sees often & just plain strangers) How do I help her let others know she can't eat certain foods if she can't say it? We've thought about medic-alert bracelets but we're not too sure about them...yet.

I am in the process of typing up a letter for the preschool teacher and director--telling of her diagnosis, what steps need to be taken & asking how I can help them. If anyone can think of anything else, I'm all ears...or eyes, since I'll be reading it! Feel free to e-mail me off-list at smidgentigre@...

Thank you, Laurel

PS--we are in the Detroit, MI suburb of Warren--if that helps at all>> ,> my 3yr old daughter was just diagnosed and I am looking into pre-schools, where she will be the only GF child....would love any advice and/or materials I can provide to the preschool teachers so that they understand all of the issues and can avoid cross-contamination etc. during snack time and arts & crafts time. Thanks much in advance.> > > akitsm@...>

Link to comment
Share on other sites

Guest guest

I too have a 3 year old--almost 4--going into her first year of preschool. I do not know if she will be the only gf child, but it IS an "at risk" preschool. I rather CRINGED when I read they would be providing a "healthy and nutritious snack daily"...I'm picturing graham crackers, whole wheat crackers, cheerios, etc.

I would love suggestions as to dealing with snack time too. Gabby doesn't seem to have celiac...yet...she has 1 gene marker & does not seem bothered by general cross contamination--just by full assult! (eating 3 cookies!) Art projects with cheerios have not bothered her at all. Have not tried play-doh since diagnosis.

One other thing--Gabby is NOT very verbal yet--doesn't understand what will and will not hurt her tummy--and is NOT well understood by other people. (This includes daddy, grandparents who she sees often & just plain strangers) How do I help her let others know she can't eat certain foods if she can't say it? We've thought about medic-alert bracelets but we're not too sure about them...yet.

I am in the process of typing up a letter for the preschool teacher and director--telling of her diagnosis, what steps need to be taken & asking how I can help them. If anyone can think of anything else, I'm all ears...or eyes, since I'll be reading it! Feel free to e-mail me off-list at smidgentigre@...

Thank you, Laurel

PS--we are in the Detroit, MI suburb of Warren--if that helps at all>> ,> my 3yr old daughter was just diagnosed and I am looking into pre-schools, where she will be the only GF child....would love any advice and/or materials I can provide to the preschool teachers so that they understand all of the issues and can avoid cross-contamination etc. during snack time and arts & crafts time. Thanks much in advance.> > > akitsm@...>

Link to comment
Share on other sites

Guest guest

> One other thing--Gabby is NOT very verbal yet--doesn't understand

> what will and will not hurt her tummy--and is NOT well understood

> by other people. (This includes daddy, grandparents who she sees

> often & just plain strangers) How do I help her let others know she

> can't eat certain foods if she can't say it? We've thought about

> medic-alert bracelets but we're not too sure about them...yet.

Print up stickers using sticker paper. Let Gabby pick out little

cartoon characters or animals or patterns for each one. Add in

something like, " Please don't feed me wheat! " or " Please don't feed

me! I have special snacks! " Let her choose a sticker to put on her

shirt every day.

ygg

Link to comment
Share on other sites

Guest guest

> One other thing--Gabby is NOT very verbal yet--doesn't understand

> what will and will not hurt her tummy--and is NOT well understood

> by other people. (This includes daddy, grandparents who she sees

> often & just plain strangers) How do I help her let others know she

> can't eat certain foods if she can't say it? We've thought about

> medic-alert bracelets but we're not too sure about them...yet.

Print up stickers using sticker paper. Let Gabby pick out little

cartoon characters or animals or patterns for each one. Add in

something like, " Please don't feed me wheat! " or " Please don't feed

me! I have special snacks! " Let her choose a sticker to put on her

shirt every day.

ygg

Link to comment
Share on other sites

Guest guest

> One other thing--Gabby is NOT very verbal yet--doesn't understand

> what will and will not hurt her tummy--and is NOT well understood

> by other people. (This includes daddy, grandparents who she sees

> often & just plain strangers) How do I help her let others know she

> can't eat certain foods if she can't say it? We've thought about

> medic-alert bracelets but we're not too sure about them...yet.

Print up stickers using sticker paper. Let Gabby pick out little

cartoon characters or animals or patterns for each one. Add in

something like, " Please don't feed me wheat! " or " Please don't feed

me! I have special snacks! " Let her choose a sticker to put on her

shirt every day.

ygg

Link to comment
Share on other sites

Guest guest

Perhaps, just like we keep a GF food list, celiac-friendly doctor lists and GF

food

lists, we could keep a list of people listed by region who are willing to be

mentors. A

listing could include a bit about the mentor (with kids, other autoimmune, other

allergies, etc) so that like could find like.

How does this sound?

Cheryl in MN

Link to comment
Share on other sites

Guest guest

Perhaps, just like we keep a GF food list, celiac-friendly doctor lists and GF

food

lists, we could keep a list of people listed by region who are willing to be

mentors. A

listing could include a bit about the mentor (with kids, other autoimmune, other

allergies, etc) so that like could find like.

How does this sound?

Cheryl in MN

Link to comment
Share on other sites

Guest guest

Perhaps, just like we keep a GF food list, celiac-friendly doctor lists and GF

food

lists, we could keep a list of people listed by region who are willing to be

mentors. A

listing could include a bit about the mentor (with kids, other autoimmune, other

allergies, etc) so that like could find like.

How does this sound?

Cheryl in MN

Link to comment
Share on other sites

Guest guest

This is a great idea!! I can always use the extra

help, especially since my son (8) will be the only

celiac in the school district and my daughter the only

celiac in preschool. I guess my children are paving

the way for others.

Kendra

__________________________________________________

Link to comment
Share on other sites

Guest guest

This is a great idea!! I can always use the extra

help, especially since my son (8) will be the only

celiac in the school district and my daughter the only

celiac in preschool. I guess my children are paving

the way for others.

Kendra

__________________________________________________

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...