We are going to do a 4.5:1 ratio now

August 11, 2004

Hi everyone, as Kristan is not getting into high ketosis, our last

desperate attempt is to go to a 4.5:1 ratio for a few weeks see if

that works and if not then try 5:1 ratio for a few weeks. We just

met with our keto team and this was there suggestion. We also

started Carnitor which has raised her ketones to a 4 consistently now

but no higher. Carnitor helps with her bowel movements, since

starting it she goes twice a day. If the higher ratios don't work,

then I think we will stop the diet, we will wean her off. We have

been going back and forth about the diet and I am so afraid to stop,

but we just think if she has good days and bad days on the diet,

what's the point, she could be like this on a regular diet. I wanted

to commit to a year and it will be a year on August 19.

Kristan's neuro has suggested Lamictal (I know , I remember what

Langan went through) and I am real hesistant, but Kristan's neuro

said there are fewer side effects as you increase slowly with

Lamictal and fewer side effects when you start on a lower dose. If

we do stop the diet, we are actually going to try a naturopath first,

Kristan's general practitioner knows of a naturopath who has been

successful in treating patients with epilepsy by giving supplements,

I need to look into it more as I am not sure if he has treated kids

and anyone with as many seizures as Kristan has had, but going with a

naturopath will be our first choice than a drug.

Kristan is still working on her independent sitting, which we are so

happy about, she still can't get up when she falls over. She is

still delayed in other areas, no consistent looking at you, no

laughing or smiling (it just breaks our heart, especially for my

husband, when he comes home from work, he is so excited to see her

and Kristan is not happy to see him as he puts it), but when she uses

her voice, you can tell she is in a good mood and her eyes look real

bright as if she is happy, even the neuro and dietitian said that,

she was very vocal at the last apointment.

So, that's my update. Wish us luck.

Satnam,mom to Kristan, 20 months

Keto kid since August 2003

Recommended Posts