Re: Question about keto and illness/Cammie

[Guest guest]

Thanks, Cammie. The pediatrician gave us something that is supposed

to help her tummy and is supposedly keto friendly, lactulose

granules or something like that, so we'll see if that helps. And I

am with you on the favorite meals. She hasn't been too hungry but

I'm just letting her hang out in the highchair and nibble her

meals. It feels strange to throw the rules out the window but you

are right that we have a greater evil to worry about with this nasty

acidosis!

On the bright side, since lowering her ratio and addressing the

acidosis, I have my old Langan back! She is so happy and giggly and

full of energy, and her development has really kicked in. I am

wondering if the long term acidosis was more of a problem than we

knew. I read that long term it can cause extreme muscle fatigue-

might explain a lot. She has made more physical gains in the last 2

weeks than she did the entire last 8 months on keto! So we are

excited- scared to be hopeful but at the same time hopeful that we

have found our balance and can stay on keto and off the meds and NOT

be too acidotic. Maybe I am asking too much, but a mom can dream,

right?

Thanks again! I'll keep you posted!

> > Hello all. Sorry I have been MIA. We are still on keto, but on

> the

> > lower ratio, and are in the " wait and see " mode to see if the

> > acidosis is controlled at this ratio and if we can still keep

some

> > seizure control. So far, Langan is much happier, stronger AND

> until

> > recently the seizures had spread back out to once a week.

> >

> > Over the weekend, Langan was waking up screaming at night. We

> > assumed it was seizures and were planning to call the neuro

Monday

> > to stop keto and start the meds. We just needed some sleep and

> > needed to give Langan some relief! Well, at the peds office on

> > Monday (for routine bloodwork), I asked the ped to look in

Langan's

> > ears " just in case " . Lo and behold, a " severe ear infection " .

So

> > that is probably what had her up screaming at night. No mother

of

> > the year award coming this direction....

> >

> > Anyway, she has been in good spirits, except at night, but they

put

> > her on amoxycillin b/c of keto and she is having 6-10 watery BMs

a

> > day. Ugh. And not wanting to eat or drink much, which is a

> problem

> > for her acidosis issues. She slept through her afternoon meal,

so

> I

> > gave it to her a few hours late. Here's my question: Do I give

> her

> > the 4th meal and her snack, even though they will not be as

spaced

> > apart as they usually are? Or do I skip one or both? My

concern

> is

> > not letting her get too acidotic. I am willing to give up some

> > seizure control during illness as long as the acidosis remains

> > controlled. Any thoughts?

> >

> > Thanks!

> >

> > , mom to Langan, 2 yrs old and keto kid since 11/03; med

free

> > since 4/2/04; almost stopped keto due to metabolic acidosis, but

> now

> > on a 3:1 ratio and sticking to it!!