Re: level 3.1 and still vomits?!

[Guest guest]

Carolyn

Sorry to hear it's not going well. have you been using the diet for a long =

time or are you

just starting?

Our daughter didn't take to the MCT version of the diet at all as the oil m=

ade her very

sickly and we hadn't worked out many ways of disguising it well....but this=

was associated

with high ketones. Also the diet and certain drugs can together can cause s=

ickness for

some children. (topiramate can be a particular problem). Could he be sick f=

rom another

childhood illness like gastroenteritis?

Has his weight and height changed?

Your description sounds to me like he's dehydrated and maybe heading toward=

s too much

ketosis and or acidosis (even though the blood tests aren't indicating it. =

The priority is

probably to get him rehydrated. Sometimes this needs to be done with intrav=

enous fluids

if children are vomitting a lot. Maybe you need to ask your doctor to check=

his blood for

metabolic acidosis also.

It sounds like you should get your doctors to check him soon Hope this help=

s.

Dominic

>

> Hello,

>

> aël vomits a lot at the moment, I took of mtc oils and I use only =

olive oil or

butter.

> He's pale, doesn't drink a lot, he can't drink he takes some gelified wat=

er.

> He 's got his meal at 19h30 and he vomitted at 20h, his blood ketones lev=

el is 3.1

mmol/l, what's it means?

> too much, not enough...?

> Thank you

>

> Carolyn, aël's mum alone with this diet in France!!!

>

>

>

>

---------------------------------------------------------------------------=

-

----

>

>

>

>

[Guest guest]

Dominic,

It's really a deal to do the diet here in France, they stop it immediately

because they don't have any result....I've check their calculated menus they

gave me for Nath it was about 1.1 ratio, so I'm not surprised it didn't

work(they affirmed me it was a 5.1 ratio !!!!)

The first start was the biginning of July and now I recalculated everything

better and it was 3 weeks ago we try the best...

I put some mtc oil because Nath is too constipated, so I put 4g per meal mtc

oil and once I put 7g to try and since he's bad,Iput away mtc oil but he's still

bad...

aël hasn't got anymore topamax or clonezepam, he's only get trileptal at

night , we put it 3 weeks ago and it seemed to work a little so I keep it.

He hasn't got gastro or other infantile disease but he's really exhausted and

now I'm sure he's deshydrated, he's got dry lips, rings under his eyes,

tired,doesn't move or smile or babble...He's 6 but doens't do anything he's very

disabed...

His weight doesn't change maybe he lost a bit...

I don't know about his height he's very tall for his age, he's 122 cm for 6

years old.

Thank you

Carolyn,aël's mum

Re: level 3.1 and still vomits?!

Carolyn

Sorry to hear it's not going well. have you been using the diet for a long =

time or are you

just starting?

Our daughter didn't take to the MCT version of the diet at all as the oil m=

ade her very

sickly and we hadn't worked out many ways of disguising it well....but this=

was associated

with high ketones. Also the diet and certain drugs can together can cause s=

ickness for

some children. (topiramate can be a particular problem). Could he be sick f=

rom another

childhood illness like gastroenteritis?

Has his weight and height changed?

Your description sounds to me like he's dehydrated and maybe heading toward=

s too much

ketosis and or acidosis (even though the blood tests aren't indicating it. =

The priority is

probably to get him rehydrated. Sometimes this needs to be done with intrav=

enous fluids

if children are vomitting a lot. Maybe you need to ask your doctor to check=

his blood for

metabolic acidosis also.

It sounds like you should get your doctors to check him soon Hope this help=

s.

Dominic

>

> Hello,

>

> aël vomits a lot at the moment, I took of mtc oils and I use only =

olive oil or

butter.

> He's pale, doesn't drink a lot, he can't drink he takes some gelified wat=

er.

> He 's got his meal at 19h30 and he vomitted at 20h, his blood ketones lev=

el is 3.1

mmol/l, what's it means?

> too much, not enough...?

> Thank you

>

> Carolyn, aël's mum alone with this diet in France!!!

>

>

>

>

---------------------------------------------------------------------------=

-

----

>

>

>

>

[Guest guest]

Carolyn

I was going to ask about constipation. I think the hydration needs sorting =

urgently today

and perhaps the constipation next.

It's very hard to be doing this diet alone as there are some dangers....we'=

re still not on top

of things with our daughter, running into pitfalls left right and centre bu=

t our medical

team are supporting us and learning with us.

Is there anywhere in France that might be able to support a little more? I =

believe there is a

s Hopkins trained doctor in Germany...might that be an option?

Back to hydration though that sounds the priority particularly if he's not =

passing much

urine?

Dominic

> >

> > Hello,

> >

> > aël vomits a lot at the moment, I took of mtc oils and I use=

only =

> olive oil or

> butter.

> > He's pale, doesn't drink a lot, he can't drink he takes some gelifi=

ed wat=

> er.

> > He 's got his meal at 19h30 and he vomitted at 20h, his blood keton=

es lev=

> el is 3.1

> mmol/l, what's it means?

> > too much, not enough...?

> > Thank you

> >

> > Carolyn, aël's mum alone with this diet in France!!!

> >

> >

> >

> >

>

---------------------------------------------------------------------------=

=

> -

> ----

> >

> >

> >

> >

[Guest guest]

Carolyn

Increasing magnesium would probably be a better choice for the

constipation issue than using MCT oil. The MCT might have been causing

the vommiting, did it get any better when you took it away?

, 's mom

caronath wrote:

> Dominic,

>

> It's really a deal to do the diet here in France, they stop it

> immediately because they don't have any result....I've check their

> calculated menus they gave me for Nath it was about 1.1 ratio, so I'm

> not surprised it didn't work(they affirmed me it was a 5.1 ratio !!!!)

>

> The first start was the biginning of July and now I recalculated

> everything better and it was 3 weeks ago we try the best...

> I put some mtc oil because Nath is too constipated, so I put 4g per

> meal mtc oil and once I put 7g to try and since he's bad,Iput away mtc

> oil but he's still bad...

> aël hasn't got anymore topamax or clonezepam, he's only get

> trileptal at night , we put it 3 weeks ago and it seemed to work a

> little so I keep it.

> He hasn't got gastro or other infantile disease but he's really

> exhausted and now I'm sure he's deshydrated, he's got dry lips, rings

> under his eyes, tired,doesn't move or smile or babble...He's 6 but

> doens't do anything he's very disabed...

> His weight doesn't change maybe he lost a bit...

> I don't know about his height he's very tall for his age, he's 122

> cm for 6 years old.

>

> Thank you

>

> Carolyn,aël's mum

> Re: level 3.1 and still vomits?!

>

>

> Carolyn

>

> Sorry to hear it's not going well. have you been using the diet

> for a long =

> time or are you

> just starting?

>

> Our daughter didn't take to the MCT version of the diet at all as

> the oil m=

> ade her very

> sickly and we hadn't worked out many ways of disguising it

> well....but this=

> was associated

> with high ketones. Also the diet and certain drugs can together

> can cause s=

> ickness for

> some children. (topiramate can be a particular problem). Could he

> be sick f=

> rom another

> childhood illness like gastroenteritis?

>

> Has his weight and height changed?

>

> Your description sounds to me like he's dehydrated and maybe

> heading toward=

> s too much

> ketosis and or acidosis (even though the blood tests aren't

> indicating it. =

> The priority is

> probably to get him rehydrated. Sometimes this needs to be done

> with intrav=

> enous fluids

> if children are vomitting a lot. Maybe you need to ask your doctor

> to check=

> his blood for

> metabolic acidosis also.

>

> It sounds like you should get your doctors to check him soon Hope

> this help=

> s.

>

> Dominic

>

>

> >

> > Hello,

> >

> > aël vomits a lot at the moment, I took of mtc oils and I

> use only =

> olive oil or

> butter.

> > He's pale, doesn't drink a lot, he can't drink he takes some

> gelified wat=

> er.

> > He 's got his meal at 19h30 and he vomitted at 20h, his blood

> ketones lev=

> el is 3.1

> mmol/l, what's it means?

> > too much, not enough...?

> > Thank you

> >

> > Carolyn, aël's mum alone with this diet in France!!!

> >

> >

> >

> >

>

> ---------------------------------------------------------------------------=

>

> -

> ----

> >

> >

> >

> >

[Guest guest]

,

How much magnesium I can give to aël ? He's 6 and his weight is 19 kg.

He's a bit better today, I tried to give him 4 meals instead of 3 and I

lowered the ratio to 3.5.1

Carolyn

Re: level 3.1 and still vomits?!

>

>

> Carolyn

>

> Sorry to hear it's not going well. have you been using the diet

> for a long =

> time or are you

> just starting?

>

> Our daughter didn't take to the MCT version of the diet at all as

> the oil m=

> ade her very

> sickly and we hadn't worked out many ways of disguising it

> well....but this=

> was associated

> with high ketones. Also the diet and certain drugs can together

> can cause s=

> ickness for

> some children. (topiramate can be a particular problem). Could he

> be sick f=

> rom another

> childhood illness like gastroenteritis?

>

> Has his weight and height changed?

>

> Your description sounds to me like he's dehydrated and maybe

> heading toward=

> s too much

> ketosis and or acidosis (even though the blood tests aren't

> indicating it. =

> The priority is

> probably to get him rehydrated. Sometimes this needs to be done

> with intrav=

> enous fluids

> if children are vomitting a lot. Maybe you need to ask your doctor

> to check=

> his blood for

> metabolic acidosis also.

>

> It sounds like you should get your doctors to check him soon Hope

> this help=

> s.

>

> Dominic

>

>

> >

> > Hello,

> >

> > aël vomits a lot at the moment, I took of mtc oils and I

> use only =

> olive oil or

> butter.

> > He's pale, doesn't drink a lot, he can't drink he takes some

> gelified wat=

> er.

> > He 's got his meal at 19h30 and he vomitted at 20h, his blood

> ketones lev=

> el is 3.1

> mmol/l, what's it means?

> > too much, not enough...?

> > Thank you

> >

> > Carolyn, aël's mum alone with this diet in France!!!

> >

> >

> >

> >

>

>

---------------------------------------------------------------------------=

>

> -

> ----

> >

> >

> >

> >

[Guest guest]

Carolyn,

ael might need an i.v. to give him more fluid as it is dangerous to be so

dehydrated.

Hallie

Re: level 3.1 and still vomits?!

Carolyn

I was going to ask about constipation. I think the hydration needs sorting =

urgently today

and perhaps the constipation next.

It's very hard to be doing this diet alone as there are some dangers....we'=

re still not on top

of things with our daughter, running into pitfalls left right and centre bu=

t our medical

team are supporting us and learning with us.

Is there anywhere in France that might be able to support a little more? I =

believe there is a

s Hopkins trained doctor in Germany...might that be an option?

Back to hydration though that sounds the priority particularly if he's not =

passing much

urine?

Dominic

> >

> > Hello,

> >

> > aël vomits a lot at the moment, I took of mtc oils and I use=

only =

> olive oil or

> butter.

> > He's pale, doesn't drink a lot, he can't drink he takes some gelifi=

ed wat=

> er.

> > He 's got his meal at 19h30 and he vomitted at 20h, his blood keton=

es lev=

> el is 3.1

> mmol/l, what's it means?

> > too much, not enough...?

> > Thank you

> >

> > Carolyn, aël's mum alone with this diet in France!!!

[Guest guest]

How much calcium are you giving him? He should be getting at least half

as much magnesium as he gets calcium or in other words, he will get

twice as much calcium as he does magnesium. Thats a starting point,

then you can go up from there if you have to. Some kids needs to take

the same amount of magnesium as they do calcium. You can't really go too

high on the magnesium, if you do, you will get diahrea and know to back

off

caronath wrote:

> ,

>

> How much magnesium I can give to aël ? He's 6 and his weight

> is 19 kg.

> He's a bit better today, I tried to give him 4 meals instead of 3

> and I lowered the ratio to 3.5.1

>

> Carolyn

> Re: level 3.1 and still vomits?!

> >

> >

> > Carolyn

> >

> > Sorry to hear it's not going well. have you been using the

> diet

> > for a long =

> > time or are you

> > just starting?

> >

> > Our daughter didn't take to the MCT version of the diet at

> all as

> > the oil m=

> > ade her very

> > sickly and we hadn't worked out many ways of disguising it

> > well....but this=

> > was associated

> > with high ketones. Also the diet and certain drugs can

> together

> > can cause s=

> > ickness for

> > some children. (topiramate can be a particular problem).

> Could he

> > be sick f=

> > rom another

> > childhood illness like gastroenteritis?

> >

> > Has his weight and height changed?

> >

> > Your description sounds to me like he's dehydrated and maybe

>

> > heading toward=

> > s too much

> > ketosis and or acidosis (even though the blood tests aren't

> > indicating it. =

> > The priority is

> > probably to get him rehydrated. Sometimes this needs to be

> done

> > with intrav=

> > enous fluids

> > if children are vomitting a lot. Maybe you need to ask your

> doctor

> > to check=

> > his blood for

> > metabolic acidosis also.

> >

> > It sounds like you should get your doctors to check him soon

> Hope

> > this help=

> > s.

> >

> > Dominic

> >

> >

> > >

> > > Hello,

> > >

> > > aël vomits a lot at the moment, I took of mtc oils

> and I

> > use only =

> > olive oil or

> > butter.

> > > He's pale, doesn't drink a lot, he can't drink he takes

> some

> > gelified wat=

> > er.

> > > He 's got his meal at 19h30 and he vomitted at 20h, his

> blood

> > ketones lev=

> > el is 3.1

> > mmol/l, what's it means?

> > > too much, not enough...?

> > > Thank you

> > >

> > > Carolyn, aël's mum alone with this diet in France!!!

>

> > >

> > >

> > >

> > >

> >

> >

> ---------------------------------------------------------------------------=

>

> >

> > -

> > ----

> > >

> > >

> > >

> > >

[Guest guest]

on 8/14/04 11:24 AM, caronath at caronath@... wrote:

>

> Hello,

>

> aël vomits a lot at the moment, I took of mtc oils and I use only olive

> oil or butter.

> He's pale, doesn't drink a lot, he can't drink he takes some gelified water.

> He 's got his meal at 19h30 and he vomitted at 20h, his blood ketones level is

> 3.1 mmol/l, what's it means?

> too much, not enough...?

> Thank you

>

> Carolyn, aël's mum alone with this diet in France!!!

>

>

>

> ------------------------------------------------------------------------------

> --

>

>

>

>