Off the Diet? and Behaviour

[Guest guest]

Speaking of coming off the diet, has anyone noticed behavioural issues

with weaning?? We are down to 2.5:1 now, will move to 2:1 on Monday. I

know Jess definitely wants off this diet NOW (which actually helps me

because I can tell myself I know I am doing the right thing when I start

to worry about the sanity of what we are doing) and she has actually

started cheating (on 2 occasions in the past few weeks), something she

never did in over 6 years on the diet.

But my question is about behaviour not related to food/eating. I have

definitely seen a disintegration in her behaviour since we added Keppra

in December but it seems worse lately. More emotional, irritable,

doesn't take much to push her over the edge and when she goes, watch

out!

Anybody seen anything like this with weaning the diet? Or am I just

facing the start of adolescence? )

, 's mom

Bill Barber wrote:

> Since going to a .5:1 ratio and not seeing any urine ketones, we

> thought

> that maybe we were " off " the diet.

>

> I was measuring with the scale and keeping calories limited. A couple

> of

> things happened. My calculations had drifted off slightly with each

> ratio change, so that they weren't quite as accurate. If anything

> calories were higher. The scale wasn't working so I just used the

> eyeball measuring technique. One of the meals wasn't refrigerated

> properly and caused diarrhea.

>

> One or more of these resulted in a great increase in seizures

> especially

> at night. They were stronger and longer too.

>

> I have since gotten a working scale, corrected calculations and menus,

>

> and given a bit of yogurt at each meal. Hopefully, when the digestion

> gets back to normal, the seizures will reduce to their previous level.

>

> Maybe we are still " on " the diet.

>

> Bill

>

>

>

> " The Ketogenic Diet....a realistic treatment option, NOT just a last

> resort! "

>

> List is for parent to parent support only.

> It is important to get medical advice from a

> professional keto team!

> Subscribe: ketogenic-subscribe

> Unsubscribe: ketogenic-unsubscribe

>

>

>

>

>

[Guest guest]

,

We have tried to wean Shan, age 9, twice off the diet and had similar

issues. We actually got her completely weaned and within 3 day she was

climbing the walls. The second time were able to keep her off a month

before she was climbing the walls and had excessive mood swings. I

attribute it to carb build up along with increased seizure activity. The

first wean we gave her all the fruit and vegetables she wanted. The second

wean we tried to limit her carbs to 20. The first time we weaned her we put

her back into ketosis but the mood swings persisted. I then limited her

carbs to 20 and the " climbing the walls " and excessive mood swings resolved.

After the second unsuccessful wean, all issues resolved when I put her back

into minimum ketosis (carbs already low). Your daughter's behavior may be

reflecting to too much carbs. I have also adapted the diet to the ADD diet.

Shan is not diagnosed with ADD but several months ago she was showing many

signs of ADD in spite of low carbs. I did research on the internet on the

ADD diet and found that some kids can be very sensitive to foods high in

salicylates. At the time I was giving her a lot of almonds which are

extreme high in salicylates. I dropped those immediately, as well as some

other high foods, and within 24 hours I saw a big change for the better. If

you are interested in a list of high salicylates foods, I did a google

search and found them listed under ADD diet. There is another parent in

this group who wants to learn more about the ADD diet. I'm going to do a

little research and hopefully post a response today.

Rhonda

Speaking of coming off the diet, has anyone noticed behavioural issues

with weaning?? We are down to 2.5:1 now, will move to 2:1 on Monday. I

know Jess definitely wants off this diet NOW (which actually helps me

because I can tell myself I know I am doing the right thing when I start

to worry about the sanity of what we are doing) and she has actually

started cheating (on 2 occasions in the past few weeks), something she

never did in over 6 years on the diet.

But my question is about behaviour not related to food/eating. I have

definitely seen a disintegration in her behaviour since we added Keppra

in December but it seems worse lately. More emotional, irritable,

doesn't take much to push her over the edge and when she goes, watch

out!

Anybody seen anything like this with weaning the diet? Or am I just

facing the start of adolescence? )

, 's mom

[Guest guest]

,

We had horrible behavioral issues with Keppra before we started the

diet. I posted about our exprience last Sept. -- not long after I

joined the group. Both you and I were part of a discussion about

meds and behavior. My message is 27186 posted 9/25/03. Some replies

follow. Based on our experience, I suspect Keppra -- especially if

she didn't behave this way prior to starting it 6 months ago.

I can't really think of anything that would happen when weaning the

diet that would cause a big change in emotions. Starting the diet --

going from non-ketogenic state to ketogenic makes some kids feel

yucky and they have emotional issues which usually subside after they

adjust to the ketones on board.

Maybe Jess is just SO excited to get off the diet (anticipating the

foods she will get to eat once she IS off) that her emotional control

isn't its best right now??? Just a thought.

How is she doing seizure wise with the wean?

Cammie

>

> > Since going to a .5:1 ratio and not seeing any urine ketones, we

> > thought

> > that maybe we were " off " the diet.

> >

> > I was measuring with the scale and keeping calories limited. A

couple

> > of

> > things happened. My calculations had drifted off slightly with

each

> > ratio change, so that they weren't quite as accurate. If anything

> > calories were higher. The scale wasn't working so I just used the

> > eyeball measuring technique. One of the meals wasn't refrigerated

> > properly and caused diarrhea.

> >

> > One or more of these resulted in a great increase in seizures

> > especially

> > at night. They were stronger and longer too.

> >

> > I have since gotten a working scale, corrected calculations and

menus,

> >

> > and given a bit of yogurt at each meal. Hopefully, when the

digestion

> > gets back to normal, the seizures will reduce to their previous

level.

> >

> > Maybe we are still " on " the diet.

> >

> > Bill

> >

> >

> >

> > " The Ketogenic Diet....a realistic treatment option, NOT just a

last

> > resort! "

> >

> > List is for parent to parent support only.

> > It is important to get medical advice from a

> > professional keto team!

> > Subscribe: ketogenic-subscribe

> > Unsubscribe: ketogenic-

unsubscribe

> >

> >

> >

> >

> >

[Guest guest]

We did have a bit of 'behaviour' - angry outbursts etc. But as you say

I don't know whether it was usual teenage stuff or the Keppra or the

weaning or a combination of all of them. I think in Rohan's case it's

more to do with Keppra than anything else.

Things are a bit more settled now (or shouldn't I say these things out

loud!)

Saro

mmc@... wrote:

> Speaking of coming off the diet, has anyone noticed behavioural issues

> with weaning?? We are down to 2.5:1 now, will move to 2:1 on Monday. I

> know Jess definitely wants off this diet NOW (which actually helps me

> because I can tell myself I know I am doing the right thing when I start

> to worry about the sanity of what we are doing) and she has actually

> started cheating (on 2 occasions in the past few weeks), something she

> never did in over 6 years on the diet.

> But my question is about behaviour not related to food/eating. I have

> definitely seen a disintegration in her behaviour since we added Keppra

> in December but it seems worse lately. More emotional, irritable,

> doesn't take much to push her over the edge and when she goes, watch

> out!

> Anybody seen anything like this with weaning the diet? Or am I just

> facing the start of adolescence? )

> , 's mom

>

> Bill Barber wrote:

>

> > Since going to a .5:1 ratio and not seeing any urine ketones, we

> > thought

> > that maybe we were " off " the diet.

> >

> > I was measuring with the scale and keeping calories limited. A couple

> > of

> > things happened. My calculations had drifted off slightly with each

> > ratio change, so that they weren't quite as accurate. If anything

> > calories were higher. The scale wasn't working so I just used the

> > eyeball measuring technique. One of the meals wasn't refrigerated

> > properly and caused diarrhea.

> >

> > One or more of these resulted in a great increase in seizures

> > especially

> > at night. They were stronger and longer too.

> >

> > I have since gotten a working scale, corrected calculations and menus,

> >

> > and given a bit of yogurt at each meal. Hopefully, when the digestion

> > gets back to normal, the seizures will reduce to their previous level.

> >

> > Maybe we are still " on " the diet.

> >

> > Bill

> >

> >

> >

> > " The Ketogenic Diet....a realistic treatment option, NOT just a last

> > resort! "

> >

> > List is for parent to parent support only.

> > It is important to get medical advice from a

> > professional keto team!

> > Subscribe: ketogenic-subscribe

> > Unsubscribe: ketogenic-unsubscribe

> >

> >

> >

> >

> >