Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 My feeling is YES, she can be coping that well. My 5 yr. old daughter is the same way, and we did not realize she had hearing loss until she was 3 1/2. She has severe hearing loss in her left ear and mild-moderate in her right. We are having her aided in Chapel Hill PRONTO. Best wishes, Robin T. in NC Mother of Sydney, 5, bilateral LVAS and super-smeller and seer!!!! > > Hey everyone, > I find myself with more questions and getting very nervous. > just over a week before Bree finally gets to go to this new ENT from the > Children's Hospital. Last night after bath I was drying the youngest 2 > girls off and of course we were jabbering. I was not talking softly and > possibly even to a whisper to my younger daughter (2) and Bree told me > " don't talk to (so) twiet (quiet) " . Her saying that has been playing > over and over in my head of so many reasons or not reasons why she would > have said that. Then this morning on the couch I was talking to is > and they were intermittently watching cartoons, and I'd say " Bree " in a > whisper, then gradually get louder till she responded. When she > responded it was always with " what? " and she'd move her head and upper > body so that is' body was not in front of my face. So then with her > attention I held my hand SLIGHTLY angled but more so straight out from > my upper lip to try to block her from seeing my mouth, I would ask her > something she would know the answer to. But EVERY time she would tilt > her head down to look UNDER my hand!!!!! > > Few other things- she always sits in the same spot to watch TV, and if I > move the couches she gets mad and wants it back the way it was. Her > sense of smell is like a dog I swear! I have never heard her say " I hear > the popcorn " it's ALWAYS after its done popping and dumped in a bowl " I > mell (smell) poporn (popcorn) " . She can smell things that it takes me a > few minutes to finally smell- usually like outside smells while in the > van. > The other thing that happened recently was we ate lunch with my 6yro at > school last week in the cafeteria- Bree hated it, she hated being there > she clung to my side and cried to go home because of the noise in an > elementary school cafeteria. > > Correlation? What are your thoughts? She's been said to have " mild > hearing loss " but the first audiologist said in his report that it > adequate for speech and language development at this time. Her > Tympanograms were flat before- have no idea what they are since > November, and her OEM were " absent " . > > Can she be this good at coping and only be THREE? > I go Thursday for the IEP's results on her speech and language eval, I'm > going to be pessimistic but I'm pretty sure its to tell me she isn't > delayed enough because I already know it's not 2 standard deviations. > She has physical therapy for her toe walking on Friday and probably > getting leg braces of some sort made, and then the ENT next Wednesday. > I'm getting nervous for all of this! > > -Robin > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 What you are describing here is hearing impaired behavior. Heightened senses other than hearing to make up for what she couldn't hear. And lip reading! I loved the smelling! When Maggie got her hearing aids she wondered about the microwave beeping - she had never heard it. But she could make oatmeal herself in the microwave and always took it out right after it stopped. She said she put her head on the door and could feel when the microwave turned off. I thought she was looking! I never thought about smelling but maggie used to crawl on the floor like a cat or dog or horse (you could tell which it was because she was so tuned in visually to how the different animals moved). We could even tell when she was pretending to be a mutt vs. a weimaraner. And that was hearing related - plus a love of animals. Remember, if TN has the same cut off as GA, a preschool child needs to be 2 SD behind in one area or 1.5 SD behind in more than one area for generic special ed. For hearing it is 1 SD though that is not written anywhere in GA. But even without a delay this big (2 SD delay is the difference between a child with a normal IQ and a child with an IQ of 70 (which is usually the definition of MR). 1 SD is like being more than a year delayed. So even if the delay isn't that big, it doesn't mean she doesn't need some help, like hearing aids or AV etc, it just means the school isn't required to provide or pay for it. Unfortunately, they often couch it in phrases like - she's typical. When you know that isn't true. At our first eligibility/IEP meeting they actually told me my child was " above average " - which she probably was for a kid who couldn't hear. She wasn't anything like my other kids or my friends kids or my neighbor's kids who I considered typical. When they said that I actually stood up and said, a few weeks ago we found out our daughter had a severe hearing loss and needed 2000 dollars worth of hearing aids and now you are telling us she doesn't need anything??? That she is right on target? So listen to what your mom gut is telling you - Bree is telling you she can't hear! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 That's so funny - we've always said that Sam has the nose of a bloodhound! And he's also a fabulous lipreader. I'm not sure I could tell a mutt from a weimaraner though, - LOL! Barbara pcknott@... wrote: > What you are describing here is hearing impaired behavior. Heightened senses other than hearing to make up for what she couldn't hear. And lip reading! I loved the smelling! When Maggie got her hearing aids she wondered about the microwave beeping - she had never heard it. But she could make oatmeal herself in the microwave and always took it out right after it stopped. She said she put her head on the door and could feel when the microwave turned off. I thought she was looking! I never thought about smelling but maggie used to crawl on the floor like a cat or dog or horse (you could tell which it was because she was so tuned in visually to how the different animals moved). We could even tell when she was pretending to be a mutt vs. a weimaraner. And that was hearing related - plus a love of animals. > > Remember, if TN has the same cut off as GA, a preschool child needs to be 2 SD behind in one area or 1.5 SD behind in more than one area for generic special ed. For hearing it is 1 SD though that is not written anywhere in GA. But even without a delay this big (2 SD delay is the difference between a child with a normal IQ and a child with an IQ of 70 (which is usually the definition of MR). 1 SD is like being more than a year delayed. So even if the delay isn't that big, it doesn't mean she doesn't need some help, like hearing aids or AV etc, it just means the school isn't required to provide or pay for it. Unfortunately, they often couch it in phrases like - she's typical. When you know that isn't true. At our first eligibility/IEP meeting they actually told me my child was " above average " - which she probably was for a kid who couldn't hear. She wasn't anything like my other kids or my friends kids or my neighbor's kids who I considered typical. When they said that I actually stood up and said, a few weeks ago we found out our daughter had a severe hearing loss and needed 2000 dollars worth of hearing aids and now you are telling us she doesn't need anything??? That she is right on target? > > So listen to what your mom gut is telling you - Bree is telling you she can't hear! > > > > > > All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Weimareners bat at things with their front legs. One of the weimaraners in the " wegman " pictures (weimaraners dressed up like people) is actually named Batty. (one has a crooked tail and is named Crooky - guess his creativity didn't kick in while naming the dogs!) My sister has a weimaraner that Maggie grew up with and we also had the ABCs and counting weimaraner videos. My sister's dog had a rear leg amputated, and Maggie was the only one who noticed that she didn't " bat " anymore unless she was laying down. She would have fallen down so it made sense. Re: personal test > >That's so funny - we've always said that Sam has the nose of a >bloodhound! And he's also a fabulous lipreader. > >I'm not sure I could tell a mutt from a weimaraner though, - LOL! > >Barbara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Hi there, This may not be what you want to hear, but Bree is definately compensating for what she can't hear. Yes, children can do this at an early age. We didn't notice trying to read our lips until after her loss was diagnosed and we started to put things together. As much as it stinks that she may not qualify for services at this time, she is really doing a great job trying to gain the info that she needs you understand things (looking under your hand, moving to a certain spot to hear better, etc.). My daughter still doesn't do a lot of those things. If you place your hand in front of your lips while talking...she just does her best to understand you. Let us know how the meeting went, or if you decided to delay it. Debbie Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Most definately! Your daughter has taught herself to compenstate for her inability to hear. My son did the same thing and had the doctor's (and audiologists) fooled until he was 8 years old. We struggled to find the answer to his language problems, but were told we were just paranoid. It turns out he has a moderate to severe bi- lateral sensorineural high frequency loss. He is now 18, but with losing 8 years of being able to hear high frequency sounds, his lanugage/communication skills are still behind. My son has a heightened sense of smell, as well. I've always heard that when one sense is dimished, another becomes stronger. I certainly believe it now! Beverly > > Hey everyone, > I find myself with more questions and getting very nervous. > just over a week before Bree finally gets to go to this new ENT from the > Children's Hospital. Last night after bath I was drying the youngest 2 > girls off and of course we were jabbering. I was not talking softly and > possibly even to a whisper to my younger daughter (2) and Bree told me > " don't talk to (so) twiet (quiet) " . Her saying that has been playing > over and over in my head of so many reasons or not reasons why she would > have said that. Then this morning on the couch I was talking to is > and they were intermittently watching cartoons, and I'd say " Bree " in a > whisper, then gradually get louder till she responded. When she > responded it was always with " what? " and she'd move her head and upper > body so that is' body was not in front of my face. So then with her > attention I held my hand SLIGHTLY angled but more so straight out from > my upper lip to try to block her from seeing my mouth, I would ask her > something she would know the answer to. But EVERY time she would tilt > her head down to look UNDER my hand!!!!! > > Few other things- she always sits in the same spot to watch TV, and if I > move the couches she gets mad and wants it back the way it was. Her > sense of smell is like a dog I swear! I have never heard her say " I hear > the popcorn " it's ALWAYS after its done popping and dumped in a bowl " I > mell (smell) poporn (popcorn) " . She can smell things that it takes me a > few minutes to finally smell- usually like outside smells while in the > van. > The other thing that happened recently was we ate lunch with my 6yro at > school last week in the cafeteria- Bree hated it, she hated being there > she clung to my side and cried to go home because of the noise in an > elementary school cafeteria. > > Correlation? What are your thoughts? She's been said to have " mild > hearing loss " but the first audiologist said in his report that it > adequate for speech and language development at this time. Her > Tympanograms were flat before- have no idea what they are since > November, and her OEM were " absent " . > > Can she be this good at coping and only be THREE? > I go Thursday for the IEP's results on her speech and language eval, I'm > going to be pessimistic but I'm pretty sure its to tell me she isn't > delayed enough because I already know it's not 2 standard deviations. > She has physical therapy for her toe walking on Friday and probably > getting leg braces of some sort made, and then the ENT next Wednesday. > I'm getting nervous for all of this! > > -Robin > > > Quote Link to comment Share on other sites More sharing options...
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