Re: sleep issues/Rhonda

[Guest guest]

Rhonda,

Ahhh. Great minds think alike!! = )

I actually did give Langan melatonin on Saturday and Sunday night.

Something had to give. She slept better but still woke up with szs.

= ( But she wasn't as nuts as before so maybe it is helping. The

problem is that both Sunday and today she is just wiped out- no

energy. So I wonder if it is the melatonin. I did give the slow

release- maybe that is the problem. Maybe it's too slow??

We are awaiting a call from the neuro- looks like we're going to be

going the med route soon. We just can't take this many szs AND the

diet. I don't have much hope for the meds helping but we have to try

something and increasing the ratio is out of the question b/c of the

acidosis. Ugh. Never dull!

I hope Shan is doing well. We will continue to eat the yogurt

(although maybe not from cream once we're off keto). Langan LOVES

it! Thanks again for that tip!

> ,

>

> If I recall right you have tried giving Langan melatonin but

stopped it due

> to not being sure if it was making matters worse or if something

else was

> causing the problem (perhaps this was the digestive enzymes...can't

> remember). If this is the case, now that you know more of what is

going on

> how about trying it again? If you do try it, I would not use the

extended

> release. I don't think that Langan is producing adequate melatonin

as the

> sun begins to go down. She needs this if she is going to go to

sleep. She

> reminds me so much of what Shan use to be like. She would not fall

asleep

> until around 11 at night. She would lay in bed for a couple hours

kicking

> the wall and doing all kinds of things, up to the bathroom over and

over.

> The melatonin has regulated her. She went off it for 3-6 months

and did

> well but started to have sleeping problems again so we put her back

on 1mg.

> We could skip giving it to her and she would still get tired and go

to

> sleep. It may be well worth trying again especially if it proved

to help

> Langan.

>

> Rhonda

>

>

>

> Once Langan fell asleep last night (and it is always a mess b/c she

> tries to stay awake and then screams at every tiny sound or movement

> until she is out) she slept better than she has in a while. She had

> a sz at 4:30am but went back to sleep after and was pretty peaceful

> before and after. She actually crashed until 10am! I guess after

> so long without good sleep, her body needed it. She is in fine

> spirits, now, though. Until bedtime.... Ugh...