Another Wrong Doctor Story

[Guest guest]

, I was appalled when I read what that idiot neurologist

predicted for . The responses to your post have been so

heartening! What wonderful stories your situation generated. I

can't wait for to prove him wrong. And , it is so good

to learn that Langan's nights are better. Hopefully only a small

dose of trileptal will be all she needs to get back on track.

Trileptal and Lamictal had the least side effects for Ethan.

My wrong doctor story concerns the nuerologist who saw Ethan in

the three years before keto. HE kept perscribing new drugs (always

one at a time, thankfully), and when they didn't work, he pushed the

dose up higher and higher until would finally insist on something

else. Before pushing higher, I always asked if this approach had

worked with other patients of his. He always assured me that it

had. " Kids are always better when the seizures stop. "

He always saw Ethan's siezures as the result of some underlying

brain syndrome. All the learning and speech side effects were also

blamed on his brain.

Once Ethan was admitted for VEEG and they took away all

medication to get seizures (I don't know why, since he was having

seizures anyway). For those 24-48 hours Ethan's speech became

perfectly clear. I asked about that, but he saw no significance in

it.

WIth each different medication, Ethan had a different siezure

type. But still, our idiot doctor blamed it on Ethan's brain. " He

must have multiple lesions in different parts of his brain, or a

moving target. These type of seizures are very difficult to

control. "

And I came to believe him! Even when it just didn't seem

right. I assumed he was the expert, and that certainly he discussed

this difficult case with other acclaimed neuros.

When I aske him about keto, he always said, " It is too hard for a

child this age. "

I wish I'd had this group back then. The sane and experienced

people here would have set me on right course.

But I don't have the gumption of you all. I believed my doctor.

It wasn't until he moved away and we were forced to change, that we

changed nueros. (To think that I almost kept him even though he was

moving 6 hours away!)

Ethan has had repeated MRIs of all kinds, they have never found

a single lesion. Now that he is on the diet and off meds, he is

siezure free. It wasn't his brain afterall! How wrong those docs

can be!

The odd thing is, I don't really feel all that angry about it.

I guess I am just so thankful he left and that things are working,

and that Ethan has a promising future afterall.