Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 After being sick for awhile with pred, I decided to put all my experiences on a website. I then, printed business cards on my home computer that had my picture, my email addy and my website on it. It also had the name of my disease with a short description. I would hand it to people who asked me about it and leave it on tables at restaurants, with my hairdresser, and more. I believe we as a general public need to educate people on this. We didn't hear of these things until we were dx and I can remember all the questions I had. I did however have a bad day (or 120 of them) once and after parking in a handicap stall, a woman walking past me said 'you don't look handicapped' and I said 'you don't look ignorant'. She looked at me and I continued with 'because if you weren't ignorant you would know that you can't just determine one's health by looking at them'. I don't usually speak to people that way but it does get frustrating. We had an experience in the grocery store a couple years ago when my son-who is autistic-was having a melt down and then ran from me and tried to climb up a pile of cases of sodas. An elderly man made the comment 'that child needs a good spanking', I tried to explain to him that he is autistic and just reacting to the over stimulation...... His reply? 'Well, you shouldn't bring him out in public at all'. ARGH! There are so many of these invisible diseases and people just don't want to believe that someone who looks healthy can be sick or have other issues. Or that because a child 'looks' like a bad kid he just needs a good whoopin. Believe me, if that would cure my son, I would spank him but spankings don't work on him!!! LOL. Zanna http://groups.yahoo.com/group/Art_on_A_Budget/ My daily rantings! www.zannasstory.blogspot.com My picture trail: www.picturetrail.com/xanadoodles Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 After being sick for awhile with pred, I decided to put all my experiences on a website. I then, printed business cards on my home computer that had my picture, my email addy and my website on it. It also had the name of my disease with a short description. I would hand it to people who asked me about it and leave it on tables at restaurants, with my hairdresser, and more. I believe we as a general public need to educate people on this. We didn't hear of these things until we were dx and I can remember all the questions I had. I did however have a bad day (or 120 of them) once and after parking in a handicap stall, a woman walking past me said 'you don't look handicapped' and I said 'you don't look ignorant'. She looked at me and I continued with 'because if you weren't ignorant you would know that you can't just determine one's health by looking at them'. I don't usually speak to people that way but it does get frustrating. We had an experience in the grocery store a couple years ago when my son-who is autistic-was having a melt down and then ran from me and tried to climb up a pile of cases of sodas. An elderly man made the comment 'that child needs a good spanking', I tried to explain to him that he is autistic and just reacting to the over stimulation...... His reply? 'Well, you shouldn't bring him out in public at all'. ARGH! There are so many of these invisible diseases and people just don't want to believe that someone who looks healthy can be sick or have other issues. Or that because a child 'looks' like a bad kid he just needs a good whoopin. Believe me, if that would cure my son, I would spank him but spankings don't work on him!!! LOL. Zanna http://groups.yahoo.com/group/Art_on_A_Budget/ My daily rantings! www.zannasstory.blogspot.com My picture trail: www.picturetrail.com/xanadoodles Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 After being sick for awhile with pred, I decided to put all my experiences on a website. I then, printed business cards on my home computer that had my picture, my email addy and my website on it. It also had the name of my disease with a short description. I would hand it to people who asked me about it and leave it on tables at restaurants, with my hairdresser, and more. I believe we as a general public need to educate people on this. We didn't hear of these things until we were dx and I can remember all the questions I had. I did however have a bad day (or 120 of them) once and after parking in a handicap stall, a woman walking past me said 'you don't look handicapped' and I said 'you don't look ignorant'. She looked at me and I continued with 'because if you weren't ignorant you would know that you can't just determine one's health by looking at them'. I don't usually speak to people that way but it does get frustrating. We had an experience in the grocery store a couple years ago when my son-who is autistic-was having a melt down and then ran from me and tried to climb up a pile of cases of sodas. An elderly man made the comment 'that child needs a good spanking', I tried to explain to him that he is autistic and just reacting to the over stimulation...... His reply? 'Well, you shouldn't bring him out in public at all'. ARGH! There are so many of these invisible diseases and people just don't want to believe that someone who looks healthy can be sick or have other issues. Or that because a child 'looks' like a bad kid he just needs a good whoopin. Believe me, if that would cure my son, I would spank him but spankings don't work on him!!! LOL. Zanna http://groups.yahoo.com/group/Art_on_A_Budget/ My daily rantings! www.zannasstory.blogspot.com My picture trail: www.picturetrail.com/xanadoodles Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 Sometimes I get so irritated when people stick there nose and comments where they have no business!!!!!!! I have a good friend who's husband suffers from sicle cell, they frequently get comments when parking in handicap parking. Incredible pain is not something you can see. I also have a friend who's daughter is Autistic and it is amazing how many people feel they need to stop and tell you to beat a child. She made a shirt that says " I am NOT BAD, I am AUTISTIC! " She rarely gets comments now. > > After being sick for awhile with pred, I decided to put all my experiences on a website. I then, printed business cards on my home computer that had my picture, my email addy and my website on it. It also had the name of my disease with a short description. I would hand it to people who asked me about it and leave it on tables at restaurants, with my hairdresser, and more. > > I believe we as a general public need to educate people on this. We didn't hear of these things until we were dx and I can remember all the questions I had. > > I did however have a bad day (or 120 of them) once and after parking in a handicap stall, a woman walking past me said 'you don't look handicapped' and I said 'you don't look ignorant'. She looked at me and I continued with 'because if you weren't ignorant you would know that you can't just determine one's health by looking at them'. I don't usually speak to people that way but it does get frustrating. > > We had an experience in the grocery store a couple years ago when my son-who is autistic-was having a melt down and then ran from me and tried to climb up a pile of cases of sodas. An elderly man made the comment 'that child needs a good spanking', I tried to explain to him that he is autistic and just reacting to the over stimulation...... His reply? 'Well, you shouldn't bring him out in public at all'. ARGH! > > There are so many of these invisible diseases and people just don't want to believe that someone who looks healthy can be sick or have other issues. Or that because a child 'looks' like a bad kid he just needs a good whoopin. Believe me, if that would cure my son, I would spank him but spankings don't work on him!!! LOL. > > Zanna > > http://groups.yahoo.com/group/Art_on_A_Budget/ > > My daily rantings! > www.zannasstory.blogspot.com > > My picture trail: > www.picturetrail.com/xanadoodles > Quote Link to comment Share on other sites More sharing options...
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