Guest guest Posted May 16, 2006 Report Posted May 16, 2006 Hello, I am looking for advice from people who are being told their profoundly deaf children with cochlear implants are doing so well, you don't need to worry anymore. I am constantly trying to keep a balanced perspective and thrilled with the progress has made. She turned 4 in December and has a language delay of one year, receptively and expressively. She gets along well in her preschool class, but I still see significant needs and know that with each year new hurdles are going to come our way. My next concern is with her pre-reading and reading skills. I am excited that she knows many of her letters, but I still see many areas she needs to work on in her language skills. The truth of the matter is - I want so badly to not worry that I am starting to believe the " educational professionals " and am losing my edge for explaining her needs. I just don't think they get " it. " Hearing loss is more complicated than being able to understand what the child is saying. She is really good at fooling people into thinking she understands everything that is being said. Any advice? Feeling a little down, Angel Gasior --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1ยข/min. Quote
Guest guest Posted May 17, 2006 Report Posted May 17, 2006 Sara, My daughter was tested years ago with a Western Blot for an autoimmune response. Her hearing loss which is progressive was caused by congenital Cytomegalovirus (CMV). With her, the theory was/is that the CMV causes an autoimmune response in the inner ear which is what causes the fluctuation and progression of her hearing loss. Sharon Quote
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