Re: Re:Carolyn and Satnam check this out... low ketones and seizures!

[Guest guest]

I am so distressed by what the two of you (and your children) are going through

that I have been doing some research and found something of interest, well

interesting to me at least.

Controlling Seizures: A Nutritional Approach (a no drug approach!!!!)

http://www.worldwidehealthcenter.net/articles-115.html

Re: low ketones and seizures!

Good luck Carolyn, I'm with you on the drugs, try one and then stop

it if it doesn't work. I'll be thinking of you and ael.

Satnam

> >

> > Hello,

> >

> > aël is having very bad time seizures every 20 or 40

> mn ,I've just check his blood ketones and he's 1.1 mmol!!!!

> > How can I do to increase the level?

> > thanks

> > Carolyn, Nath's mum

> >

> >

> > --------------------------------------------------------------

------

> ------------

> >

> >

> >

> >

[Guest guest]

I am so distressed by what the two of you (and your children) are going through

that I have been doing some research and found something of interest, well

interesting to me at least.

Controlling Seizures: A Nutritional Approach (a no drug approach!!!!)

http://www.worldwidehealthcenter.net/articles-115.html

Re: low ketones and seizures!

Good luck Carolyn, I'm with you on the drugs, try one and then stop

it if it doesn't work. I'll be thinking of you and ael.

Satnam

> >

> > Hello,

> >

> > aël is having very bad time seizures every 20 or 40

> mn ,I've just check his blood ketones and he's 1.1 mmol!!!!

> > How can I do to increase the level?

> > thanks

> > Carolyn, Nath's mum

> >

> >

> > --------------------------------------------------------------

------

> ------------

> >

> >

> >

> >

[Guest guest]

Satnam and all the others so helpfull for me!

I come back from hospital but without aël.....He's bad and there is no

understanding so I'm desesperated and I want to believe in tha diet, it's our

last chance ! Yes it is, I don't want and I can't go further it's too paintful

for my little angel and for me too.

I'm separated from Nath's dad, we aren't very friends but for once he'll stay

at night becase I'm very tired , there's at least 3 months I didn't sleep at all

because Nath have too many seizures...

I'll tell you a little more later on if you're interested!!!!!

I'll try to sleep for a while and go back early tomorrow morning.

Doctors still don't really believe in that diet!

Nath's urinary ketones are better today but they don't want to check blood

levels ketones, they said they don't need to!!!!!!!!

Nath is under clonazepam again!They don't know diastat here!!!we have valium

intra rectal but not gel or suppository but liquid....is it the same effect?

Thank you for beeing there

I hope Kristan is better, how is he doing with carnitor?

Lots of loves to all children

Carolyn , aël's mum

Re: low ketones and seizures!

Good luck Carolyn, I'm with you on the drugs, try one and then stop

it if it doesn't work. I'll be thinking of you and ael.

Satnam

> >

> > Hello,

> >

> > aël is having very bad time seizures every 20 or 40

> mn ,I've just check his blood ketones and he's 1.1 mmol!!!!

> > How can I do to increase the level?

> > thanks

> > Carolyn, Nath's mum

> >

> >

> > --------------------------------------------------------------

------

> ------------

> >

> >

> >

> >

[Guest guest]

Carolyn,

To break my son's seizures that are too long, we use Dormicum. It knocks

him out completely!

" caronath "

ketogenic >

cali.fr> cc:

Subject: Re: Re:Carolyn

and

23/07/2004 Satnam check this out... low ketones

and

05:00 AM seizures!

Please

respond to

ketogenic

Satnam and all the others so helpfull for me!

I come back from hospital but without aël.....He's bad and there is

no understanding so I'm desesperated and I want to believe in tha diet,

it's our last chance ! Yes it is, I don't want and I can't go further it's

too paintful for my little angel and for me too.

I'm separated from Nath's dad, we aren't very friends but for once he'll

stay at night becase I'm very tired , there's at least 3 months I didn't

sleep at all because Nath have too many seizures...

I'll tell you a little more later on if you're interested!!!!!

I'll try to sleep for a while and go back early tomorrow morning.

Doctors still don't really believe in that diet!

Nath's urinary ketones are better today but they don't want to check

blood levels ketones, they said they don't need to!!!!!!!!

Nath is under clonazepam again!They don't know diastat here!!!we have

valium intra rectal but not gel or suppository but liquid....is it the same

effect?

Thank you for beeing there

I hope Kristan is better, how is he doing with carnitor?

Lots of loves to all children

Carolyn , aël's mum

Re: low ketones and seizures!

Good luck Carolyn, I'm with you on the drugs, try one and then stop

it if it doesn't work. I'll be thinking of you and ael.

Satnam

> >

> > Hello,

> >

> > aël is having very bad time seizures every 20 or 40

> mn ,I've just check his blood ketones and he's 1.1 mmol!!!!

> > How can I do to increase the level?

> > thanks

> > Carolyn, Nath's mum

> >

> >

> > --------------------------------------------------------------

------

> ------------

> >

> >

> >

> >

[Guest guest]

Carolyn,

To break my son's seizures that are too long, we use Dormicum. It knocks

him out completely!

" caronath "

ketogenic >

cali.fr> cc:

Subject: Re: Re:Carolyn

and

23/07/2004 Satnam check this out... low ketones

and

05:00 AM seizures!

Please

respond to

ketogenic

Satnam and all the others so helpfull for me!

I come back from hospital but without aël.....He's bad and there is

no understanding so I'm desesperated and I want to believe in tha diet,

it's our last chance ! Yes it is, I don't want and I can't go further it's

too paintful for my little angel and for me too.

I'm separated from Nath's dad, we aren't very friends but for once he'll

stay at night becase I'm very tired , there's at least 3 months I didn't

sleep at all because Nath have too many seizures...

I'll tell you a little more later on if you're interested!!!!!

I'll try to sleep for a while and go back early tomorrow morning.

Doctors still don't really believe in that diet!

Nath's urinary ketones are better today but they don't want to check

blood levels ketones, they said they don't need to!!!!!!!!

Nath is under clonazepam again!They don't know diastat here!!!we have

valium intra rectal but not gel or suppository but liquid....is it the same

effect?

Thank you for beeing there

I hope Kristan is better, how is he doing with carnitor?

Lots of loves to all children

Carolyn , aël's mum

Re: low ketones and seizures!

Good luck Carolyn, I'm with you on the drugs, try one and then stop

it if it doesn't work. I'll be thinking of you and ael.

Satnam

> >

> > Hello,

> >

> > aël is having very bad time seizures every 20 or 40

> mn ,I've just check his blood ketones and he's 1.1 mmol!!!!

> > How can I do to increase the level?

> > thanks

> > Carolyn, Nath's mum

> >

> >

> > --------------------------------------------------------------

------

> ------------

> >

> >

> >

> >

[Guest guest]

Carolyn,

To break my son's seizures that are too long, we use Dormicum. It knocks

him out completely!

" caronath "

ketogenic >

cali.fr> cc:

Subject: Re: Re:Carolyn

and

23/07/2004 Satnam check this out... low ketones

and

05:00 AM seizures!

Please

respond to

ketogenic

Satnam and all the others so helpfull for me!

I come back from hospital but without aël.....He's bad and there is

no understanding so I'm desesperated and I want to believe in tha diet,

it's our last chance ! Yes it is, I don't want and I can't go further it's

too paintful for my little angel and for me too.

I'm separated from Nath's dad, we aren't very friends but for once he'll

stay at night becase I'm very tired , there's at least 3 months I didn't

sleep at all because Nath have too many seizures...

I'll tell you a little more later on if you're interested!!!!!

I'll try to sleep for a while and go back early tomorrow morning.

Doctors still don't really believe in that diet!

Nath's urinary ketones are better today but they don't want to check

blood levels ketones, they said they don't need to!!!!!!!!

Nath is under clonazepam again!They don't know diastat here!!!we have

valium intra rectal but not gel or suppository but liquid....is it the same

effect?

Thank you for beeing there

I hope Kristan is better, how is he doing with carnitor?

Lots of loves to all children

Carolyn , aël's mum

Re: low ketones and seizures!

Good luck Carolyn, I'm with you on the drugs, try one and then stop

it if it doesn't work. I'll be thinking of you and ael.

Satnam

> >

> > Hello,

> >

> > aël is having very bad time seizures every 20 or 40

> mn ,I've just check his blood ketones and he's 1.1 mmol!!!!

> > How can I do to increase the level?

> > thanks

> > Carolyn, Nath's mum

> >

> >

> > --------------------------------------------------------------

------

> ------------

> >

> >

> >

> >

[Guest guest]

,

Thank you for this info, I'll try to get some dormicum....is it the same

that valium?

Carolyn, aël's mum

Re: low ketones and seizures!

Good luck Carolyn, I'm with you on the drugs, try one and then stop

it if it doesn't work. I'll be thinking of you and ael.

Satnam

> >

> > Hello,

> >

> > aël is having very bad time seizures every 20 or 40

> mn ,I've just check his blood ketones and he's 1.1 mmol!!!!

> > How can I do to increase the level?

> > thanks

> > Carolyn, Nath's mum

> >

> >

> > --------------------------------------------------------------

------

> ------------

> >

> >

> >

> >

[Guest guest]

Dear Carolyn,

I really feel for both you and your son, if you would like to send me some

questions and details abt Nath's history and what meds he's on - I will forward

them to my dietician who works with the keto diet. She is fantastic to work with

and very passionate abt keto. I will forward this to her if you are interested.

After reading some of your mails - I have not been online for 3 wks - I can't

help thinking that you need help, and quickly !

Check Nath's Bicarb level - He could be overly acidotic (blood test)

Calcium, Magnesium, Zinc, and Albumin (overall protein) levels are also a good

start.U and E as well.

These are all blood tests that you should have results of in 24 - 48 hrs.

I also check regularly for an organic and amino acid analysis as well as a

carnitine check (urine sample)

Something could be totally out of whack which needs adjusting.

I hope this helps

Michele - mom to Keenan (2 1/2 yrs) Doing really well as ketokid !

Re: low ketones and seizures!

Good luck Carolyn, I'm with you on the drugs, try one and then stop

it if it doesn't work. I'll be thinking of you and ael.

Satnam

> >

> > Hello,

> >

> > aël is having very bad time seizures every 20 or 40

> mn ,I've just check his blood ketones and he's 1.1 mmol!!!!

> > How can I do to increase the level?

> > thanks

> > Carolyn, Nath's mum

> >

> >

> > --------------------------------------------------------------

------

> ------------

> >

> >

> >

> >

[Guest guest]

Dear Carolyn,

I really feel for both you and your son, if you would like to send me some

questions and details abt Nath's history and what meds he's on - I will forward

them to my dietician who works with the keto diet. She is fantastic to work with

and very passionate abt keto. I will forward this to her if you are interested.

After reading some of your mails - I have not been online for 3 wks - I can't

help thinking that you need help, and quickly !

Check Nath's Bicarb level - He could be overly acidotic (blood test)

Calcium, Magnesium, Zinc, and Albumin (overall protein) levels are also a good

start.U and E as well.

These are all blood tests that you should have results of in 24 - 48 hrs.

I also check regularly for an organic and amino acid analysis as well as a

carnitine check (urine sample)

Something could be totally out of whack which needs adjusting.

I hope this helps

Michele - mom to Keenan (2 1/2 yrs) Doing really well as ketokid !

Re: low ketones and seizures!

Good luck Carolyn, I'm with you on the drugs, try one and then stop

it if it doesn't work. I'll be thinking of you and ael.

Satnam

> >

> > Hello,

> >

> > aël is having very bad time seizures every 20 or 40

> mn ,I've just check his blood ketones and he's 1.1 mmol!!!!

> > How can I do to increase the level?

> > thanks

> > Carolyn, Nath's mum

> >

> >

> > --------------------------------------------------------------

------

> ------------

> >

> >

> >

> >

[Guest guest]

Dear Carolyn,

I really feel for both you and your son, if you would like to send me some

questions and details abt Nath's history and what meds he's on - I will forward

them to my dietician who works with the keto diet. She is fantastic to work with

and very passionate abt keto. I will forward this to her if you are interested.

After reading some of your mails - I have not been online for 3 wks - I can't

help thinking that you need help, and quickly !

Check Nath's Bicarb level - He could be overly acidotic (blood test)

Calcium, Magnesium, Zinc, and Albumin (overall protein) levels are also a good

start.U and E as well.

These are all blood tests that you should have results of in 24 - 48 hrs.

I also check regularly for an organic and amino acid analysis as well as a

carnitine check (urine sample)

Something could be totally out of whack which needs adjusting.

I hope this helps

Michele - mom to Keenan (2 1/2 yrs) Doing really well as ketokid !

Re: low ketones and seizures!

Good luck Carolyn, I'm with you on the drugs, try one and then stop

it if it doesn't work. I'll be thinking of you and ael.

Satnam

> >

> > Hello,

> >

> > aël is having very bad time seizures every 20 or 40

> mn ,I've just check his blood ketones and he's 1.1 mmol!!!!

> > How can I do to increase the level?

> > thanks

> > Carolyn, Nath's mum

> >

> >

> > --------------------------------------------------------------

------

> ------------

> >

> >

> >

> >

[Guest guest]

Carolyn,

No, dormicum is not the same as valium. Normally dormicum is administered

via IV for patients in surgery but for our case we just put some in his

nostrils as via IV would kill him. We tried the rectal valium but the funny

thing is, whatever we put in rectally always comes out with his BM!!! Then

there is also Choral Hydrate but that doesnt work for him because it was

just too mild!

" caronath "

ketogenic >

cali.fr> cc:

Subject: Re: Re:Carolyn

and

26/07/2004 Satnam check this out... low ketones

and

09:10 PM seizures!

Please

respond to

ketogenic

,

Thank you for this info, I'll try to get some dormicum....is it the

same that valium?

Carolyn, aël's mum

Re: low ketones and seizures!

Good luck Carolyn, I'm with you on the drugs, try one and then stop

it if it doesn't work. I'll be thinking of you and ael.

Satnam

> >

> > Hello,

> >

> > aël is having very bad time seizures every 20 or

40

> mn ,I've just check his blood ketones and he's 1.1 mmol!!!!

> > How can I do to increase the level?

> > thanks

> > Carolyn, Nath's mum

> >

> >

> >

--------------------------------------------------------------

------

> ------------

> >

> >

> >

> >

[Guest guest]

,

Thank you for this info but I would like to know how many mg you put in ths

mostrils at the time? Could you do it an other time like with the valium if it

doesn't work the first time?

Carolyn

Re: low ketones and seizures!

Good luck Carolyn, I'm with you on the drugs, try one and then stop

it if it doesn't work. I'll be thinking of you and ael.

Satnam

> >

> > Hello,

> >

> > aël is having very bad time seizures every 20 or

40

> mn ,I've just check his blood ketones and he's 1.1 mmol!!!!

> > How can I do to increase the level?

> > thanks

> > Carolyn, Nath's mum

> >

> >

> >

--------------------------------------------------------------

------

> ------------

> >

> >

> >

> >

[Guest guest]

My son is 14 months old and weigh about 9kgs. I use 0.2ml per nostril..I

think the concentration is 5mg per ml. But to be safe do ask the physician

to prescribe for you an appropriate dosage to start of with. This is a very

powerful sedative and should be used carefully.

" caronath "

ketogenic >

cali.fr> cc:

Subject: Re: Re:Carolyn

and

27/07/2004 Satnam check this out... low ketones

and

05:44 PM seizures!

Please

respond to

ketogenic

,

Thank you for this info but I would like to know how many mg you put in

ths mostrils at the time? Could you do it an other time like with the

valium if it doesn't work the first time?

Carolyn

Re: low ketones and seizures!

Good luck Carolyn, I'm with you on the drugs, try one and then

stop

it if it doesn't work. I'll be thinking of you and ael.

Satnam

> >

> > Hello,

> >

> > aël is having very bad time seizures every 20

or

40

> mn ,I've just check his blood ketones and he's 1.1

mmol!!!!

> > How can I do to increase the level?

> > thanks

> > Carolyn, Nath's mum

> >

> >

> >

--------------------------------------------------------------

------

> ------------

> >

> >

> >

> >