Re: We are going to do a 4.5:1 ratio now/Carolyn

[Guest guest]

Hi Carolyn, I only use the ketone sticks to check Kristan's ketones.

I have read previous posts from other parents that some kids do well

with moderate ketones which is 4 while others do well on large which

is 8, 16. For a while I thought Kristan was one of the kids that

does well with low ketones as she was having good results, but that's

not the case anymore.

I hope iel is doing better.

Satnam

> Hello Satnam,

>

> I'm sorry to hear that , I hope Kristan will have better

ketones with higher ratio but I wander if some children don't do

well with not so high level?

> You sait Kristan is about 4, is it her blood ketones level?

> aël is about 3 or 4 and it's high for him, he vomits at

this level so I don't know what to think about blood ketones levels.

Which is the good number in the keto diet? is it obliged to have

these or can it be helpful with lower levels?

> Take care

>

> Carolyn, aël's mum

>

>

>

> We are going to do a 4.5:1 ratio now

>

>

> Hi everyone, as Kristan is not getting into high ketosis, our

last

> desperate attempt is to go to a 4.5:1 ratio for a few weeks see

if

> that works and if not then try 5:1 ratio for a few weeks. We

just

> met with our keto team and this was there suggestion. We also

> started Carnitor which has raised her ketones to a 4

consistently now

> but no higher. Carnitor helps with her bowel movements, since

> starting it she goes twice a day. If the higher ratios don't

work,

> then I think we will stop the diet, we will wean her off. We

have

> been going back and forth about the diet and I am so afraid to

stop,

> but we just think if she has good days and bad days on the

diet,

> what's the point, she could be like this on a regular diet. I

wanted

> to commit to a year and it will be a year on August 19.

>

> Kristan's neuro has suggested Lamictal (I know , I

remember what

> Langan went through) and I am real hesistant, but Kristan's

neuro

> said there are fewer side effects as you increase slowly with

> Lamictal and fewer side effects when you start on a lower

dose. If

> we do stop the diet, we are actually going to try a naturopath

first,

> Kristan's general practitioner knows of a naturopath who has

been

> successful in treating patients with epilepsy by giving

supplements,

> I need to look into it more as I am not sure if he has treated

kids

> and anyone with as many seizures as Kristan has had, but going

with a

> naturopath will be our first choice than a drug.

>

> Kristan is still working on her independent sitting, which we

are so

> happy about, she still can't get up when she falls over. She

is

> still delayed in other areas, no consistent looking at you, no

> laughing or smiling (it just breaks our heart, especially for

my

> husband, when he comes home from work, he is so excited to see

her

> and Kristan is not happy to see him as he puts it), but when

she uses

> her voice, you can tell she is in a good mood and her eyes look

real

> bright as if she is happy, even the neuro and dietitian said

that,

> she was very vocal at the last apointment.

>

> So, that's my update. Wish us luck.

>

> Satnam,mom to Kristan, 20 months

> Keto kid since August 2003

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just

a last resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

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